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Avatar universal

excerises durning treatment



today will be shoot two. last week wasn't too bad. Just tired sometimes got a little spacey. I think the key for me is not to feel sorry for myself otherwise might find my self in bed 24/7.  

I just started working out a little right before I started treatment and am planning on trying to keep it up durning treatmnet just wondered what others approach to excersises was/is.

Also about 6 months prior to starting treatment I was diagnosed with type 2 diabetes which currently is under control thanks to meds and diet change and excerises. Anyone else here diabetec as well?
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Avatar universal
they banned mercurochrome??? where was I??

no wonder I have not seen the fluorescent stuff anymore! Is iodine still around?

have  a good side free week, HCV warriors!
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Avatar universal
timedoc - on excercise, I say do as much of it as you can for as long as you can.. WHen I started tx I usually walked 3 mi 5 days a week.  I managed to keep that up for about 5 months but then the weather and motiviation got it the wasy -- I can make up lots of excuses.  Now I am luck if I stroll 2 miles 2 days a week.  I think the thing is do what you can - it can't hurt- but don't feel bad if you can't

Am I the only one that icecream doesn't taste good to on tx.  I mean it is a fate worse than death.. I still buy it and force it down, but it doesn't give me any satisfaction.  I sure hate the way my taste buds are screwed around

anise - I used to have those lows once a week or so at first but I am not sure that they were not related to anemia.  If your hgb was dropped 2 points from your pre-treatment number, you will feel it significantly, even if the docs say you haven't reached the official anemia number.  But also, yes, I think the drugs fatique us too -- I kind of run out the energy that I have earlier than usual.. Still those first highs and lows

Fish - I liked your PJ Sunday idea so much I have had PJ Saturday, PJ Sunday, PJ Monday and now PJ Tuesday.. This is the first day I have been online since Sat morning. Bronchitis got me big time.  I have never been so sick with chest pain before -- seemed like a precursor to the 85 year old me.  Hopefully I will go back to work tomorrow.  Did get all my Riba down, but not with fat - no way I could eat.
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Avatar universal
All of us have wondered that. We sell twice as much icecream from now through may then we do in july and august. And it seems every year the icecream shops open earlier.

I was worried about you when i read that you hang till about midnight. That ought to help the ole job resume don't you think?
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73878 tn?1214053207
So tell me, why is there such a bigger craving for Ice Scream in the winter appossed to summer?
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Avatar universal
I save the best for last, plus i been thinking about you lately all the time. I'll forever remember you. Icecream and fudge bars and i think. Would nygirl be this crazy to stand OUTSIDE in line 25 degrees and snowing for a large dipped cone and a kid screaming, "i want mine with sprinkles on it"? Then i think yep she would. So hows my favorite icecream girl doing?
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Avatar universal
;-p I was the one looking for you dolt first! Now you don't even say hi to me?????  ;-p

Must have a fudgicle hangover or something right?
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73878 tn?1214053207
AH!  Can-Do, thought you changed your named and forgot to tell everyone what it was!  I like to stay up late therefore I will sleep later in the morns & I get a lil more housework done too.  Beside I like my tv shows too. I am on AD and have been since a month before tx. Decided on that after reading here.  Oh had a great dream last night about catching Pacific sails out of Guatamala last night, it was fun!  As for Ice scream, seems I NEVER eat it in the summer, only in the winter.....weird huh?  Glad ya here, was missing ya!

lioness, I call my West Highland Terrier (Westie, 1 year old) a monter dog at nite ( terriozes us!) and princess in the morns.  She so funny, we have to actually go get her out of bed in the morns, carry her out and anounce the Princess has arrisen!  Wild child in the back yard and LOVES the pool!  You would think she has lab in her as much time she spends in the pool.  Anyway she's a year old now and VERY demanding espescially when she wants to go for a walk.  I have done well training her She's sooooo smart! but now she is trying to train me and We are butting heads on that! Only because when she does something she is told, she gets a treat, I get nothing! LOL....luv my puppy!

Anise, I just did shot #27 of 48 Sat. nite.  For some reason, sides do not hit untill late Mon, all day tues and most of Wed.  Then pretty much ok Thursday, Fri, Sat and most of Sun.  Weird huh?  Those are the days I really want to crash and burn.  Red blood count started at 15, down to 11.4, do to get it checked again this Friday.  Undectable since week 12, I am a 1/A.  I'll be in my teens before long on this tx!  WOOHOO!

Have a wonderful day all!  Gotta let Rog have computer, chack back in a while.
FISHERESS!
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Avatar universal
goofypadre- awwwwwwwww man,my first visual of the AM-Rocky Road and can do canyon. Gotta start this day over. Hey how's minigoof? He takin advantage of any upgrade in your energy level yet/

Doc was due back yesterday: trying to schedule in conjuction w/this weeks cbc. Have this "thought" he's gonna say, 'gee your tolerating the meds so well, we can do this forever long as it's going down.' He thought I shoulda been thrilled when my 12 wk was 291,000 from 18.7mil. I figure the last 3100 are just stuck on that post it note I swallowed years ago, or so against leaving the nest cause I provided such a 'lush' enviornment for all those years. Course ya know when it comes to my "thoughts" I have to remember those 2 or 3 years of daily psychedelics for breakfast. Here's how I think...Last week I cut a 3'slice in my wrist on a piece of wire lat I was throwing in a dumpster..practically no blood, just clots right away, so I think nothing of it. cover it, and bacitracin. This weekend notice it getting red and sore, show it to ex-medics aide Dad. 'No not infected yet, forget the bacitarcin needs mercurachrome. Hall closet, one bottle way in back, expiration 1991.Dad says it's still good. Apply. THEN I look up on web, mercurachrome. Hey Dad the FDA banned this **** in the 90s. HMMMMMMMMMMM.

