side affects from pegatron and ribliviron

[seabreze]

has anyone experienced shortness of breath while on treatment.  also, has anyone ever heard of any deaths related to treatment?  please let me know?  thank you,   Seabreze

[jusdoodooit]

Do you happen to share the same Doc as me... on Sierra College Dr ?

[katdon]

I hear you on this one.  My husband had horrible side effects and became disabled.  He stopped his treatement in October (started in February), earlier than we had hopped but he just couldn't go on.

Had we known then what we know now there are a few things we would have done differently.  (PS virus load is undetectable now and has been since May).

One, introduce meal supplements to help with the nutrician..  Two:  WATER WATER WATER WATER!!  

If we were to go back to last FEbruary and knew what we knew now, I really don't know if he would have done the treatement.  There is apparently new treatments coming out that are not as hard on you but they are still in the testing stages and obviously there are no guarantees they will make it to the market.  Talk to your doctor.    Watch the hemoglobin and the nutrician and hydration.

Good luck.  This is a very tough treatment.

[James10500]

Telaprevir increases success rates to 62% from 25% for African Americans

http://www.news-medical.net/news/20101103/Combining-telaprevir-regimen-with-standard-therapy-improves-SVR-rate-in-hepatitis-C.aspx

[blesschildofgod]

i was told i had hepititis c back in 2008,i was started on the pegatron and the ribavirin and all it did for me was,lose of memory of what i was doing,poor performence at my job,lost over 40lbs itching like crazy had dizzyness, irritable,always feeling agitated,had difficulties breathing,eyesite worsened,i was told that it realld does not work on african americans but what did have to lose i was in a stage 2-3 at that time i was on my job from 2005 to 2010 ,they cant tell how i got it ,how long ive had it,i dont remember getting stuck ,i did not do needles drugs ,i lost my job, my insurance and now im fighting to get help to save my life no insuranse no helpi use to work with a hospice company i loved my job, i got this and they turned there back on me the company my unemployment was denied several times i feel like they gave me a death sentance ,but i appreceate the docters that gave me the treatments they did there best they were out of texas ,now im in my home town fighting for my life in kansas,do not turn the treatment down it did not help me but it might help you,im a strong woman god has not givin up on me and i refuse to give up on him im 49 years old i have 3 of my own and 6 grandkids that i will see grow up ,thank you ablessedchildofgodiam

[ashflash]

I went through the entire Pegatron treatment for 6 months and completely got rid of my Hep C. Lost 25 lbs. but gained all of it back plus 10 lbs. more.If you just hang in there it will be all wrth it. I feel great and its been 5 years since I ended the treatment and I'm healthy as can be....Hope that helps......Ashflash

[mj6000]

I also had been drinking for quite a few years and was afraid of my biopsy results. I was surprised that I only was at stage 1. Your's may not be as bad as you think too.

[a823]

I was able to get insurance through my state, social services department.

I haven't had treatment, but I was able to be seen and have levels taken. I was referred to a G.I.
In our state it was only for 21 and under, but under Obama's new laws, we now have it for anyone who meets the guidelines.If you make too much, there is still one that is offered for little money a month. (less than 50)
Good luck!

[Vic1967]

Hi astrick,
we were all afraid of the virus and of the treatment, but you have to come to a point that you decide to do something.  It doesn't mean your fears will go away, but knowledge and action help and put you in a better direction./  
Bill is right about the drinking.  Many have said that drinking with hep c is like throwing gas on a fire.  if you want to do anything at all you need to stop drinking.
There are a lot of people with advanced liver damage who have treated successfully.  Everyone handles treatment differently, some do fine, most have some side effects but manage.
There are programs available to those without Insurance that will help with the cost, but again, you have to stop drinking completely first.
You will find a lot of good advice and support here.
I wish you well and hope you make good choices for yourself.
Take care,
Vicky

[Bill1954]

Hi there,

Sorry to hear of your predicament. If you do nothing else for yourself, go to AA or somehow stop drinking; this will help immensely, and you can begin to address the Hep C after that.

Doctors won’t treat the disease if you’re using/drinking.

Bill

[astrick]

I've hep c for almost 10 years now with no treatment and I'm an alcoholic.I'm terrified to gop to the Dr. For fear he will tell me I've done too much damage and I'm gpoing to die. I dnt have insurance and can't afford the treatment. I'm mostly afraid of the biopsy and the pain and the sickkness from interferon. Anyone have any advice for me

[Bill1954]

Hi Lizardking,

There are lots of folks here that have walked the treatment walk, and would be glad to help your fiancée through this. Have her start a new post by going to the top of this page and clicking on the green ‘post a question’ button; this is an old thread, and most of us will miss you here.

Bill

[lizardking]

does anyone want to help me with my fiancée? she will be going through pegatron treatment and I am scared to find myself inadequate to help her appropriately.

