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hep-c viral load 9 million have questions
I was just recently diognoised with hep-c and my viral load is 9 million. I would like to here from people that have had that high of a load, and responed to treatment. Don't know what genotype yet. But my doctor said probably a genotype 1, given my past backround, and that with that high of a load I have a good chance of not responding. Could you please tell me how long it takes to get the results for the genotype test. Sonogram was neg and my liver emzyme was slightly elevated. If treatment doesn't work will the high levels of the virus cause liver damage sooner than if the levels were low? If all goes well with the rest of my blood tests i will start treatment in two months, I cant seem to get my mind off of this. But I'm trying to keep my spirits high. I'm afraid to tell my work, dont know it they can get rid of me or not? Where does hipaa fit in. Can they tell other associates? I dont have much of a support system most of my family lives out of town and my husband just keeps saying its going to be alright. I dont want to here that, what if it isn't!
Cant talk to him about it he keeps telling me give it a rest. i have lots of questions and know answers, please help!
Cant talk to him about it he keeps telling me give it a rest. i have lots of questions and know answers, please help!
Hello from another "worry wort." My husband found out he had hepc a few months ago and just found out his VL is almost 10,000,000, so I had the same concerns as you. He got his VL and genotype test results back in one week. His genotype is 1b which is the hardest to treat.
His gastro seems very competent. I think he is pro-treatment, which if we decide to treat, I guess is a good thing. He talked about treating sides, etc., which I hear is also good that he is willing to do so. The thing that we thought was a little strange though was that he said my husband did not necessarily need a biopsy to treat, but he said that if his liver did not have a lot of damage that might prompt us to wait for newer meds coming down the pike, so we decided to get one. Went for the consultation yesterday and scheduled for December 8. Hoping for the best, but we think he's had this over 20 years, so not counting on it, although his gastro says it happens.
Yes, you are entitled to your medical records, although when I asked the gastro's nurse for blood test results, didn't seem like she was thrilled to give them to me. My PPO never had a problem with this, so I didn't know what that was all about.
Good luck with everything. It is scary at first, but as you can see, this board is great. The people are very welcoming and provide a wealth of info, making this journey a lot easier (btw, thanks everyone!), so if you try not to worry so much, I'll try too! And, if we treat, will keep you informed of progress, but I think that there are 1s that have cleared, even though the odds are not as good as 2s and 3s, and, who knows, you might just be one of those...you haven't had the test yet!
His gastro seems very competent. I think he is pro-treatment, which if we decide to treat, I guess is a good thing. He talked about treating sides, etc., which I hear is also good that he is willing to do so. The thing that we thought was a little strange though was that he said my husband did not necessarily need a biopsy to treat, but he said that if his liver did not have a lot of damage that might prompt us to wait for newer meds coming down the pike, so we decided to get one. Went for the consultation yesterday and scheduled for December 8. Hoping for the best, but we think he's had this over 20 years, so not counting on it, although his gastro says it happens.
Yes, you are entitled to your medical records, although when I asked the gastro's nurse for blood test results, didn't seem like she was thrilled to give them to me. My PPO never had a problem with this, so I didn't know what that was all about.
Good luck with everything. It is scary at first, but as you can see, this board is great. The people are very welcoming and provide a wealth of info, making this journey a lot easier (btw, thanks everyone!), so if you try not to worry so much, I'll try too! And, if we treat, will keep you informed of progress, but I think that there are 1s that have cleared, even though the odds are not as good as 2s and 3s, and, who knows, you might just be one of those...you haven't had the test yet!
Fresno ca, your right soon i will know to much! (information overload is what im suffering from now lol.) I dont know where my lab is being sent to but i will soon find out. Thanks for you information.
i wish you all the luck in the world! The Luck of the Irish, of course! I know you will do fine, we will do it together. Get some rest now, lass! Will check in tomarrow..make sure you keep in touch.
Im not 2irish, but i am irish too.lol thanks for your message, im happy to here that things are working out for you. you have been blessed. It is so nice to here that i have a chance. And now i will be able to lay my head down and rest. not knowing is the worst thing. wish me luck
start making a list of things to ask your dr, and take it with you. Do not leave the office without understanding the answers. You can call your lab and ask how long the tests take to come back. If you do a biopsy, you can ask the MD how long before the results are in. Unfortunately, the bx results are usually given at the next dr's visit. So long to wait. As for the bloodwork, ask your dr to always write cc the patient, so that you get your own copy and don't have to rely on the dr's call. It is ultimately up to you whether to treat or learn to live with HCV. There is a nice list by tnguy(member here) on things to ask the dr, but I have it in my PC at work. Maybe someone else has it handy?
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