Aa
still have the virus
Hi all,
I have this question. I have had hep c for 30 + yrs. Stage 3 and geno1. I was on tx for about 1 1/2 yeears. Reach SVR, however, it came back full force. I went on the tx again, but we used some drug that I had to have a shot nightly. It made me so sick that I had to stop after 12 weeks. So the question the VL was 16 million 1 yr ago, the liver did regenerate from stage 3 to stage 1 that was 2 yrs ago. The virus will continue to damage liver correct, I get checked every 6 months, but for the last few months my thyroid went form a 3 to a 12 have had blood drawn, things check out OK, with a an elavated liver enemze (can't spell either) but I fell like my skin is pickley or itchy all inside and you can't get to it because it is inside. I am sure things are fine but I fwoulld like to know if any of you have gone through and if so what did you do? thanks for listening. It always helps to get others perspectives. thanks again Sheila
I have this question. I have had hep c for 30 + yrs. Stage 3 and geno1. I was on tx for about 1 1/2 yeears. Reach SVR, however, it came back full force. I went on the tx again, but we used some drug that I had to have a shot nightly. It made me so sick that I had to stop after 12 weeks. So the question the VL was 16 million 1 yr ago, the liver did regenerate from stage 3 to stage 1 that was 2 yrs ago. The virus will continue to damage liver correct, I get checked every 6 months, but for the last few months my thyroid went form a 3 to a 12 have had blood drawn, things check out OK, with a an elavated liver enemze (can't spell either) but I fell like my skin is pickley or itchy all inside and you can't get to it because it is inside. I am sure things are fine but I fwoulld like to know if any of you have gone through and if so what did you do? thanks for listening. It always helps to get others perspectives. thanks again Sheila
Not sure if you are now treating, or if you previously cleared the virus? I know that hepatitis c patients will often have inconsistent thyroid test that is the result of the disease and not necessarily indicative of thyroid disease.
There have been some data that indicate treatment can reverse fibrosism and thus stage, but I think it is still not definite yet.
Itching is a very common side effect for Ribavirin. I have been scratching for over a year now! Itching can also be a symptom of liver disease, so definitely get checked with the doctor.
Good luck to you
There have been some data that indicate treatment can reverse fibrosism and thus stage, but I think it is still not definite yet.
Itching is a very common side effect for Ribavirin. I have been scratching for over a year now! Itching can also be a symptom of liver disease, so definitely get checked with the doctor.
Good luck to you
Sounds like you have been thru it. When you say you reached SVR, do you realy mean you ere undetectible at the EOT (end of treatment) and relapsed within the 6 month time? I think the second drug you were on was Infergen, and it is a killer from what others have said.(I never tried it)
You are right that the liver can regenerate - it is the only organ that can - butI am amazed that your liver would go from stage 3 to 1 with treatment. I treated 56 weeks and my liver -- per biopsy -- is almost exactly the same-- stage 1, grade 1-1/2. The virus will continue to damage the liver as long as you have not cleared it. The damage progression is not linear - meaning that it doesn't go down hill at a predictble steady pace, but can take a nose diive at any time, especially as you age and the body develops other problems.
The feeling you are talking about I know quite well from the Ribavirin and maybe 2 months after taking it, but am not familiar with it now (Not treating now). It was a creepy crawly under-the-skin itch that scratching really didn't help. It was as if my blood vessels were itching. Since you are not treating now, I would get that checked out.
Good luck to you -- there may be some new treatment drugs for us by 2009 or 2010.
frijole
You are right that the liver can regenerate - it is the only organ that can - butI am amazed that your liver would go from stage 3 to 1 with treatment. I treated 56 weeks and my liver -- per biopsy -- is almost exactly the same-- stage 1, grade 1-1/2. The virus will continue to damage the liver as long as you have not cleared it. The damage progression is not linear - meaning that it doesn't go down hill at a predictble steady pace, but can take a nose diive at any time, especially as you age and the body develops other problems.
The feeling you are talking about I know quite well from the Ribavirin and maybe 2 months after taking it, but am not familiar with it now (Not treating now). It was a creepy crawly under-the-skin itch that scratching really didn't help. It was as if my blood vessels were itching. Since you are not treating now, I would get that checked out.
Good luck to you -- there may be some new treatment drugs for us by 2009 or 2010.
frijole
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