vx-950

[suzieq2]

Hi everyone, I saw a great hep Dr. yesterday, He just completed clinical trial with peg, riba, & vx-950 12 pts, all cleared. 12 week program. I am first on the list for non responder trial. he said late fall, but they have been running a little behind. So most likely I will start in january after the holidays.YEH! He has several trials going on, but in his words ,you want to wait and go right to big one! I do not want to mess around . This is my last time around. The responce of this medication is having such great results. If I do not clear on this. I will put my disease totally in the Lords hands, and what will be will be. I hope to find all as well as can be.Great hope for nonresponders. Will keep you "all" posted

[suzieq2]

I am in the central texas area,Alamo medical research center in San Antonio, THis DR. cleared all twelve people.I believe 5 0r more log drop 48 hrs, undetectable 2 weeks treatment was vx & peg & riba, 12 week treatment. Done, THis very well may be the magic Bullet we have been waiting for. Check out their web site, They post results. THis center has many different trials going on. I am going for the big gun. After 44 weeks of peg/riba I will try one more time with this drug, After that I clear this disease or turn it totally over to the Lord. I would rather have a shorter life with good guality, than being sick all the time, and continue to fill my body with all these different drugs. I have great hope for the vx-950 combo treatment.My DR. is great.DR. Eric Lawitz. Alamo medical research center. I am #1 on the nonresponder list.I can do 12 more weeks. Glad they are waiting till after the holidays.Hope this helpedI was in the same shape as strator just a little ahead if hom, didn't have to work.

[willows]

I just visited with a Hep Doc in Seattle, he came with great references and seemed knowledgeable, although I'm not sure I was all that impressed.  He did talk about VX950 tho and believes it will be another drug in what will become a "cocktail" (skip the vodka) for those of us who try and fail.  He said he did not want me to start ANY tx again because there was growing concern among infectious disease docs that all the IFN we are taking is breeding IFN resistant hep c viruses inside our blood, so he said hang tough and thought I should be able to give VX a try by the end of next year.....IF it works in these first trials.  

Now, who in their freakin right mind would not want to just take a VX pill twice a day without any sx for about 6 months and then be cured?  But for many years to come, he said VX will be most likely administered in conjunction (junction) with peg and riba.  We are all at the beginning of the arc of refining the tx for Hep C, I always was a rebel, but this time, damn, why could'nt I have been slower?, so the doc said we will all do a lot of waiting.  And yes, it does mean we may go down a stage or two,liver wise, but he convinced me that was a better choice than feeding the viruses more IFN to make them even more resistant to VX.  Just his opinion.  Personally, I'm confused as hell, but that is listed as a side effect of hep C, isn't it?
take care
Willow

[jmjm530]

See Dr. J. or you will be kicking and second guessing yourself forever. Sh*t I just paid $300 to speak to a stink*ing SKIN doctor, can you believe. But this is your LIVER. From what I heard, he is very personable and I'm sure will take the time to answer your questions. As to the insurance, Kalio has a good suggestion. Call the major carriers in your state directly and find out what self-insured options are available to you BEFORE you leave your job. Hep C aside, you don't want to be without ANY lapse medical insurance, especially with all you have going on your plate including the thyroid issue. You may be surprised to find out that your state offers pretty decent and reasonable plans. Sorry things aren't working at work but maybe things will look better soon.

-- Jim

[jmjm530]

BTW it's not unheard of for patients to make payment arrangements with their doctor. I'm sure the office would like to hear about it *before* the visit but I don't think anyone is going to throw you in hep c jail if you discuss that post visit.

-- Jim

[bobbyullc]

jim,

mind sharing what your skin dr said? i am still having some sun sense, psoriasis and rosacrea. bothers the heck out of me and am worried how long it will last. i still have some short term memory problems. scary.

thanks. bobby

on vx950. i am still waiting for 6 mo pcr but me and my hepatologist feel vx 950 will be the magic bullet if no svr. if the virus is deprived of the food it needs to live and cannot replicate it follows it must go away. with no sides if it takes 6 months or a year as a mono tx it is still 100% better than peg/riba and i hope this will be the final result. i hope that is in the stars.
apparantly major drug companies and investors are willing to put hundreds of millions up conforts me.

[Upbeat]

VX-950

      Don't you think those in the know have the updated info from the 12 people and the people from the earlier trial?  J and J had to be given some info we are not pevey to.  You don't just give 500 million for the rights of over seas sales unless your certain.

                                                           Ron