Aa
I guess you like playing with your chances of living or dying....I am 100% compliant with meds and even up the riba every other day and double dose on a few shots.....full compliance gives you the best shot at SVR.....we all have choices to make in life.....
--robert
--robert
You don't need to feel guilty one way or the other sounds like your getting good results doing it the way you are. I'm 13 weeks into tx and have been 100% compliant, I think, but I don't remember so well anymore. PS my wife shoves them down my throat because she doesn't trust me to remember ha! Your results sound so great I hope all goes well for you. Dale
SORRY ABOUT THE SIDES. MINE HAVE GOTTEN WORSE THE LAST 3 WEEKS AND I AM WONDERING IF I WILL TREAT TO 48 OR STOP AT 41-42? NOW AT 25 AND I WANT TO ENJOY THE SUMMER. 80% RULE. I HAVE NEVER MISSED A DOSE OF EITHER AND I FEEL IT IS A SLIPPERY SLOPE. IF I MISS ONE NOW WHY NOT TOMMORROW? I HOPE YOU BITE THE BULLET
(DO NOT LET IT EXPLODE IN YOUR MOUTH) AND BE AS COMPLIANT AS POSSIBLE. IF YOU TAKE HALF MEASURES AND IT DOES NOT WORK IT IS ALL FOR NAUGHT.
MEANWHILE THE BEST FIX FOR SIDES IS A SMILE AND A WALK.
BOBBY
(DO NOT LET IT EXPLODE IN YOUR MOUTH) AND BE AS COMPLIANT AS POSSIBLE. IF YOU TAKE HALF MEASURES AND IT DOES NOT WORK IT IS ALL FOR NAUGHT.
MEANWHILE THE BEST FIX FOR SIDES IS A SMILE AND A WALK.
BOBBY
I have never missed a dose of my meds even if I was sick as a dog. I'm in week 11 of treatment.
There is no way I want to go through treatment again so I am doing everything in my power to kill this virus first time around.
There is no way I want to go through treatment again so I am doing everything in my power to kill this virus first time around.
I am so paranoid about missing a shot that I accidentally did TWO of them the other night.
In order to achieve the goal they say you need to be 100% compliant with drug taking.
I worry that if I dont take them exactly on time and end up at week 24 with just a few left...that all this would have been for nothing.
I think if you intend to do treatment you have to do it right. Hopefully you haven't messed up your chances - a week without the Interferon killing the virus doesn't sound like a good thing to me.
I hate the sides too but hate the fact of all the things this virus can do to me even more.
In order to achieve the goal they say you need to be 100% compliant with drug taking.
I worry that if I dont take them exactly on time and end up at week 24 with just a few left...that all this would have been for nothing.
I think if you intend to do treatment you have to do it right. Hopefully you haven't messed up your chances - a week without the Interferon killing the virus doesn't sound like a good thing to me.
I hate the sides too but hate the fact of all the things this virus can do to me even more.
I'd be surprised to learn that I'd missd a dose. Maybe a riba dose, but not that I'm aware of.
I don't think that missing a few ribas here in there is a big thing, though I try to avoid it. Missing a whole weeks worth of Interferon is a bigger deal, I would imagine. I'd play catch-up now, Chris.
As I understand the 80/80/80 rule, it was a compilation of data that says patients hwo take at least 80 of their dose, at least 80% on-time, and complete 80% of the prescribed course fare quite a bit better than the treating population at large. But most of that can be attributed to the 80/80/80 group not including early drops and non-responders. So it's not a ticket to skip your meds.
I don't worry about timing so much. Hope I'm right about that. I let Riba and INF doses swing an hour or two each way. But I do take the riba with a decent amount of food and fat.
Last few days, as I mentioned, riba along with everything else has been running through me like water through a hose. Definite problem short-term, hopefully less of an issue long term.
I don't think that missing a few ribas here in there is a big thing, though I try to avoid it. Missing a whole weeks worth of Interferon is a bigger deal, I would imagine. I'd play catch-up now, Chris.