[honey1616]

hahaha I see that Befudd has found herself way down under at "Blue Moon Tea Room" LOL   Hey,,,I'm surprised Cuteus hasn't been down on this thread!  She doesn't miss a "Q" haha  Maybe she is "stuck" on time warp up at top of thread and forgot.  Okkkkk Show,,,are you passing out blue popsicles to all of us??  LOL

[Showboat]

Honey....that is a good one....tee hee....I guess it could happen....(being that it is the "Blue Moon" Thread it MAY never end) hahhahahahahahah......
I survived my Jazzercise class.....it was soooo hot and humid I was seeing blue....or maybe I just looked blue.....but it helped me not to feel blue... :>)  Hey, weird, I am eating a blue-raspberry popcicle right now....(music now playing the "Twilight Zone" theme) LOL

[honey1616]

Hey Showboat,,,,at least you are exercising!  LOL  I would say that is a big step for mankind since I haven't done much of it lately! LOL  hahahaha We act like we are only ones checking the blue room down "under" LOL   Ohhhh yeahhh,,,Love Golden Girls!! Love the Blue Moon Partae,,,,Partae,,,,Partae!!!  Just a thought,,,,but maybe since this is blue moon thread,,,,it won't end....ROFL,,,,Chev will probably enter soon and say something to do with hmmmmmm,,,,,Could it be #4,,,#4,,,,#4

[Showboat]

Geeeee....I love this "area" for posting, and I will cry "blue tears" when we fill this up to the "thread full" notice. :>)

Honey:::: I was hoping you were going to "check in" down yonder here.....this is my second visit down here in "Blue Haven" today....one would think that I do not have a life..hahahahahhaha...it is a good thing I am off to my exercise class soon, it will force me out the door today........BUT I KNOW I WILL HAVE TO CHECK IN AGAIN TONIGHT AT LEAST ONE MORE TIME BEFORE I GO OFF TO SLEEP...........Yeah, Honey, I think we really should have a Blue Moon Partae' too..................................................

You guys remember the show "Golden Girls".....well, you know where I am going with this...ahahahahaha......well, I am off to get "black and BLUE" at my exercise class.

[honey1616]

lololol  Just got back to house and took a peek way down here and you guys are priceless,,,,,I want to meet on the blue moon!! Wouldn't that be fun!!

Blue Moon, wider than a mile
I'm crossing you in style some day
You dream maker
You heartbreaker
Wherever you're going
I'm going your way

Three drifters off to see the world
There's such a lot of world to see
We're after the same rainbow's end
Waitin' round the bend
My Huckleberry friends
Blue Moon and me

haha  Thanks for being my good friends and making me laugh!!
Winkin' Honey

[Showboat]

Hey, you are one clever chickie-dee!!!!!!  

WARNING::: Blue Moon may cause Blue Mood, (this may cause confusion and may cause some Dejavue and Time Warping)  but may be eliminated by laughing, eating, talking.  Results are better when good friends are added!!!!!   :>)

Blinkin' Showboat

[Showboat]

Too Funny, Honey!!!!! Yes, and if we can figure it out...we can keep "posting" this post too!!!!! hheeeee heeeee...... ..and when we sit here during the next "blue moon" maybe we will have "blue hair" toooooo!!!!!!!!!!!  Now, you got me started...we will have to wear blue too.  Blue fingernails, etc.....only eat blue food on that day/night (blue cotton candy)...(now I am turning blue from laughing) Heck you guys are invited to my place for a Blue Moon PJ party!!!!!!!!  You can bring your Dudes with you, and we will let the guys go do some Guy Thing...and we can eat and talk, eat and talk, eat and talk...the Girl Things.......I love it. I wrote it on my calendar already!!!!!!!! (smiling)

[honey1616]

hahahaha You two!!  Don't even get me started!!  LOL  I just now saw this way down here and am cracking up again!!  I wonder if 2007,,next blue moon,,,if we all will be jabbering about how we have things to do and no energy!!  Please,,,,NOOOOOO!!!  The ladies at Medhelp that never left,,,,hahaha

[Showboat]

You got it.....I would be honored to "re_live my existence" or would that be "re-validate my existence"..hmmmmm, okay, I will REPEAT my existence with both you and Honey....hahahahaha .. .I love the fact that you HAD to look at the post again....ahahahah(oppsss...I am laughing at myself...HELP...I CANNOT GET OUT!!!)
tee hee

[Showboat]

hahahahahahahah....now, that is funny, Chev>>>>>>  :>)

[cuteus]

try posting your question in the recent threads. You probably found this thread thru the web search, it said it was closed to new postings and you probably won't know it did get through, If you read this answer, try re posting the question
GL to you

[slivers]

I've been on this drug for 3 months.  The first month felt very sorry for myself (this results from a misspent youth of 30 years ago - have been a citizen ever since - don't even smoke dope)  My results were good - not many side effects except for the aches and depression after injection.  Now - I'm getting rashes on my legs, hair patching and very extreme ups and downs.  Does it get better?