Kick the can Man-Dude I thought I was getting little sleep..you been sittin at the door w/shotgun waitin for AZ and the Ice Cream Brigade to show? How was the weekend sportsfest-You really up to it you Grandpa you?
Mercury poisoned Don
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92903 tn?1309904711
<i>Even though i was thinking where id like to shove that icecream.
</i>
Hey did you get that tip from AZgirl? She say's it helps her, but I didn't know you sufferer of the 'rhoids. Would it be Rocky Road, or Tunnel o' Fudge?  

Glad to see you guys. Been wondering about ya. Can-do, you need your sleep, son. Your body needs it with this stuff. Have you tried benadryl? That can knock you for a good 8 hours. Also, there's a new ambien/CR or somethin.

Hey strator, when's that doc going to consult? We need to know whazzup.
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Avatar universal
OK, the most I could handle today: watched J. J. Cale/ Leon Russell DVD.  AT least got my heart rate up, and cheered me up.  Then I had to go google to see how old they are now.  Drat. J. J. Cale is 67, Leon is 64 ( if my math is right, which is always debatable...1938, 1942  Long sigh....... Uh, can do, you know who eats ice cream.  Everyone from NYgirl to fishdocs in nm......... job security man...
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Avatar universal
Goofy's bon bonning has become my fudgicling...that's a workout that I can appreciate over and over and over and really get myself around!

The things we enjoy and stay skeletally thin in the interim - in fact I'd be AFRAID to exercise now my GOD I don't need to burn up one single calorie that I can keep in lol what a terrific feeling hahahah.

Anybody seen CanDo Man I don't see him posting that's not like him at all.
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108191 tn?1199599905
I try to walk a couple of miles a day.  Since I am only on shot 5, I still have energy to walk.  However, my HGB has fallen from 15.1 to 12.7 in the past month.  Hopefully, it won't keep falling, if it does, then I will most likely become a 'bon-bon person' :)

Does anyone have very sleepy days a couple of days after the shot?  I can hardly stay awake, then three days later energy is back.
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73878 tn?1214053207
My lil monster dog does notlet me NOT walk her everyday.  If I am not up to the task, Rog will take her (he has to brush her first so she is pretty).  If it's  a good day for me, I will do the mile around the neighborhood, if having an off day, she gets the short block and if I won't get off the couch, thats when Rog takes her.  So thats about all the exercise I get besides my gardening I have got in recently, ( a lil a day).  Afterwards especially in the mornings about 11am I am ready for a nap.  I have already done my routine of water, breakfast, more water, meds, check work e-mails (full day already) and then decide if I am going to take a shower or hop back in the bed.  Rog has even quit making the bed in the morns cause he knows I will end up right back in it (my luvs my bed!)

If I  fight a nap during the day and try to stay busy, then I crash and burn on the couch at 8:30-9pm, if I get my beauty sleep, I can usally hang until 11:00 or 12midnight.  So yes, sleepyness is a battle and I usally just go w/it.

Yea, and where is can-do?????

Fisheress
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108191 tn?1199599905
So, it sounds like tiredness is part of the deal even without anemia, sigh.  

I know what you mean about getting back into bed.  My husband and I will go for breakfast on saturday and by the time we get home I am ready for a nap already.  That's great you have a dog that demands some exercise time.  We have two cats.

Can you update me on how long you have been on treatment?
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Avatar universal
I am sooooo ompressed!!!!!!!!!!!And jealous, cuz I love the feeling of working out, I can already feel the differnce, it's making me even lazier, and softer,,,,me dont like! Whaaaa!
There was my crying for the day.
lilmoma
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Avatar universal
WHERE ARE YOU? You did shot 17 yesterday didnt you.
Let us know how you are doing, we miss you!!!!!!!!!!!!!
lilmoma
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Avatar universal
I have a crazed whippet that makes me get out for a stroll down the creek everyday (whilst he runs out around in circles)  He cheers me up no end and gets me walking.  actually found it more of a struggle pre tx walking him.  Am on a herbal mix at the moment with siberian ginseng that helps my energy.  Thank god for dogs!  I wondered about getting back into yoga, but wondering about thrombocytopenia causing small bleeds if muscles become overstretched, is that a risk?
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Avatar universal
lilmoma ask....WHERE ARE YOU? First i need to figure out who am I. Then why am I, Then i'll worry about where am I. Sunday was shot 13, wish it was 17. Thanks for missing me. That has to be a first. So how is lilmoma doing?