As I understand the 80/80/80 rule, it was a compilation of data that says patients hwo take at least 80 of their dose, at least 80% on-time, and complete 80% of the prescribed course fare quite a bit better than the treating population at large. But most of that can be attributed to the 80/80/80 group not including early drops and non-responders. So it's not a ticket to skip your meds.
I don't worry about timing so much. Hope I'm right about that. I let Riba and INF doses swing an hour or two each way. But I do take the riba with a decent amount of food and fat.
Last few days, as I mentioned, riba along with everything else has been running through me like water through a hose. Definite problem short-term, hopefully less of an issue long term.
full compliance here; week and shot 16 today..i take 1 xtra riba day of shot..i can certainly understand your missing doses-this is self-inflicted poisoning,rather difficult chokin down the riba sum days,but hang in there& give it your best "shot"
The doctor cut my Peg dose the first 15 weeks, and had me skip the shot on week 7. The miracle is I was undetectable at week 12, and also at week 24. Now, I'm coming up on week 33. I've taken 100% of Peg since week 16 - Neupogen raised my WBC so that I could take the full dose.
One time, when I went to take my evening Riba, I saw that I had forgotten to take the morning dose; it was still there in the little pill tray. So I got up at 2 AM and took the missed dose, and then went back on normal schedule in the AM. I told my nurse what I'd done and she said I'd handled it in an appropriate way.
Bob
One time, when I went to take my evening Riba, I saw that I had forgotten to take the morning dose; it was still there in the little pill tray. So I got up at 2 AM and took the missed dose, and then went back on normal schedule in the AM. I told my nurse what I'd done and she said I'd handled it in an appropriate way.
Bob
I read somewhere that those who adhere to the 80/80/80 rule can add another 15% on to their chances of SVR. I don't know if that's right, someone might clarify that, but I like the sound of any increase in odds.
If treatment doesn't work for me I'll have to accept it, but I'd be happier if I knew I gave it my best shot. Don't skip any more, your next PCR could still be a good one.
If treatment doesn't work for me I'll have to accept it, but I'd be happier if I knew I gave it my best shot. Don't skip any more, your next PCR could still be a good one.
I agree with Goof taking the Riba a few hours here or there off isn't that big a deal because it's so built up in our systems but the Int isn't - missing that causes me concern. Take it now Chris if you've gotten the script filled.
I always fill my scripts a week in advance just in case. Maybe if you had it there you probably WOULD have taken it you know?
Don't mess with your tx plan, please.
Beamer - I do the same thing I take an extra Riba on shot day. Don't ask me why but I do it too. I try NOT to take the extra Interferon like I just did though.
PS a Good way to make sure you always take the Riba is get one of the little Daily cases that has an AM and PM slot. Then you can't forget really because it's right in your face.
I always fill my scripts a week in advance just in case. Maybe if you had it there you probably WOULD have taken it you know?
Don't mess with your tx plan, please.
Beamer - I do the same thing I take an extra Riba on shot day. Don't ask me why but I do it too. I try NOT to take the extra Interferon like I just did though.
PS a Good way to make sure you always take the Riba is get one of the little Daily cases that has an AM and PM slot. Then you can't forget really because it's right in your face.
YAY I am so glad that you are going to take your shot!
Believe me...you are preachin to the choir talking about getting lazy and slacking off. I am the QUEEN of these type things let me tell you.
I am just SO GLAD you posted about it and then took the advice of all of the guys who posted. It's a great thing knowing that people REALLY have your best interest at heart...and the people here really do.
We are ALL in the same boat - and sometimes it's nice to let the others help row once in a while. Especially for lazy AZZES like us :)
Great move Chris. So glad for you. Whew!
Believe me...you are preachin to the choir talking about getting lazy and slacking off. I am the QUEEN of these type things let me tell you.
I am just SO GLAD you posted about it and then took the advice of all of the guys who posted. It's a great thing knowing that people REALLY have your best interest at heart...and the people here really do.
