Blindsided

[Debbie223]

So I get a call today from my doctor's office asking me why I have not scheduled my ultra-sound. I am sure it is a mistake and they called the wrong person. I leave a message and then I get a message back saying that because of the scaring that I have that I need to be checked every 6 months ( not sure for how long, waiting for a call to speak to them). No one ever discussed this with me..I don't even know where to schedule the appt. Does anyone have this done? It really upset me... I am doing well on tx...going into week 13 and have been UND since week 4. I am having a pity party today. I hate what this has done to my life.

I just want to clear this and go on with my life. I want to feel free again........my freedom has been stolen..

Has anyone seen any long term studies of how people do that have cleared?

[Debbie223]

Thanks for responding. I spoke with the tx nurse today... she said that Cedar Sinai is pretty agressive and that she would wnat me to do this every 6 months. I guess I just have to look at it like that yearly girl thing we do.... better safe then sorry.

Thanks, guess I am feeling better.

[FlGuy]

It's not unusual.  After treatment a hepatologist suggested that I alternate ultasound and CT scan every six months. Am svr, the intent was to monitor closely for HCC. I was early cirrohitic. No big deal. The doc will give you a script to be presented and a commerical Medical Imaging place or other outpatient place.  I waited until tx was over plus several months.  Whether you test or not is entirely up to you.