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Avatar universal

The moment I came too understand that my hep c and chemo was'nt just about Me.

The worst moment for me so far was the day I over herd my husband talking too his best friend.
You see my way of dealing with everything was to remove myself physically, emotionally, mentally.
Not that I did this on purpose but as my looks changed and my hair got thinner my skin paler than normal, I went from 200 LB too 130 not that this was all a bad thing but the changes was so dramatic I began too worry about my relationship with my husband (This was just my Issue but my head got just as messed up as my looks).
So anyways I took too my bedroom and bed, I stopped calling friends and family I stopped answering the phone, I gave up on my garden and roses, I literly stopped life.
I stopped talking with my husband and interacting with my 3 year old step son.
Like I said earlyer I had gotten up too get some water and my husband was outside the kitchen with his best friend I'll never ever forget my wake up call as I herd him tell his friend that he misses his partner, that he feels so helpless, that he actually felt like he was in morning.
my step son got too the point when he would come for the weekend his first question too his dad would be "Is mama treva still sick? or would it hurt me if he gave me a hug?
This was the point I reached out too others such as yourself and tryed too pull myself up, they did put me on a low dose of anti depressents , they seemed too help.
I still have a really hard time with joining in and feeling so attacked emotionaly from the chemo, however I make a consious effort too not push my loved ones out and be more open on how I am feeling.
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Avatar universal
I am sooo happy for you and wish I could have read your post a long time ago, it may have helped my marriage.  I started treatment in Feb 2005 and the treatment as you all know was so intense, I guess I had the same emotions as you along with the usual fatigue, shortness of breath, anemia, low platelet count and I as know realize depression.  My husband was so supportive in the beginning of treatment, he surfed the net putting me on herbs and vitamins, made me most of my meals.  I was taken off after 4 1/2 months due to a severe rash over about 85% of my body and am still going to a Dermatologist.  My husband had an affair on me with a woman 20 years younger than me while really sick and ultimately has left.  I am/was crushed, we have been married 25 years.  After reading your post I realize how hard it must have been living with me.  I hope your post helps a lot of people before it goes too far like me.  Tell your loved ones you love them every day...never lose touch....
Helpful - 0
Avatar universal
Hi, thanks Beth, yes wouldn't that be a bonus no sx's, will soon find out won't I? Today I got like a sun blister on my lip, I usually get that twice a year or so from the sun, so am not sure if its tx or not, RN called today to see how I made out, told her good other than chills, mentioned my lip she promptly gave me a prescription for fungal whatever, haven't used it yet was going to see if it gets worse or what? has anyone experienced this type of blister? My husband is very good about me, waits on me hand and foot, couldn't ask for more, my grandson said not to forget about him that he helps to, smile he brought me a touque today to keep my head warm, thoughtful charming little guy isn't he......... glad to see you back
Helpful - 0
Avatar universal
I am so glad you did okay with your first shot...Let's all keep our fingers crossed that is what you will experience throughout your tx...How's your husband handling it?  Some spouses are not handling tx very well, hope yours does...

*hugs from the da dip*
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Avatar universal
wow, all of you just put tears in my eyes.
I can't remember when was the last time I felt so understood and loved from faceless friends..
For the ones who are just getting started please remember , everyones tx is different, oh we all have the same basic side affects but I have come too learn that chemo in itself is a journy and it is different for us all.
If there is anyway I can be of help please feel free too ask, cry or just too sit and chat.
I wish I had known of this group from first shot even my husband said he would have been on here asking questions too try and help me he feels like he was fishing in the dark stumbling trying too make things better.
Don't get me wrong he too started out like a child that had just lost his favorite toy but yes he is a champ and I could not ask for a better husband and lord knows I have had a few.
we have only been married a year and 6 months of that was in tx.
my point is if he is like this now I feel confident WE can handle anything together as one
Thank you everyone
I hope I can give just one person what all of you just gave me.
Helpful - 0
Avatar universal
Come back.  Try a larger dose of antidepressent and make sure you are not anenic.  Sounds like you have a nice husband. Mine is finally comming around..but i had to go through the first four months of him feeling sorry for himself for having to live with a moody person.  I think at shot number 17 he may of got it and he might be comming around.  I will see..
Helpful - 0
Avatar universal
Did my first shot Monday, RN said its usully the worst for some so I was anticipating awful stuff coming my way, luckly I only got mild chills for a few hours and a naggy headache, fine yesterday and today, will see what the second shot brings.
Helpful - 0
Avatar universal
as NY girl says, you are truley blessed with that man!  He's a keeper....

*dipper*
Helpful - 0
Avatar universal
your story brought tears to my eyes.  I am glad you found your way back to your loved ones.
This tx can make you so apathetic, that if you see someone hurt in the street, your mind might state:"I don't care that you are suffering". Very scary emotional state. My dr's office utilizes a Beck electronic device to evaluate emotional state while on tx. I had to do it at every monthly visit. They were the standard depression "mini mental" questions, but none of them addressed the apathy. So, it sounded as if I was doing fine. I did choose not to do ADs because of their own set of sides that I did not care for, but it seems to help some folks on tx. I am glad it helped you. Stick around, whining among friends helps a lot. How long have you been on tx?
Helpful - 0
Avatar universal
Hi Chevy,
  Long time no speak!!!!  How are you?  Yup, tonight is the last time I will have to inject myself, good thing too, as I have totally run out of empty spots that aren't bruised, LOL Hope this finds you healthy and happy....keep in touch.
Helpful - 0
Avatar universal
Do you have a tissue? Your story touched my heart and hope that you can, for you and your loved ones sake, get into life again. Make yourself do it and who knows, maybe you'll enjoy it enough to forget about this terrible tx sometimes. Love your family because they are worth loving!

Sincerely,
Dana
Helpful - 0
Avatar universal
good job! and may SVR be yours! you earned it!
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Avatar universal
Hi Veggie/Vegas,
     Thanks for letting me know. I can't wait to see what happens but I'm rooting for SVR for myself and everyone here. I will be back to let you all know, I just wish there wasn't so much waiting but what can you do???
Helpful - 0
Avatar universal
hi there, this is the the dip, had to change my name from
v eggie dip to vegas777...

I am rooting for you!  Best of luck and stay SVR!!!

*dippers*

Helpful - 0
Avatar universal
I am crying!!! I can relate, oh boy can I relate to every word. I haven't been here in a while and seeing as tonight is my "LAST SHOT"!!!!!!!(a looong 48 wks.)  I thought I would come on and let you all know. But as I started to read this post I lost it, it says everything I have been feeling for almost my entire treatment. I am so happy that you found your way out of that ugly hole and I pray I can do the same. Thank you for sharing and please give your hubby a great big hug. You are a very lucky lady to have him.

     Well, so far I am undetectable and will let you know how my next test comes out. In the mean time, I hope you all are feeling good and being extra good to yourselves, take care and God bless.
Helpful - 0
Avatar universal
Hey you!!!

Good to cya....

Thanks for all your support, it's much appreciated...

*everything gonna be just fine now, mama's home*  hehehe


*da dip*
Helpful - 0
Avatar universal
hey, let me be the first to say HI & WELCOME!   long time no see!  YEA!!!!
Helpful - 0
Avatar universal
That was so beauuuuutiful a lesson for you to teach us all. Thank you for sharing such a great and valuable thing. It is too easy for us all to always be about me me me and it's hard to remember about all our loved ones who are hurting too.

Thank you!

PS You are so blessed to have a husband who values you so much!  I would give anything for that, never lose it!
Helpful - 0

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