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Avatar universal

excerises durning treatment



today will be shoot two. last week wasn't too bad. Just tired sometimes got a little spacey. I think the key for me is not to feel sorry for myself otherwise might find my self in bed 24/7.  

I just started working out a little right before I started treatment and am planning on trying to keep it up durning treatmnet just wondered what others approach to excersises was/is.

Also about 6 months prior to starting treatment I was diagnosed with type 2 diabetes which currently is under control thanks to meds and diet change and excerises. Anyone else here diabetec as well?
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Avatar universal
I want to warn you that if you get anemic from TX you will have a very difficult time keeping up with your exercise program. Anemia translates into less oxygen in the blood and that means fatigue upon little exertion. Also it is risky to your cardiac health to push yourself if you are anemic so watch out for the tell tale sign - breathlessness upon slight exertion. And, of course, watch your labs closely. Otherwise exercise is always a good idea.
Yes, I am diabetic. I became diabeteic after my liver transplant and I have been told that roughly 30% of liver transplant recipients got diabetes or, at least, that was the case in 2000. Good luck. Mike
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Avatar universal
Goodluck with the workouts. I used to workout twice day 5-6 days a week. I have 18 shots to go. I worked out after the 1st shot too but that was it. I haven't been to the gym since last August. I know world class runners who are on the same treatment that continue to do real excerise but in my case I just can't muster the energy.

Again Good luck and I hope things go better for you than me.

br007
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Avatar universal
as mentioned already, watch your symptoms carefully and learned the warnings so that you can ask for intervention when warranted.

I started tx in July'04. I had signed for the state Summer Run series that started in June of that yr. I would come home after the run, and collapsed in bed, many times shivering under the blankets. I am not sure what was at work, since this was pre tx. When tx started I continued the "running" but noticed I was becoming short of breath and I used my inhaler, thinking it was a bronchospasm. My PA kept saying everything looked good, each time I went for my visit and CBC results, so I thought it was asthma or something. By the time the Series ended in August, I was struggling. Finally at the end of Sept, I complained of chest pains, took a look at my hgb and saw it was 10.2! all this time she kept saying all is well! From then on, I kept copies of all my bloodwork and monitored it myself!
I also did one to two classes of cardiokickboxing at the Y, before, during and post tx. I liked the class so much, I FORCED myself to go, and did not regret doing so. You might find yourself pushing to get started, but push, as long as your anemia is controlled. If it is not, you might get one of those drs that wait until you are almost ready for an autopsy before intervening, take it easy. get copies of your bloodwork, try to do some form of physical activity even if you have to push yourself, it will help keep some muscle tone and your recovery post tx might come faster.
best to you
Helpful - 0
92903 tn?1309904711
I swam laps for 2 weeks into treatment, when I quickly hit the wall. I wasn't safe in the water.

Next I walked for a month or so. Normal pace for a mile or two.

After that I took up bon-bonning. You line up 12 bon-bons and see how quickly you can consume them. I remain quite good at that.
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116701 tn?1210259164
Good luck to you on the exercise. Like Mikesimon said it is a matter of air for some of us. My whites crashed and moving across my office became a major event. If you feel any breathing difficulties I would back off and not overtax your system. I've got 31 of 48 weeks left and I am more mobile than before. I haven't missed any work but I have nothing left to do much at night or weekends. It makes me feel lazy but I know its the treatment. Good luck to you. Dale
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Avatar universal
Great subject.

My first 4 mths included fairly hard workouts and two mile walks.  Here in mth 6 things are a bit more difficult.  Try focusing on breathing when all else fails:

http://www.drweil.com/u/Article/M116/
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Avatar universal
Exercise to tolerance if you can, in other words don't over-due it.  I've found that exercise helps me tolerate the treatment drugs better and try to do so when I'm able.

You may be able to start out running, then later jogging, eventually power  walking, then maybe just strolling.  We all react different to the treatment drugs, we all have different hemoglobin levels on treatment, and we all function differently at different hemoglobin levels. Age, prior fitness, and genetics all play a part.

If you find yourself not functioning well, speak to your doctor about Procrit. Personally, I try and Powerwalk a couple of miles a day. I've been successful about half the time. Without bragging LOL prior to treatment it would be a rare day that anyone other than a runner would pass me on a powerwalk. I still feel like I'm doing my old pace but just about everyone passes me. LOL.

Hemoglobin, hemoglobin, they name is humility.

