I was diagnosed with Rheumatoid Arthritus(Crest Syndrome-----Rhenoids(?) disease) approx a year and a half a go.In June I had an attack of Ulcerative Colitus with a repeat performance two weeks ago.My Dr. just told me that the protein Cryoglobulemia showed in my recent bloodwork.I'm trying to gather imformation on this to better understand the relationship to my other symptoms and NEW situations that "POP" up!!!!! Nothing was mentioned about Hepatitis. Thank-you......Susan from Rochester.
You're right, Raynaud's is a symptom of cryoglobulemia.
Google Raynaud's syndrome. I had to write a paper about it in school and your symptoms sound very familar. For some reason those of us with hep c have a number of arthritic autoimmune disorders. Maybe someone else can make the connection clearer.
Got to give it time. And time. And time.
Yeah, I remember the ole' "Blue Lagoon". Just might take you up on your offer one of these days. First, got to get out the road map and figure out just where Iceland is :)
I hope Double Dose doesn't read about the "household" thing as he will have a field day with it :)
Be well,
-- Jim
for intrest, something strange came up today. My business partner was called in for blood donation as he has some special type, and there is a new question list asking if you live or work with someone that has hcv. apparently, they do not except donation from people that live in the same household as a hcv infected person!!! He was ok as he JUST works with someone !
I get similar symptoms in my hands when they are cold. I have to eat a bowl of icecream with potholders. But the symptoms don't last as long as yours. I do have a high rheumatoid factor due to hepc, I also have cryoglobulemia, thats what causes the symptoms. Have you been checked for cryo?
Hi Jim
jep, I made it to the finishing line. I didn
Hi Ice,
Glad you finally finished up. Congratulations !
Give it a bit more time before rushing to any conclusions. Many of us have had all sorts of weird things happen coming off the treatment drugs. I remember waking up in the middle of the night with excrutiating leg cramps for a month after stopping. In most cases, many of these things will better with time but that can be anywhere from a few weeks to six-months to a year. Of course, run things by your doctor but hopefully this will be temporary.
Be well.