Hi, I saw a sign about it in the waiting room yesterday at CPMC. I had to pick up some Neupogen from Mark. I think the trial is pegasys versus peg-intron. You would need to phone that number for more info. They didn't mention much other than wanting genotype 1, compensated livers, and expenses paid. I think the dr. in charge had an Italian or Spanish surname, maybe with an M? I only wrote down the phone number.
BTW: Dr.F is letting me cut back the neupogen to once weekly. I can handle that much better. My platelets are back down to 33 so no riding horses, climbing trees or pogo sticks for me!
Yeah, you are right, I am better off not fooling with any trials now. I still haven't called C2C, so busy with fire stuff etc, haven't had time. Hope I qualify, but from what I hear I should! Of course I didn't write the number down, so if you could please post it again, I promise I will this time! thanks sweetie!
Yep, you would think those ins. co would be more up on things give the new studies, that could save them SO much money in the long run by allowing people to extend, giving 4 week PCR's etc. I feel so lucky I have had you guys to help me along. YOU have been a lifesaver and I sure hope you don't leave us anytime soon, now that you are finished! Luv you lots!!!!! so happy for you!
Mine just refused to pay too. I used C2C for my combo meds ONLY and my regular doc was STILL ABLE of course to order my Epo, Ambien, Paxill yada yada yada and my blood work / tests. The insurance just wouldn't pay for the meds. Stupid huh?
I wouldn't get into a study just for that. MUCH easier to have peggassist or C2C pay for the two meds and continue on.
Somebody new might screw you up somehow. After week 48 I felt like I was an old pro and since I didn't have to do anything except have them refill the meds with a simple phone call - and they came straight to my house...I did what I wanted and avoided ALL doctor appointments if I could.
I just had HAD it (especially since he freely admitted I knew more than he did about the disease - thats a goof but most likely...you will).
I'm not supposed to fall down. My biggest accommplishment this week was dead heading my potted primroses and pansies! I never could do those pogo sticks. And I've had concussions from being thrown from horses. Horse people never fall off, they are thrown. LOL!
Although I have not checked clinicaltrials in a couple of weeks there are a few interferon trials that are recruiting in various locations. One is 'induction' dosing of ifn2a (pegasys) in varying doses and durations. The premise is to use highdose ifn (up to double the usual dose)That one seems interesting to me. Another, which a trail site invited me to participate about a month ago involved Albuferon. That an interferon that is dosed biweekly vs. weekly. Since I'm not geno 1 and currently on tx, I don't qualify for the Albuferon. And, I started current tx double-dosing the peg for the first 4 weeks, which is why the other sounds interesting. But, if I were a watching and waiting person, I'd try to hitch my wagon to a VX trial.
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