-- Jim

Helpful - 0
116701 tn?1210259164
Pre-treatment I walked all the time. I just enjoyed walking and with my job I would walk around the plant as much as possible just to walk. Once the treatment started a trip to the back of the plant is an ordeal. I usually get in the car and drive around. Swimming that would be suicide ha! I'm almost done just taking a shower. The bonbons sound pretty good. I've really gotten into peeling bananas with my feet and nibbling on them. I will be so glad to have energy again. I know that will be a true statement for all of us. DR
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119874 tn?1189755829
I was able to work out easily for a couple of weeks (my usual, pretty assertive workouts).  Then anemia hit and I was down for a month.  But, I can now work out again--a little slower, not quite as long, but when I do it, it feels really good.

If you feel up to it at all, it will help your mind and body.  Some bad days I'll just go swim for 5 minutes (hottub for MUCH longer afterward).  Never a regret.  

I've found that one of the easiest things to do is workout on the weight machines.  Not aerobic but you can always lift light weights--maybe it will help with that so-called muscle wasting...

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Avatar universal
After I first began with the battle of anemia - which was the physically and mentally most challenging thing that had EVER happened to me - I no longer exercise at all during treatment.  

My hemo went from 15 to 9 in a bit over a week and I was physically devastated. It's not just how LOW it goes but how FAST and it was just beyond words. I could not even stand up without fainting.

I've always been a very athletic and energetic person but now I save up EVERY SINGLE BIT of energy that I have in my body. It takes that much just to walk talk and get through the day.  My hemo is back up to a solid 11 from the original 15 but that does NOT allow for any workout type thing for me at all.

It takes every single calorie I can consume just to keep going.

Be careful that you don't wear your body out.  Shot 2 is VERY VERY VERY EARLY in treatment and you still SHOULD feel physically fine - the drugs haven't ravaged your body and tried to kill it yet (which generally is the purpose of the drugs to kill what's inside us those bad germs the suckers!)

Make SURE you are getting a CBC every single week and while it's certainly OK to exercise while you can...and I did constantly before treatment ... don't be surprised if it takes all your energy just to shower and shave and get to work later. THAT is REALLY like a full day of working out at the gym on the stairmaster right now to most of us.

For real. (PS I'm like week 27 or 28 of 60 or so I always forget as I don't pay much attention until I need a pcr) :)
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Avatar universal
Goofy's bon bonning has become my fudgicling...that's a workout that I can appreciate over and over and over and really get myself around!

The things we enjoy and stay skeletally thin in the interim - in fact I'd be AFRAID to exercise now my GOD I don't need to burn up one single calorie that I can keep in lol what a terrific feeling hahahah.

Anybody seen CanDo Man I don't see him posting that's not like him at all.
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108191 tn?1199599905
I try to walk a couple of miles a day.  Since I am only on shot 5, I still have energy to walk.  However, my HGB has fallen from 15.1 to 12.7 in the past month.  Hopefully, it won't keep falling, if it does, then I will most likely become a 'bon-bon person' :)

Does anyone have very sleepy days a couple of days after the shot?  I can hardly stay awake, then three days later energy is back.
Helpful - 0
73878 tn?1214053207
My lil monster dog does notlet me NOT walk her everyday.  If I am not up to the task, Rog will take her (he has to brush her first so she is pretty).  If it's  a good day for me, I will do the mile around the neighborhood, if having an off day, she gets the short block and if I won't get off the couch, thats when Rog takes her.  So thats about all the exercise I get besides my gardening I have got in recently, ( a lil a day).  Afterwards especially in the mornings about 11am I am ready for a nap.  I have already done my routine of water, breakfast, more water, meds, check work e-mails (full day already) and then decide if I am going to take a shower or hop back in the bed.  Rog has even quit making the bed in the morns cause he knows I will end up right back in it (my luvs my bed!)

If I  fight a nap during the day and try to stay busy, then I crash and burn on the couch at 8:30-9pm, if I get my beauty sleep, I can usally hang until 11:00 or 12midnight.  So yes, sleepyness is a battle and I usally just go w/it.

Yea, and where is can-do?????

Fisheress
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108191 tn?1199599905
So, it sounds like tiredness is part of the deal even without anemia, sigh.  

I know what you mean about getting back into bed.  My husband and I will go for breakfast on saturday and by the time we get home I am ready for a nap already.  That's great you have a dog that demands some exercise time.  We have two cats.

Can you update me on how long you have been on treatment?
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Avatar universal
I am sooooo ompressed!!!!!!!!!!!And jealous, cuz I love the feeling of working out, I can already feel the differnce, it's making me even lazier, and softer,,,,me dont like! Whaaaa!
There was my crying for the day.
lilmoma
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Avatar universal
WHERE ARE YOU? You did shot 17 yesterday didnt you.
Let us know how you are doing, we miss you!!!!!!!!!!!!!
lilmoma
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Avatar universal
I have a crazed whippet that makes me get out for a stroll down the creek everyday (whilst he runs out around in circles)  He cheers me up no end and gets me walking.  actually found it more of a struggle pre tx walking him.  Am on a herbal mix at the moment with siberian ginseng that helps my energy.  Thank god for dogs!  I wondered about getting back into yoga, but wondering about thrombocytopenia causing small bleeds if muscles become overstretched, is that a risk?
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Avatar universal
lilmoma ask....WHERE ARE YOU? First i need to figure out who am I. Then why am I, Then i'll worry about where am I. Sunday was shot 13, wish it was 17. Thanks for missing me. That has to be a first. So how is lilmoma doing?

