Aa
leg pain
I have Hep c, went on treatment 3 years ago. Went off after 3 months, it was not working. Alreay have fibrosis, scaring. Of course no one knows how long it will take to progess.
Have a recurring problem, lots of leg pain in calves. Wake up some mornings feeling like I've been running for hours. Feels like muscle pain. I guess it's from Hep c, don't know. Recently I have had to travel, long flights. New development, my blood vessels in my feet seem to break. My feet look red and blue. Doctor told me not not to be concerned. Did blood work to make sure I was not bleeding interanally. When I get to my destination, the feet begin to heel, but before you know it, I'm going home, same problem. Some of the spots are so red, they burn when I get them into warm/hot water.
Anyone have these problems>
Anyon
Have a recurring problem, lots of leg pain in calves. Wake up some mornings feeling like I've been running for hours. Feels like muscle pain. I guess it's from Hep c, don't know. Recently I have had to travel, long flights. New development, my blood vessels in my feet seem to break. My feet look red and blue. Doctor told me not not to be concerned. Did blood work to make sure I was not bleeding interanally. When I get to my destination, the feet begin to heel, but before you know it, I'm going home, same problem. Some of the spots are so red, they burn when I get them into warm/hot water.
Anyone have these problems>
Anyon
Dear Pamike My son 40 has been diagnosed with hep c over one year now it has been a tough struggle with $ and treatment and emotional sence of hopelessness. I am sending him pure milk thistle-co q 10-which helps. Check into herbal treatment sites and be carefull to read all the info , a company called sunreider had a wonderfull whole food program that has wonderfull results. Ps My son is pretty hostle to alt treatments but trys to humor me ( expect a miracle) regards Miss Kitty
Hi all. first time writer, long time reader. I am going on week 5 of injections of interferon. Have the usual side effects and the meds are really kicking my butt. My body does not want to do what my brain wants it to do. Feel pretty rotten all week except the last 2 days of the week before my next injection. My problem/question. I'm 48 years old and have suffered from migrains, chronic degernative joint and bone diese, and artheritis.I have suffered alot of pain because I have not had insurance and couldn't afford dr. visits, tests, therepy etc.Now I have insurance but my Hep. C doctor only deals with the interferon etc. Wants me to talk to my primary care physcian about pain meds, depression etc. Problem is every doctor that I have spoken to refuses to give me any medication other than tylenal (which does nothing). There reason is #1 I am a new patient and they do not no me personally. The #2 reason is the one that angers me. Because I contracted Hep C from IV drug use over 12 REPEAT 12 years ago and have been clean and sober since. They wont prescribe anything that works. You have no idea how many times I thought about using again just to get relief from my pain, but didn't. Now when I am honest with the Dr. and want to do it the right way and get my health back, they treat me horribly. I am in the Puget Sound area of Washington State. Does anybody have suggestions on how to approch these Dr. or know of a good general practice dr. in my area that understands the effects of this medications. The interferon has only worsened the joint, leg, and migrain pain that I have been dealing with for years. Thanks for any help. Pamike
chev,,,of course you wouldn't forget anyone even if you were away for years...my kitties are shedding too...all nine of them....need help!!! drowning in a sea of furrrr...aaaachoooo!!! need super dooper vac...between them and me i'm not sure who's losing more hair...
i've been in and out around the forum too...enjoying the warmth of the spring and getting out...trying to gear myself up for the big gardening task of the flower beds deweeded and all that...
i've been reading alot at the "liver failure support forum" ie..."imkindly"...been getting alot of info on cirhosis and complications...(think i had my first bout of aeseties/edema from liver and my albumin has been 3.4/3.5 in the last few months...) it's amazing how many things start happening physically when liver damage gets bad...i wonder how many folks here just assume it's the tx and perhaps should concider thier liver functions as possible reasons for some of the "sides" we talk about here...it really woke me up to that possibility...seeing as some of the things are very similar to tx side effects...
