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Party Ride… Roll Call!
Lets all help put this here together in the coming days,
The Party Ride… Roll Call!, why might you ask? Well we’ve been here on the Hepc Party Ride for some time over the past months and as with any party ride many people jump in and others jump out (kind of like the hokey pokey, remember that one?) to make way for the new people coming in on the line to find info, share stories, support and help pull all of us together and keep us moving forward in the journey, so it might be fun for everyone to share in this party ride once again and let everyone know where we started and where we are at in treatment or have past treatment and are SVR, waiting for SVR or have relapsed if so inclined.
Might see some TX similarities here
http://www.youtube.com/watch?v=QmMQfTJ3gYk&feature=related
Genotype 1b
Diagnosed 2004
Started tx: 03-12-07 / 48wks SOC
Ended tx: 03-15-08 / tapered off meds 4 additional weeks
TX”ed 52 weeks
Baseline vl 4.7M ml
UND week at 8, 12, through EOT
Carried 33 yrs
Liver: Stage 2 Grade 2
First: 01-31-07 AST 52 / ALT 96
Last: 09-13-08 AST 21 / ALT 20
Six months post – SVR
Worst sx weeks 1 through 12
So, come’ on join the ride and add to it and lets geterdone!
jasper
Treated 8 times in total. Diagnosed in 1987 with non A non B hepatitis. HCV discovered in 1989 and I tested positive. Probably infected in 1961.
Stage 3/4 transitional.
Participated in every trial from 1989 until 2008 when I finally reached SVR with Telaprevir. Feels good to say goodbye to HCV after twenty years of treating almost every other year. Did 70 pushups on my 68th birthday and plan on increasing that until I reach 100 on my 100th birthday.
Stage 3/4 transitional.
Participated in every trial from 1989 until 2008 when I finally reached SVR with Telaprevir. Feels good to say goodbye to HCV after twenty years of treating almost every other year. Did 70 pushups on my 68th birthday and plan on increasing that until I reach 100 on my 100th birthday.
dx May 2008.
G-1...never given a letter.
Probably got it in the 80's...too much partying, obviously...
Initial vl 13,500,000
bx results: 2-3
I don't have the copy of my 1st blood work, for AST & ALT levels, but my NP said they were only slightly out of range.
I was anxious to start tx right away, but after the ultrasound & CT, they'd seen "something" @ my pancreas. It took a few more weeks to get the EUS scheduled. That came back clear.
I waited a couple more weeks more to meet with a new dr, since the GE I'd gone to was, & still is, an idiot. Husband still goes to him. He is G3 & already UND... I connected with a liver clinic.
I just got the phone call last Thursday that says all my paperwork had been submitted to the insurance company & we are good to go. I'm expecting the call from the pharmacy any day.
Slated for PegIntron Pen - 2b, for the weight regulation...I'm @ about 115 now...When all this started, I weighed 124..I just kinda' lost my appetite..: (
And believe me, after I get this thing started, I'll be back here for LOTS of support & sympathy...I expect ALL of you to live up to my expectations.
Peg
G-1...never given a letter.
Probably got it in the 80's...too much partying, obviously...
Initial vl 13,500,000
bx results: 2-3
I don't have the copy of my 1st blood work, for AST & ALT levels, but my NP said they were only slightly out of range.
I was anxious to start tx right away, but after the ultrasound & CT, they'd seen "something" @ my pancreas. It took a few more weeks to get the EUS scheduled. That came back clear.
I waited a couple more weeks more to meet with a new dr, since the GE I'd gone to was, & still is, an idiot. Husband still goes to him. He is G3 & already UND... I connected with a liver clinic.
I just got the phone call last Thursday that says all my paperwork had been submitted to the insurance company & we are good to go. I'm expecting the call from the pharmacy any day.
Slated for PegIntron Pen - 2b, for the weight regulation...I'm @ about 115 now...When all this started, I weighed 124..I just kinda' lost my appetite..: (
And believe me, after I get this thing started, I'll be back here for LOTS of support & sympathy...I expect ALL of you to live up to my expectations.
Peg
Geno 1a, relapser x2,
third time treating
Diagnosed !999
Starting baseline
11/02/07
Hep C Virus RNA QU
HCV RNA Quant PCR
Abnormality Level H 203000 <5 IU/ml
HCV RNA PCR copi
Abnormality Level H 406000 <10 copies /m
12/13/07
Protien total serum 2.5
Albumin Serum 3.9
Globum 2.5
A/G Ratio 1.6
Bilirubin 0.8
Alkaline Phosphatease, S 69
AST 27
Alt 23
HCV Quantasure Plus non graph 610,840 IU/ml
HCV Log 10 5.786 Log 10 IU/ml
02-26-08
HCV Quantasure Plus
HCV Quantatitation 310 IU/mil
HCV log10. 2.491 log 10
Please note: This test measures HCV RNA in international Units
Using realtime Polymerase chain Reactions, technology
It quantitates from 10 to 10,000
i went Und at week 12 I restarted in jan, as you can see my VL went up from Nov to Dec,
Adjust infergen to daily injections, 900 ml daily, 1000 riba, just went tdown to 800. Procrit neupogen
Worst sides, bouncing HGBs and everything that goes with it. headaches, body aches, just plain old sick.
But still funny!