Fisheress, Just why in the world do you hang until 12:00 for. Thats not good at all. Get on some AD's girl, don't hang yourself. You won't be fisherLESS for long girl. Plus im counting on being your  pool boy.

Stupid icecream shops are all opening, its only 25 degrees outside, major snow storm heading our way. Get called this evening after a long day, a shop in a panic. What are we gonna do our milk dispenser machine won't work. How we gonna make malts and shakes? Jump in the car run over there open the dispenser. Well it might help if you put one of those 5 gallons bags of milk in it don't you think? Had to laugh though because i open a ice cream dispenser. Empty, So i put a bag of soft serve in it. Who in their right mind goes out for icecream when its this cold and snowing?
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Avatar universal
goof said....Sorry for the delay. To answer your question I had to flip forward on my calendar, and for some reason the pages were stuck.
_______________________________________________________________

For goodness sakes man keep them "special calendars" put up for them moments.  Get you one of those men mechanic calendars for everyday use. That way the pages won't stick together.
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Avatar universal
After I first began with the battle of anemia - which was the physically and mentally most challenging thing that had EVER happened to me - I no longer exercise at all during treatment.  

My hemo went from 15 to 9 in a bit over a week and I was physically devastated. It's not just how LOW it goes but how FAST and it was just beyond words. I could not even stand up without fainting.

I've always been a very athletic and energetic person but now I save up EVERY SINGLE BIT of energy that I have in my body. It takes that much just to walk talk and get through the day.  My hemo is back up to a solid 11 from the original 15 but that does NOT allow for any workout type thing for me at all.

It takes every single calorie I can consume just to keep going.

Be careful that you don't wear your body out.  Shot 2 is VERY VERY VERY EARLY in treatment and you still SHOULD feel physically fine - the drugs haven't ravaged your body and tried to kill it yet (which generally is the purpose of the drugs to kill what's inside us those bad germs the suckers!)

Make SURE you are getting a CBC every single week and while it's certainly OK to exercise while you can...and I did constantly before treatment ... don't be surprised if it takes all your energy just to shower and shave and get to work later. THAT is REALLY like a full day of working out at the gym on the stairmaster right now to most of us.

For real. (PS I'm like week 27 or 28 of 60 or so I always forget as I don't pay much attention until I need a pcr) :)
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Avatar universal
fishy says....AT least got my heart rate up, and cheered me up
________________________________________________________________

Sure don't take much to get you excited does it. Them two are kinda of young for you isn't they? HA HA...And i said normal people that excludes you a doctor of fish, and nygirl will be the first to tell you shes crazy.


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Avatar universal
CAN-DO-  HEY! I just came in from getting Ice Cream, despite still being cold from working outside all day. Oh - Wait you said who in their right mind....(some first day of spring)
Benn wondering where you've been but I haven't been on here much myself or for that matter haven't been much myself. Love those service calls..lights don't work...30 min ride..hmmm, notice there's no bulbs in here ma'am.

timedog- I was a pretty regular exerciser pre tx. I'm on week 27/48+. Now I pretty much rely on the exercise at work, remodeling and demolition work, electrical work crawling around in crawl spaces or up and down ladders. Usually no more than 6hrs a day, and I have to say I usually feel a lot better those days, although my bones and muscles ache when I get there and when I leave. But anything that requires more cardiovascular type stuff like running is pretty much off my list. Get too winded. I do a few things for a living including artwork from home, so if I have a stretch of a few days not working construction, I do workout bytes, light ones. Twisting and turning a few minutes a few times a day. Maybe a few pushups a few times a day.There's 13 steps to upstairs in my house so a few times a day I double time em. Point is for me I do have to pace myself but if I attck it in little bits rather than a 'workout', I'm still getting exercise which I think keeps the joints from aching even more and really seems to give me some stimulation at least in brief spurts. I also because of an ever changing flexible schedule will often take naps in bytes too. For instance I'm up at 6:30 getting my kid and Dad rolling, household chores etc, but might not have to be at work that day til 11am so I'll grab a 20min nap before I leave for work. Work til maybe 5, grab a 1/2 hr to hour nap then cook supper, go to a meeting, back home and do laundry, paperwork and stuff and maybe a 1/2 hr online or in front of the tube. Bed at midnite. I guess what I'm saying is that I sort of break the day up into a few smaller 'days' and it makes it more do-able. But I haven't crossed the border to anemic yet so that's just me. On days I feel cruddy I at least do some stretching even if it's while I'm sitting down. Find what's right for you.
The best to you, be well.
Don
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Avatar universal
CAN-DO- HEY! I just came in from getting Ice Cream, despite still being cold from working outside all day. Oh - Wait you said who in their right mind....

Thats the key words right mind. Hope you brought some home for big chuck though. Or you might find yourself grabing your chins as you go flying off that bed tonight. Hows pops and the son doing?
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Avatar universal
I did pilates, yoga, tai bo before treatment.  After anemia and at week 31/48, I am happy to haul myself out of bed and to work  every day!  Actually trying to start my pilates back up since it is low impact but builds muscle.  If I can manage, it will make me feel better.
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