been trying to educate myself on that seeing as i will still have the cirhosis even after (hopefully) clearing hepc. i don't think cirhosis can reverse cause it is hardening of the liver...not saying that new liver cells can't grow where the scarring hasn't occured yet and can and keep the liver going for a longer amount of time...
i'm just making sure i know what the signs and symptoms of beginning trouble is so that i can act if i see things and catch them on time...the gainning of 13 lbs in 2 days freaked me out...i still havn't lost all of it yet and dr dismissed it as sunburn...low salt diet helped tremedously!
my stomach got big and full and it really hurt all over...to me this is not "sunburn"...which by the way is long gone...this and the low grade fever i've been having have led me to call the clinic....but, no call back yet...jeeze! it usually takes them 4 days to respond...isn't that ridiculous for a hepatologist at a major teaching hospital? it's northwestern university in chicago...i'm wondering if after tx that i should go back to uic. i wish i knew what centers where the best in chicago are for managing end stage in case i have to deal with that some day...
it looks like even though i've been on tx for one and a half years (full dose without stop!) that some of my liver function numbers are still going in the wrong direction...esp the albumin and ferritin and AFP (december ct shows no cancer). my alt and ast went above normal a few months ago after the car accident and now they're settling down again...so i'm hoping no viral "breakthrough" again...can't figure out why the alt and ast would rise above normal again if i something didn't happen...
so anyway, i put a phone call into dr on thursday and now it's monday and still no call back...so how will this hep help me manage cirhosis if he can't even get a nurse to call me back within four days...i'd be dead by now if i had a bleed...idonno...
well hey, i'm not gonna let this stop me from having a great summer...i looked forward to summer here in illinois for 7 months...SO I WILL HAVE SUMMER! the cirhosis will have to wait to fall... :O)
have a great day chev...thanks for listening...
your friend, sandi
i've been in and out around the forum too...enjoying the warmth of the spring and getting out...trying to gear myself up for the big gardening task of the flower beds deweeded and all that...
i've been reading alot at the "liver failure support forum" ie..."imkindly"...been getting alot of info on cirhosis and complications...(think i had my first bout of aeseties/edema from liver and my albumin has been 3.4/3.5 in the last few months...) it's amazing how many things start happening physically when liver damage gets bad...i wonder how many folks here just assume it's the tx and perhaps should concider thier liver functions as possible reasons for some of the "sides" we talk about here...it really woke me up to that possibility...seeing as some of the things are very similar to tx side effects...
been trying to educate myself on that seeing as i will still have the cirhosis even after (hopefully) clearing hepc. i don't think cirhosis can reverse cause it is hardening of the liver...not saying that new liver cells can't grow where the scarring hasn't occured yet and can and keep the liver going for a longer amount of time...
i'm just making sure i know what the signs and symptoms of beginning trouble is so that i can act if i see things and catch them on time...the gainning of 13 lbs in 2 days freaked me out...i still havn't lost all of it yet and dr dismissed it as sunburn...low salt diet helped tremedously!
my stomach got big and full and it really hurt all over...to me this is not "sunburn"...which by the way is long gone...this and the low grade fever i've been having have led me to call the clinic....but, no call back yet...jeeze! it usually takes them 4 days to respond...isn't that ridiculous for a hepatologist at a major teaching hospital? it's northwestern university in chicago...i'm wondering if after tx that i should go back to uic. i wish i knew what centers where the best in chicago are for managing end stage in case i have to deal with that some day...
it looks like even though i've been on tx for one and a half years (full dose without stop!) that some of my liver function numbers are still going in the wrong direction...esp the albumin and ferritin and AFP (december ct shows no cancer). my alt and ast went above normal a few months ago after the car accident and now they're settling down again...so i'm hoping no viral "breakthrough" again...can't figure out why the alt and ast would rise above normal again if i something didn't happen...
so anyway, i put a phone call into dr on thursday and now it's monday and still no call back...so how will this hep help me manage cirhosis if he can't even get a nurse to call me back within four days...i'd be dead by now if i had a bleed...idonno...