Deb
third time treating
Diagnosed !999
Starting baseline
11/02/07
Hep C Virus RNA QU
HCV RNA Quant PCR
Abnormality Level H 203000 <5 IU/ml
HCV RNA PCR copi
Abnormality Level H 406000 <10 copies /m
12/13/07
Protien total serum 2.5
Albumin Serum 3.9
Globum 2.5
A/G Ratio 1.6
Bilirubin 0.8
Alkaline Phosphatease, S 69
AST 27
Alt 23
HCV Quantasure Plus non graph 610,840 IU/ml
HCV Log 10 5.786 Log 10 IU/ml
02-26-08
HCV Quantasure Plus
HCV Quantatitation 310 IU/mil
HCV log10. 2.491 log 10
Please note: This test measures HCV RNA in international Units
Using realtime Polymerase chain Reactions, technology
It quantitates from 10 to 10,000
i went Und at week 12 I restarted in jan, as you can see my VL went up from Nov to Dec,
Adjust infergen to daily injections, 900 ml daily, 1000 riba, just went tdown to 800. Procrit neupogen
Worst sides, bouncing HGBs and everything that goes with it. headaches, body aches, just plain old sick.
But still funny!
Deb
Geno 3a. 2x relapser, stage 4 compensated. Biopsy in '05 Stage 2/3 Downgraded to 3/4 with blood markers, etc. VL 850,000. 12 week treat with pegasis and 800 Riba. Developed serious infection and anemia at 11 wks and taken off 1 week early. UND at 12 wks. 6 mos post VL 250,000.
Retreated Fall '06 Pegintron and 1000 Riba. 24 weeks 100% compliant. Anemia treated with procrit. UND at 12 wks and EOT. 6 mos post VL 4 million.
3rd treatment start 5/08. 1600 riba. DD peg first 4 wks ; UND at week 5. Currently at 22 weeks.
Retreated Fall '06 Pegintron and 1000 Riba. 24 weeks 100% compliant. Anemia treated with procrit. UND at 12 wks and EOT. 6 mos post VL 4 million.
3rd treatment start 5/08. 1600 riba. DD peg first 4 wks ; UND at week 5. Currently at 22 weeks.
geterdone, I've been a lurker, but here goes...
Genotype 1b
Diagnosed August 2006
Carried 30+ yrs ???
Liver: no biopsy, clear CAT scan
Pre tx: AST & ALT in 30 - 40 ranges
Baseline vl 2.37M ml
Started tx: February 2007
Tx - 180 mg Peg Interferon A; Riba 6 200 mg pills daily
Mid treatment reduced to 150 mg, 5 pills
Ended tx: January 2008
UND week at 12 and EOT
3month post -- rebound, no tests since, will retest in December
Worst sx weeks around 24 - 30 severe depression
Side effects -- worst was Riba cough -- horrible dry hack everytime I spoke, ate, breathed deeply, etc. Fatigue, nausea, brain fog, weight loss, hair loss, and on and on. Couldn't work, on disability (still).
Post tx -- hair and weight are back, cough gone, still have fatigue and brain fog, but I had them before tx
Probably won't re-treat unless a miracle drug comes along -- it took a year of my life.
Genotype 1b
Diagnosed August 2006
Carried 30+ yrs ???
Liver: no biopsy, clear CAT scan
Pre tx: AST & ALT in 30 - 40 ranges
Baseline vl 2.37M ml
Started tx: February 2007
Tx - 180 mg Peg Interferon A; Riba 6 200 mg pills daily
Mid treatment reduced to 150 mg, 5 pills
Ended tx: January 2008
UND week at 12 and EOT
3month post -- rebound, no tests since, will retest in December
Worst sx weeks around 24 - 30 severe depression
Side effects -- worst was Riba cough -- horrible dry hack everytime I spoke, ate, breathed deeply, etc. Fatigue, nausea, brain fog, weight loss, hair loss, and on and on. Couldn't work, on disability (still).
Post tx -- hair and weight are back, cough gone, still have fatigue and brain fog, but I had them before tx
Probably won't re-treat unless a miracle drug comes along -- it took a year of my life.
Geno 2b
Dx'd May 07, 49 years old. Estimated infection 30 yrs. before.
Bx July 07- stage-borderline 2/3 on the 1-6 scale (moderate damage)
Tx started Sept. 07, 180 mg Peg, 800 mg Riba
Reduced at week 5, 135 mg Peg and 600 Riba.
Reduced at week 16, 90 mg Peg, remained at 600 Riba
Ended Tx Feb. 08, did 23 weeks.
SVR at 6mths post
Worst sides....Debilitating Fatigue-Hgb, total -bad-body pain, insomnia, bedridden thru 70 % of tx.
Got lucky on hair loss, nausea.
Stopped all work by week 5 tx. (physical, still did some desk work at home)
Post tx...took until @ 7mths post to start feeling good.
Best medicine...Med Help and friends! Read here a long time before joining, posting.
Don't do that, come right in :)
Good luck to all! LL
Dx'd May 07, 49 years old. Estimated infection 30 yrs. before.
Bx July 07- stage-borderline 2/3 on the 1-6 scale (moderate damage)
Tx started Sept. 07, 180 mg Peg, 800 mg Riba
Reduced at week 5, 135 mg Peg and 600 Riba.
Reduced at week 16, 90 mg Peg, remained at 600 Riba
Ended Tx Feb. 08, did 23 weeks.
SVR at 6mths post
Worst sides....Debilitating Fatigue-Hgb, total -bad-body pain, insomnia, bedridden thru 70 % of tx.
Got lucky on hair loss, nausea.
Stopped all work by week 5 tx. (physical, still did some desk work at home)
Post tx...took until @ 7mths post to start feeling good.
Best medicine...Med Help and friends! Read here a long time before joining, posting.
Don't do that, come right in :)
Good luck to all! LL
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