Aa
what to expect
First let me say hello to the group. Just found this site yesterday. I don't know all the terms you guys use. I have hep c did liver bioposy in stage two and type two genome. I started treatment on monday Ribavairin and pegasa interferon. Read alot about side effects which is what I want to know about at the moment. What to expect when. I know it is different for everyone. But if I could get some straight anwsers here. Like week one I felt this week two that and so on. Right now I don't need any cheerleading just the straight dope (so to speak). I am in this for the long haul and just would like to know what to expect and when.
thanks for any help you can be
thanks for any help you can be
and these guys are married. So after 20-30 years of marriage, they understand their role in life. They are obedient companions, watchful for their mistresses slightest wish... and they still scratch at the door at bedtime.....
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Me thinks fishy doc spent to much time under water
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Me thinks fishy doc spent to much time under water
Man, is that the best you could come up with... How are you feeling? You didn't ponder long enough...Hope your well, and remember my rule: never take me seriously..
Oh, just for another laugh, you want to know my husbands motto in life:
"The moment you assume the people around you have their head out of the a$$, your F***ing up."
Oh, just for another laugh, you want to know my husbands motto in life:
"The moment you assume the people around you have their head out of the a$$, your F***ing up."
I always heard if momma ain't happy . . .and I always found it to be true!
Hey, Dr. Who starts on the SciFi channel on Friday -- you're not a fan are you??
I like your direct approach -- I'll give you another perspective. I am a 1a with a grade 1/stage 1 bx, and will do the big #36 tomorrow. I started out great. Did my shot on Friday night so I could recover on Saturday and be ready for work on Monday. Instead of a bad Saturday, I had incredible energy. I loved it -- and it was all mine -- I didn't have to use it for the job. After about 4 weeks, I stopped taking the tylenol that the doc told me to take before each shot - I never had the flu-effect. I was a bit nauseus and appetite was off - lost about 10# during the first 10 weeks, but haven't lost but a few pounds after that. That incredible energy leveled out - I don't feel that anymore (darn).
I did start feeling the drop in the hgb pretty quick (when your hgb drops over 2 points from where it starts, it will really have an impact on QUL (quality of life). Started taking Neupogen for drop in ANC at 15 weeks and Procrit for hgb at 17 weeks. -- Those 2 are the lifesavers - most everyone here will tell you that.
Hair started falling out at 12 weeks - suppose I have lost 40% - and off and on get riba rashes - a nuisance but not bad for me. Now at 36 weeks I am plumb worn out. Tired all the time, not from anemia but from the length of the treatment. I work about 50 hours a week right now and it is really intense. I have given up most all other activites until this tx is over.
Welcome to the forum. This place is a life saver. My advice -- get copies of everything. Make sure you get copies of all the bloodword done. We have found we need to be in charge of this treatment. Ask your doc for a referal to a hemotologist (blood specialist). They are better at monitoring the blood drops. And ask anything. We are pretty lose here.
frijole
I like your direct approach -- I'll give you another perspective. I am a 1a with a grade 1/stage 1 bx, and will do the big #36 tomorrow. I started out great. Did my shot on Friday night so I could recover on Saturday and be ready for work on Monday. Instead of a bad Saturday, I had incredible energy. I loved it -- and it was all mine -- I didn't have to use it for the job. After about 4 weeks, I stopped taking the tylenol that the doc told me to take before each shot - I never had the flu-effect. I was a bit nauseus and appetite was off - lost about 10# during the first 10 weeks, but haven't lost but a few pounds after that. That incredible energy leveled out - I don't feel that anymore (darn).
I did start feeling the drop in the hgb pretty quick (when your hgb drops over 2 points from where it starts, it will really have an impact on QUL (quality of life). Started taking Neupogen for drop in ANC at 15 weeks and Procrit for hgb at 17 weeks. -- Those 2 are the lifesavers - most everyone here will tell you that.
Hair started falling out at 12 weeks - suppose I have lost 40% - and off and on get riba rashes - a nuisance but not bad for me. Now at 36 weeks I am plumb worn out. Tired all the time, not from anemia but from the length of the treatment. I work about 50 hours a week right now and it is really intense. I have given up most all other activites until this tx is over.
Welcome to the forum. This place is a life saver. My advice -- get copies of everything. Make sure you get copies of all the bloodword done. We have found we need to be in charge of this treatment. Ask your doc for a referal to a hemotologist (blood specialist). They are better at monitoring the blood drops. And ask anything. We are pretty lose here.
frijole
Welcome! Hey, I did the weekly Pegasys and daily 1200 ribavirin.
I'm Genotype 2a, level 1 fibrosis. That treatment was a "cakewalk"! I had no problems cept a little pain in the back of my neck(like the flu) that would come and go. I did kinda weird out though. Nothing major. I would do things like spend three days telling my wife how important it was to keep mustard in the fridge. Again, a "cakewalk". Bad thing was that the virus didn't clear for me. Viral load dropped then went back up.
you need to drink water!