We are ALL in the same boat - and sometimes it's nice to let the others help row once in a while. Especially for lazy AZZES like us :)
Great move Chris. So glad for you. Whew!
boy to kid: i am soo glad yur takin the shot,now you r complyin!!!!! 2006 is the year to Clear...
nygirl:nice to know that great twisted,totally drug-addled minds think alike!!!! i am always impressed w/ your ability to "carry on" thru miserable sx,work situation& personal dramas(i got sum myself& it ain't so easy,esp. while trx& dealin w/ the reality of being hepc+).....what i'm trying to say is you are source of inspiration,strength,support-Your courage is Contagious
nygirl:nice to know that great twisted,totally drug-addled minds think alike!!!! i am always impressed w/ your ability to "carry on" thru miserable sx,work situation& personal dramas(i got sum myself& it ain't so easy,esp. while trx& dealin w/ the reality of being hepc+).....what i'm trying to say is you are source of inspiration,strength,support-Your courage is Contagious
Beamish thank you so much. You know sometimes hearing something nice said to yourself means so much - today is one of those days where I just needed it.
Sometimes during this course of tx it gets so easy to say WHY am I doing this?
Then you see somebody else with the same brain drain doing the same thing you are and you go...OH must be some real logic behind this!
Stupid - oh yeah probably but on shot night I get a bit over geered and go ha die you mother suckers die!!!!!!!! I think that you do to LOL.
Now in reality I KNOW it's not doing a darn thing most likely but...it just makes me feel like I'm doing all I can.
Thanks for helping to make me feel less like Super Geek - you have no idea how much your frienship has meant to me during this all. I hope once we both SVR we can stay in here to help new people like the other "old timers". I've found my new online friendships in some ways (understanding) has been much more important than my outside friends, something that I never knew could happen but man is such a great gift. And you are one of them.
Debby
Sometimes during this course of tx it gets so easy to say WHY am I doing this?
Then you see somebody else with the same brain drain doing the same thing you are and you go...OH must be some real logic behind this!
Stupid - oh yeah probably but on shot night I get a bit over geered and go ha die you mother suckers die!!!!!!!! I think that you do to LOL.
Now in reality I KNOW it's not doing a darn thing most likely but...it just makes me feel like I'm doing all I can.
Thanks for helping to make me feel less like Super Geek - you have no idea how much your frienship has meant to me during this all. I hope once we both SVR we can stay in here to help new people like the other "old timers". I've found my new online friendships in some ways (understanding) has been much more important than my outside friends, something that I never knew could happen but man is such a great gift. And you are one of them.
Debby
I once saw a report found on Janis & Freinds stating that SVR rates are as follows
97% of peg & rib =66% svr
80 to <97% = 62% svr
60 to <80% = 57% svr
<60% =33%
Also not missing any ribavirin during the first 12 weeks is most important
97% of peg & rib =66% svr
80 to <97% = 62% svr
60 to <80% = 57% svr
<60% =33%
Also not missing any ribavirin during the first 12 weeks is most important
It seems like you may need to get some help for those sides. I think missing 6 riba doses is a lot and I would not do tht or miss a INF shot if possible. Are you on any blood boosters? That might help the tiredness. Still you may need something for the nausea or whatever the other side effects are.
I only missed one riba dose and took an extra pill the next 3 days to catch it up. My thinking is if 80% is okay, 100% is more better. The 80% rule sounds like something my kids used to do in school --- settle for the "C"
I only missed one riba dose and took an extra pill the next 3 days to catch it up. My thinking is if 80% is okay, 100% is more better. The 80% rule sounds like something my kids used to do in school --- settle for the "C"
I'm sure there's a lot of cheating (non-compliance) going on, but my guess is it's vastly under-represented in this obsessive lot :)
If I did forget to take a riba dose, I can't remember it, and that was more than made up the few times I wasn't sure and took extra to compensate.
Never missed a shot of Peg, which is more serious. I'd call your doctor -- or the Nurse on Charge Hotline -- and there's a medical reason against, you should seriously consider taking your missed Peg shot later today or tomorrow.
Suck it up, if you can :) Good luck!
