some mornings are worse, no apparent reason,
although I have noticed that both sugar and protein intake affect it.
for some reason both these substance cause more general inflammation, and your liver is compromised enough with tx drugs it doesn't need huge amounts of high caloric values to deal with.
anyway my inflammation is worse if I've eaten these...too much glucose means feeling crummy.
of course, the mental issue is the real meany. I wake up, and my first thought is, oh goody, I get to take these pills and make myself sick again. If I'm lucky I can shove some oatmeal down with the pills, and snore away the next 3 hrs while most of that upset comes and goes...but lets face it..nobody likes waking up to take things that make your insides churn. It gets old. OH well...at least you are most of the way through it!!
I have to tell you during TX I was super miserable with aches and pains that were unimaginably horrid.
And I use those words --- they don't even come close to the actual description of the pain that I went through --- and currently go through.
It IS very common for people with HCV to have extreme pain... For multiple reasons (lowered platelets, low iron, low exercise - Interferon excaberating genetically timed diseases such as diabetes, arthritis, etc..- at least in my humble opinion).
But after a year of serious pain POST TX - I finally broke down and ended up seeing an internist.
My chief complaints were:
Connective Tissue pain, bone aches --- muscles feeling Bruised all the time - sharp shooting pains in hands and feet - up to arms --- and a constant tightness from lower back to upper jaw.
Diagnosed with Neuropathy, Costochondritis and Fibromyalgia.
It took 6 months to get the diagnosis --- but what I also learned from my Internist is that these are COMMON.... repeat COMMON diseases for people with HCV.
So - that leads me to believe that HCV itself plays a role in damaging muscle tissues, connective tissues and more.
And the INF also causes problems... OR --- as a theory to put out there --- and it's my own theory --------- that AS THE HCV that the INF killed LEAVES your system, the HCV withdrawals from your muscles, bones and connective tissues and they start the slow process of healing --- which is very painful --- remember growing pains?
Anyhow I believe that some of us get severe pains --- and they are NOT in our heads.
Please - see an Internist - confirm you are not getting arthritis - and have your doctor keep an eye on you - monitoring your pain...
It is a side effect - and I tell you what --- I would RATHER be addicted to pain medication for the rest of my life - vs feeling the pains that can be caused.
Yanno?
Anyhow --- my doctor put me on ULTRAM 200 one in the morning and ULTRAM 100 one at night.
And they are a synthetic Oxycodone - which can make some folks loopy at first - but they didn't do anything to me but take the pain away.
As long as I keep them going in the proper order - and I don't forget - I live pain free and feel great.
The moment I skip one - I have a rotten day - and I can barely move...
Anyhow - I wanted to tell you - you are so not alone.
Much love - glad you are posting --- go have an extra cup of coffee for me!
Meki
Good luck Bill, I know personally how hard it can be to kick pills but how crucial the meds are when you need them.
Haven't seen you post in a while. Anyway, when I was treating I would wake up take 2 advil and make a cup of hot coffee to make it hit me quicker. I ached so much when I woke up I couldn't raise my left arm to put the coffee cup in the microwave. I would have to lift it with my right arm.
You are on a lot of medications but if you SVR it will all be worth it.
Good luck to you, your'e in the home stretch.
Bobby
Hey there Charm!
Good to hear from you as well. Yeah I'm with you on the coffee to get me going!
billstrong1969
I meant to say that my TX will end in 2009! OOPS!
billstrong1969
YES. I cant get up at all. Must have coffee in bed and lie there for at least 1/2 hour. I feel the sickest when I wake up. I dont know why either.
Im in week 43...Its the toughest part of my day-Horrible.
Good to see you posting again.
Take good care
Charm