After a few months off, I started on Infergen/1200 riba. Uh, that kinda kicked my butt. Kinda like flu symptoms. Weak and not hungary. I lost some weight and still would spend three or four days telling my wife how important it was to wear a blue shirt on mondays! I was tired but still worked and tried to keep up with the family. Never vomited or lost my hair or any thing like that. Sx got better and came and went. Drink lots of water.
Oh, I eat lots of peanut butter sandwiches, oatmeal, Yoplait smoothies(hi protein), bananas, etc. Did I mention,Drink water.
This is my straight dope. I hold no punches. BUT, we are all different.
Go for it and try it for a while. You can get off tx but each time you consider, think about the alternative.
Oh yeah, I cleared October 7, 2005 and I'm about to take one of my last three injections. We'll see how I do once off meds. I can handle it either way cause I tried my best.
Good Luck,
Wes
I'm Genotype 2a, level 1 fibrosis. That treatment was a "cakewalk"! I had no problems cept a little pain in the back of my neck(like the flu) that would come and go. I did kinda weird out though. Nothing major. I would do things like spend three days telling my wife how important it was to keep mustard in the fridge. Again, a "cakewalk". Bad thing was that the virus didn't clear for me. Viral load dropped then went back up.
you need to drink water!
After a few months off, I started on Infergen/1200 riba. Uh, that kinda kicked my butt. Kinda like flu symptoms. Weak and not hungary. I lost some weight and still would spend three or four days telling my wife how important it was to wear a blue shirt on mondays! I was tired but still worked and tried to keep up with the family. Never vomited or lost my hair or any thing like that. Sx got better and came and went. Drink lots of water.
Oh, I eat lots of peanut butter sandwiches, oatmeal, Yoplait smoothies(hi protein), bananas, etc. Did I mention,Drink water.
This is my straight dope. I hold no punches. BUT, we are all different.
Go for it and try it for a while. You can get off tx but each time you consider, think about the alternative.
Oh yeah, I cleared October 7, 2005 and I'm about to take one of my last three injections. We'll see how I do once off meds. I can handle it either way cause I tried my best.
Good Luck,
Wes
I understand wanting specifics. It is hard to imagine how this whole treatment will play out. Here is an overview of my personal experience..
Week 1- about 6 hours after shot had MAJOR bone aching chills that lasted several hours. Felt VERY exhausted the next day. Also determined during this week that if I did not take riba on a full stomach, I felt terrible. Had to learn the hard way. Continued to feel very "out of it" and achey for a few days after tx.
Week 2- chills came about 8 hours after shot. They were not nearly as bad as week 1. They almost seemed more intense but did not last as long. I dozed off and on during that time, which is much better than the week before. Body seemed to be adjusting a little to the meds. Riba still needs to be on a full stomach. Feel very run down for pretty much the entire week. Usually perk up a bit on wednesday and thursday and do injection on Thursday nights.
Every week thereafter my sides have gotten a little bit less. I pretty much do the shot and go to bed now and sleep through the night. I still feel EXHAUSTED and run down for about 6 days after the shot, but it does get a little better each day. Around week 10 I got some major riba rash all over my legs. It is still there today, very itchy and painful. I have stomach cramps more than usual and feel nauseous more than a normal person would. I find that I need to sleep a lot. I have a two year old, and thank goodness she still naps, I nap with her daily. I work 2 nights per week (I am very fortunate on this front) but it completely wipes me out.
I guess at this point in the tx, my exhaustion is the worst sx along with the riba rash.
Is that at all helpful? Like the others have said, your experience may not be ANYTHING like this. But, I know it is helpful to hear what MIGHT possibly happen. Good luck! Stick around here :) It's a good group!
Week 1- about 6 hours after shot had MAJOR bone aching chills that lasted several hours. Felt VERY exhausted the next day. Also determined during this week that if I did not take riba on a full stomach, I felt terrible. Had to learn the hard way. Continued to feel very "out of it" and achey for a few days after tx.
Week 2- chills came about 8 hours after shot. They were not nearly as bad as week 1. They almost seemed more intense but did not last as long. I dozed off and on during that time, which is much better than the week before. Body seemed to be adjusting a little to the meds. Riba still needs to be on a full stomach. Feel very run down for pretty much the entire week. Usually perk up a bit on wednesday and thursday and do injection on Thursday nights.
Every week thereafter my sides have gotten a little bit less. I pretty much do the shot and go to bed now and sleep through the night. I still feel EXHAUSTED and run down for about 6 days after the shot, but it does get a little better each day. Around week 10 I got some major riba rash all over my legs. It is still there today, very itchy and painful. I have stomach cramps more than usual and feel nauseous more than a normal person would. I find that I need to sleep a lot. I have a two year old, and thank goodness she still naps, I nap with her daily. I work 2 nights per week (I am very fortunate on this front) but it completely wipes me out.
I guess at this point in the tx, my exhaustion is the worst sx along with the riba rash.
Is that at all helpful? Like the others have said, your experience may not be ANYTHING like this. But, I know it is helpful to hear what MIGHT possibly happen. Good luck! Stick around here :) It's a good group!
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