Fisheress, Just why in the world do you hang until 12:00 for. Thats not good at all. Get on some AD's girl, don't hang yourself. You won't be fisherLESS for long girl. Plus im counting on being your  pool boy.

Stupid icecream shops are all opening, its only 25 degrees outside, major snow storm heading our way. Get called this evening after a long day, a shop in a panic. What are we gonna do our milk dispenser machine won't work. How we gonna make malts and shakes? Jump in the car run over there open the dispenser. Well it might help if you put one of those 5 gallons bags of milk in it don't you think? Had to laugh though because i open a ice cream dispenser. Empty, So i put a bag of soft serve in it. Who in their right mind goes out for icecream when its this cold and snowing?
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Avatar universal
goof said....Sorry for the delay. To answer your question I had to flip forward on my calendar, and for some reason the pages were stuck.
_______________________________________________________________

For goodness sakes man keep them "special calendars" put up for them moments.  Get you one of those men mechanic calendars for everyday use. That way the pages won't stick together.
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Avatar universal
OK, the most I could handle today: watched J. J. Cale/ Leon Russell DVD.  AT least got my heart rate up, and cheered me up.  Then I had to go google to see how old they are now.  Drat. J. J. Cale is 67, Leon is 64 ( if my math is right, which is always debatable...1938, 1942  Long sigh....... Uh, can do, you know who eats ice cream.  Everyone from NYgirl to fishdocs in nm......... job security man...
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Avatar universal
fishy says....AT least got my heart rate up, and cheered me up
________________________________________________________________

Sure don't take much to get you excited does it. Them two are kinda of young for you isn't they? HA HA...And i said normal people that excludes you a doctor of fish, and nygirl will be the first to tell you shes crazy.


Helpful - 0
Avatar universal
CAN-DO-  HEY! I just came in from getting Ice Cream, despite still being cold from working outside all day. Oh - Wait you said who in their right mind....(some first day of spring)
Benn wondering where you've been but I haven't been on here much myself or for that matter haven't been much myself. Love those service calls..lights don't work...30 min ride..hmmm, notice there's no bulbs in here ma'am.

timedog- I was a pretty regular exerciser pre tx. I'm on week 27/48+. Now I pretty much rely on the exercise at work, remodeling and demolition work, electrical work crawling around in crawl spaces or up and down ladders. Usually no more than 6hrs a day, and I have to say I usually feel a lot better those days, although my bones and muscles ache when I get there and when I leave. But anything that requires more cardiovascular type stuff like running is pretty much off my list. Get too winded. I do a few things for a living including artwork from home, so if I have a stretch of a few days not working construction, I do workout bytes, light ones. Twisting and turning a few minutes a few times a day. Maybe a few pushups a few times a day.There's 13 steps to upstairs in my house so a few times a day I double time em. Point is for me I do have to pace myself but if I attck it in little bits rather than a 'workout', I'm still getting exercise which I think keeps the joints from aching even more and really seems to give me some stimulation at least in brief spurts. I also because of an ever changing flexible schedule will often take naps in bytes too. For instance I'm up at 6:30 getting my kid and Dad rolling, household chores etc, but might not have to be at work that day til 11am so I'll grab a 20min nap before I leave for work. Work til maybe 5, grab a 1/2 hr to hour nap then cook supper, go to a meeting, back home and do laundry, paperwork and stuff and maybe a 1/2 hr online or in front of the tube. Bed at midnite. I guess what I'm saying is that I sort of break the day up into a few smaller 'days' and it makes it more do-able. But I haven't crossed the border to anemic yet so that's just me. On days I feel cruddy I at least do some stretching even if it's while I'm sitting down. Find what's right for you.
The best to you, be well.
Don
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Avatar universal
CAN-DO- HEY! I just came in from getting Ice Cream, despite still being cold from working outside all day. Oh - Wait you said who in their right mind....

Thats the key words right mind. Hope you brought some home for big chuck though. Or you might find yourself grabing your chins as you go flying off that bed tonight. Hows pops and the son doing?
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Avatar universal
I did pilates, yoga, tai bo before treatment.  After anemia and at week 31/48, I am happy to haul myself out of bed and to work  every day!  Actually trying to start my pilates back up since it is low impact but builds muscle.  If I can manage, it will make me feel better.
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