-- Jim
If I did forget to take a riba dose, I can't remember it, and that was more than made up the few times I wasn't sure and took extra to compensate.
Never missed a shot of Peg, which is more serious. I'd call your doctor -- or the Nurse on Charge Hotline -- and there's a medical reason against, you should seriously consider taking your missed Peg shot later today or tomorrow.
Suck it up, if you can :) Good luck!
-- Jim
any missed riba on my part was due to the fog, and I don't even know how many times that might have happened, but it feels like it did happen a lot at the begining of tx. Is that part of the reason I was still detected at wk 12? who knows? but it could not have helped. Missing a dose on purpose, is another thing.
Given that the fog is aiding in forgetting your doses, you don't have to aid the fog by deliberately skipping them. I would consult with my GI and let him/her know how much I have missed and get their input and suggestions. Once people decide to treat and have vested so much effort in the treatment, I can't see them deliberately jeopardizing it.
chris, ask your dr for intervention, if you are feeling so lousy, you want to skip doses, is better than sabotaging your svr, don't you think? ask your dr for help!
Given that the fog is aiding in forgetting your doses, you don't have to aid the fog by deliberately skipping them. I would consult with my GI and let him/her know how much I have missed and get their input and suggestions. Once people decide to treat and have vested so much effort in the treatment, I can't see them deliberately jeopardizing it.
chris, ask your dr for intervention, if you are feeling so lousy, you want to skip doses, is better than sabotaging your svr, don't you think? ask your dr for help!
Hey Kid,
That 80/80/80 rule seems to be commonly quoted in the US but in Europe it's scoffed at. My feeling is take every shot and every pill. I've recently finished the 48 week treatment and in the middle weeks had to write down when I took the pills because the brain fog got so bad. I couldn't even entertain the thought of skipping the shots or pills; I'm an "all or nothing" kinda guy.
If you are intent on getting your liver healthy again, you've got to put your head down, clench your teeth, put one foot in front of the other, and take your shots and pills at the prescribed times. I remember at times looking at the syringe or pills in my hand and saying "Do your job."
I don't want to give you the impression that it's easy but you can do it if you put your mind to it.
You can do it and we're all with you.
Robert
That 80/80/80 rule seems to be commonly quoted in the US but in Europe it's scoffed at. My feeling is take every shot and every pill. I've recently finished the 48 week treatment and in the middle weeks had to write down when I took the pills because the brain fog got so bad. I couldn't even entertain the thought of skipping the shots or pills; I'm an "all or nothing" kinda guy.
If you are intent on getting your liver healthy again, you've got to put your head down, clench your teeth, put one foot in front of the other, and take your shots and pills at the prescribed times. I remember at times looking at the syringe or pills in my hand and saying "Do your job."
I don't want to give you the impression that it's easy but you can do it if you put your mind to it.
You can do it and we're all with you.
Robert
I have not ever really thought about not taking any of it. It is sooo expensive to my union insurance plan ($2,800.00 monthly for 6 months) "suggested retail" that I nearly choked when I saw the receipt!
So did you take the shot YET!?
(hope so too)
mare
So did you take the shot YET!?
(hope so too)
mare
In the 48 wk of tx, I never missed a shot. Maybe 4 or 5 times I was a day late. Due to brain fox, I missed about a dozen Riba doses and then started using the AM PM pill cases.
I finished tx on 01-04-06 and tested ND on 01-06-06. My first PCR is April 1, no fooling.
Dana
I finished tx on 01-04-06 and tested ND on 01-06-06. My first PCR is April 1, no fooling.
Dana
great moniker-between the pool (billiard) hustling,pub crawlin&soccer mayhem i do hope yur finding time to layabout on the davenport berating the state of your wife's fimances & mother-n-laws lack of forbearance!!! or am i nostalgic for an England that is no more?presently reading travel book-Blue Latitudes,tony horowitz- about adventures of capt. cook & lord banks aboard HMS endeavor; i am now nostalgic for a Tahiti that was fantasy island of lanquid pleasures..
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