Aa
Aa
A
A
A
Close
484932 tn?1226513291

last shot fri and im scared about next fri

I have read countless nightmares about the after sides of these meds. Does anyone have some good stories , Also I had had some weird stuff crop up in these last days, my skin is patches of crust, yuck, on my back and hips now they are on my eyes. under my very thin eyebrows and down to the corners in my tear ducts, WHATS THAT? I tried alot of creams and stuff and the only thing that seems to work alittle is hydor cort cream.  also I keep getting rushes in my head, new again, heart pownding into my teeth again weird.
Oh and I havnt had a flew shot yet, my dr said I couldnt cause of my blood count , low wbc, so should I get one this week before the ribba is gone?
So does anyone have a getting better plan they would like to share?
When I ask questions of my dr he kinda blows me off , and when I say some people get sick after he says nonscence. Not a good listener dr, oh well , have been un since 10 weeks and did 48 oh and I have three extra shots in the fridge, should I ween myself a little , he doesnt do that but if its best, I want to go on a regiment of health any suggestions
by the way i love you all , i do not have a huge support system in my life and so you have been a blessing , if there is anything I can do to help you get through these times , let me know
9 Responses
Sort by: Helpful Oldest Newest
475300 tn?1312423126
You just described my "warts".  I do pick them off, probably shouldn't but I can't stand feeling that on my leg or whereever.  My legs used to be nice and smooth, oh well......lots of things have changed and will hopefully change back.  

pjpie, I am 8 months post TX and while I am not quite back to my old self I am getting there.  One good thing that came of all this mess is that I understand a lot more about being healthy, keeping track of the blood work that says "hey,  I am back to normal"  LOL  ...............Think positive, good thoughts.  Good Luck

Denise
Helpful - 0
614034 tn?1304356440
Hi, wow I just posted a simlar question.  I had a bad skin prob I posted back in July or August and when it got so bad my gastro was concerned he sent me to a dermatologist, with urgent on my files, asking if I should be taken off treatment.  Turned out to be eczema, which I'd forgotten I'd had before, it was "really angry eczema" and he sees it a lot during HVC patients but it doesn't show up right away.  He prescribed two ointments, 2 different strengths, one for my body and one for my face.  It worked great altho I still have outbreaks after my shot but I'm confident it will stop after tx is over.  It saved my sanity for sure.  He also recommended cetaphil for the skin that was okay.  Good luck, we'll get through this yet!  2009 HAS to be better.  
Helpful - 0
388154 tn?1306361691
About the crust I have taped  a slice of cucumber over one just recently on the backside of my upper leg and  it went away in 24 hours also dit it on one near my eye and it went away even quicker.
Don´t know if what I´ve got is the same as you´ve got, mine was like small warts hard on top you could not resist trying to scratch them of.

I have more on legs and arms yesterday night I had cucumper on one on my arm didn´t went away but its smaller so i continue to night on that one.
Helpful - 0
Avatar universal
Whoops. I see you're almost finished treating so probably no time to shop for a new doc. LOL.  At this point your skin problems will hopefully start to clear by themself as you stop taking the drugs. My advice about topical steroids stays the same, just keep in mind that any derm you may see may not get the fact that your skin may start improving on its own as you wean off the interferon. As hepatologists don't know a lot about skin problems, dermatologists know even less about Hep C and interferon.
Helpful - 0
Avatar universal
Sorry about the skin problems.

You DO NOT want to used any type of topical steroids (even OTC Hydrocortisone) on your face (or eyes) unless under the direct supervision of a dermatologist. It can end up being counter productive. My suggestion is to make an appointment with a dermatologist ASAP for proper diagnosis and treatment, as skin problems haunt many of us during treatment, but not necessarily the same problems. So what works for John might not work for Jill. Of course you can speak to your treatment doctor but often they are not as well versed in skin problems and have a tendency to over-treat with stronger drugs than might be necessary. Alternatively, they may miss something and undertreat. Also, if I may be so bold, sounds like it might be time to start shopping around for another doc who listens and takes your side effects seriously. Best doctor to treat under is a liver specialist (hepatologist) and not a gastroenterologist.

- Jim
Helpful - 0
Avatar universal
You need to go to a dog park (whether you have a dog or not) and play and pet any dog you can. Let them lick you on the face. If it's sunny out, that's even more incentive.

Be happy. You'tr done with tx. No more riba to take. No more shots. No more waiting for the mail. No more ordering next months supply. The rest will fall as it is meant to. Congratulations!
Helpful - 0
388154 tn?1306361691
Thx for your good thoughts and willingness to help, warmeth my heart to hear.

Yes I´ve done two treatments 30 days post last riba today after 48 weeks of regular soc 180mcl pegasys a week and 1200 riba aday.

I had a break between the first and the scond tx of 10 months.
First tx was a really aweful one, had so much pain in my body and it lasted 3 months post after that hasn´t felt better in 25 years.

I felt young again could have been the  big contrast that i felt so much better though.
I sincerly belived I´ll never was gonna be able to walk without pain again especially since the pain didn´t go away until 3 moths post tx.

I have been having pain in my body for more than 25 years which I thought was due to a wild life and later ageing.

Thx to this forum I´ve realised most of the trouble I´ve had  was HCV related.

This second tx was also hell sometimes but it was much warmer in the first  tx hell.

I think more people or at least just as many feels good after tx as who feels bad.

Hope this gives you some hope !!

Good Gods blessings.

ca
Helpful - 0
471113 tn?1245108820
Hi

I finished tx around 2 weeks ago or so.. I have had no side effects and am feeling better and better everyday.

Best of luck to you
Helpful - 0
547836 tn?1302832832
i'm not done w/ tx yet so i can't really give you a direct answer, but i have seen some posts here about sx after tx, but it seems to me like most sx will last temporarily, although there might still be some other ones that would last longer.  my doc didn't want me to get a flu shot bc it's not going to be as effective during tx with intereferon so there really is no purpose.

don't worry too much, but be prepared

best of luck to ya!  you're done hurray!
Helpful - 0
Have an Answer?

You are reading content posted in the Hepatitis C Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.