well hey, i'm not gonna let this stop me from having a great summer...i looked forward to summer here in illinois for 7 months...SO I WILL HAVE SUMMER! the cirhosis will have to wait to fall... :O)
have a great day chev...thanks for listening...
your friend, sandi
hi chev, i enjoyed your post...arn't you the one with a ton of energy these days!?! that's so good to see and hear...what a ray of hope you are in the dark days of treatment... such energy as i have noticed in your posts these days have really encouraged me to look forward to october when i will finally rid myself of this tx...hope to be as peppy as you my friend...hope life is going sweet for you and that your enjoying spring and having some fun. :O)
luv ya, sandi
luv ya, sandi
garde I had terrible leg pain on tx but I have not had that problem since stopping. Hope it gets better for you.
Hi maj very good to see you back. I hope you are well
Bob L
Hi maj very good to see you back. I hope you are well
Bob L
Yes, I have had the exact same problems for several years. My ankles are a mess. I also have permanant nerve damage and joint deformities in my ankles. I went undiagnosed for years.
I was always told I had bad circulation & veracious veins. Just told to wear thick, old lady stockings. I got to the point I had trouble walking. Finally, I found a good Hematologist & got to the bottom of it. I tested positive for cryoglobulemia last July.
I would reccomend going to a HEMAtologist, not a Hepatologist or Gastro. Sometimes the Gastros & Hepatologists really don't know a lot about cryo.
A Hematologist will make sure the test is done properly. My Hemo told me that there are a lot of false negatives on cryocrit testing because they mistakingly send the blood out of the lab and compromise the sample. Make sure you have your blood drawn & tested in the same lab. The blood can not leave the lab.
I hope you get a solid diagnosis soon. I am sorry that you have this pain & vasculitis. One more thing....... does this pain & discoloration worsen when you get cold? My ankles & feet turned blue & purple one winter & I had the worst neurological pain. That is when I knew it wasn't just bad circulation. Please get tested. Hope this helps.
God Bless, Sue
I was always told I had bad circulation & veracious veins. Just told to wear thick, old lady stockings. I got to the point I had trouble walking. Finally, I found a good Hematologist & got to the bottom of it. I tested positive for cryoglobulemia last July.
I would reccomend going to a HEMAtologist, not a Hepatologist or Gastro. Sometimes the Gastros & Hepatologists really don't know a lot about cryo.
A Hematologist will make sure the test is done properly. My Hemo told me that there are a lot of false negatives on cryocrit testing because they mistakingly send the blood out of the lab and compromise the sample. Make sure you have your blood drawn & tested in the same lab. The blood can not leave the lab.
I hope you get a solid diagnosis soon. I am sorry that you have this pain & vasculitis. One more thing....... does this pain & discoloration worsen when you get cold? My ankles & feet turned blue & purple one winter & I had the worst neurological pain. That is when I knew it wasn't just bad circulation. Please get tested. Hope this helps.
God Bless, Sue
If you have to fly often, ask your doc about the stretchy stockings; you put them on after a period of rest, when your legs have been horizontal. People who've got congestive HD or who've had veins stripped from their legs for bypass operations frequently wear these stockings.
Another thing is to get up and move around in the plane. Also, the flight attendants should be able to show you some exercises you can do in your seat. If you are driving or riding in a car, you should likewise stop, get out and stretch your legs with a little walking at least once every 2 hours.
Another thing is to get up and move around in the plane. Also, the flight attendants should be able to show you some exercises you can do in your seat. If you are driving or riding in a car, you should likewise stop, get out and stretch your legs with a little walking at least once every 2 hours.
Don't have personal experience w/ this, but it sounds circulatory, like blood is pooling in your feet after a long period of immobility. Blood carries oxygen to the tissues, and oxygen-deprived tissues atrophy and ache. Have you tried addressing this with stretching and massage? Seriously....contracted calf muscles can cause all kinds of havoc to the feet. I would rule out deconditioning first before imagining other problems at work--just, as we say, my two cents.
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