failrure to address or admit damage

[bettyrnurse]

do you suppose anyone will ever own up to the devastation of treatment for hep c.  i am a nurse was treated with peg intron in 02.  got toxic was able to work briefly after i learned to talk again then in 03 04 got sicker and sicker - continue to have progressive frontal lobe damage autoimmune nightmare has destroyed my family cant work short term memory shot - yet ask any hepatologist and it didn't happen. now there are  black box issues coming out of the wordwork - when did doctors, nurses or anyone altruistic leave medicine.  i cannot even  use a stove because if forget it.  answer from all but one hepatologistg was never heard of it.  they really should read and study the meds they are going to use even if they ignore it and continue to fill their pockets./  i am not the only one this happened to but we will be denied and ignored because basically hep c is a bad person disease and who cares.  wish i had en ergyh to get active but i don't and didnt seem to matter anyway  i have a wonderful doc now who i used to work for so she knows first hand what has happened to me so i get treated well.  but i cannot tell you how many weird things i have had or what feeling good is.  least i dont zombie sleep for days at the time anymore and sometimes i am not nauseated and in total fog - but now am having so many falls and potentially dan gerous things.  i can;'t remember where i put things if anyon e inturrupts me dont really have any concept of time. or anything.  they all know what they did and for alll you others affected hang in there and this nurse believes - remember to laugh even if no one else understands the joke. i miss my work, my brother doesnt let me see his kids, my son treats me like i dedliberately did this to affect his life,  afterall disability and nursing salary are way different - but cant keep up with money anyway have been know not to check mail for a month or two.  probably will never see this post because none of this ever happened or so i have been told.  God bless all those affected and han g in there.

[Diamond_Lil]

Depression can cause many of the symptoms you have described such as insomnia, suicidal, paranoid, easily frustrated, needy with childlike tendencies, loss of concentration, confusion, daily anxiety attacks.  Those problems can usually be manged with antidepressants, counselling or perhaps a type of psychotropic medication.

People with Fibromyalgia can also be prescribed medications like Cymbalta which help with leg pain, insomnia, headaches and other symptoms associated with Fibromyalgia.

There are physicians out there who can treat your physical and psychological problems if you're willing to seek them out and go through the process of trying to eliminate or lessen the problems that are diminishing your quality of life.  It may be a lengthy trial and error process but if you're willing to spend the time and some money, you may very well find relief.  You had the determination to finish treatment and that took a lot of resolve.  You are now cured of hepatitis c so use that same determination to find the best possible solution in getting yourself back on track.

Good luck and I hope things will eventually turn around for you.

Diamond_Lil

[guyhumphreys]

i am 2 yrs removed from tx and i am still hep c free. i do have lots of post tx issues simular to what debnevda has just not as worse. i have been reading this post as i have others looking for answers to my problems. i geuss looking for others like me, people who were above average before going through the tx but now can barely hang on day to day. before tx i was healthy no problems what so ever mine was discovered in a reagular physical by a new dc i started seeing. since the tx i have actually gone crazy for awhile did come back somewhat have a hard time seeing now, cant concentrate, have short and long term memory loss, personality changes every couple of months, anger issues easily frustrated have been dia. with fibromyalga, had heart problems, severe leg cramps, insomnia, depression, migrane headaches, nausia, cordination problems fatigue, i am now suicidal, parinoid, needy with childlike tendicies, chronic pain, anxiety attacks daily, i got lost on a regular basis, forget what i,m doing, have comprehension problems, on the verge of losing my job of 23 yrs., have almost totally ruined my relationship with my fiancee, 3 months after moving in together i found out i had hep c. before tx i was perfectly healthy none of these issues, i had an IQ in the high 130s, 6'-2'' tall 210 strong, confident, easy going, physically fit 45 yr old man. now 3 yrs later here i am a shell of myself and wondering if it was all worth it now. to be honest i dont think it was. i was never warned of any of these possible problems even asked about long term issues and was told there was none just that it was an 80/20 chance of being cured. when i went back 6 months after tx was told there was no way that it had done this to me and that the drugs were gone from my system a week after i stoped and did do a 46 wk program. now as to people posting on these things and never coming back and reposting, there are 2 possible reasons for that 1 they forget where they were, the other is that just like me are looking for answers and you get frustrated by being told its not the drugs that did this to you when you know it is the only answer to your problems. so if i dont find my way back here or i forget about coming here you can contact me at guy_humphreys2001***@**** with any information you might have on anything that might help improvre my situation. any and all help will be appreciated

[Frank J. Perrotta]

Thanks so much deb.

Sounds like the Mayo has really come thru for you (and maybe us).

Wonder if your docs would talk to my docs?

but what a breakthru to hear this from such a well established "real" group, lol.

thanks for posting and best of luck with your symptomatic treatments. I am pretty much in the same boat.

[debnevada]

I have had a ton of post tx problems, joint issues, gastric issues, kidney issues. After doing every test known to man, mayo has diagnosed me with "post interferon syndrome".  There are abnormalities on blood work, EGD's, etc., and also a renal artery problem, but they put it into the "bucket" of PIS (haha...how appropriate).  One of the docs there stated..."It is well documented, but hard to "prove"."

What they do is treat symptomatically. I take an AD, omeprazole (acid reducer to deal with the ulcerations), pain med, urso, vitamin D, calcium, vitamin e, some other stuff.

Mayo also has an opinion about occult Hep C vs. circulating, reproducing virions. In other words, is it "really" gone?  The good news is that mine doesn't reproduce.  I have had LFTs in the single digits at times.

I am still on the fence about whether i should have treated or not.  Because of my acute status, I felt it was the best chance. however.....

[Frank J. Perrotta]

Oh, now I can read it properly... it is funny how I read that over and over again making sure I was NOT reading it wrong but still...

I did go back and check on some of those who are just posting once and it is really weird. But this C and also the treatment can do funny things to your brain.

Even me, being the most optimistic person ever, had suicidal tendencies on my second month. That was really weird.

Glad we got that straightened out.

[nygirl7]

That was a really good article (but I still like House anyway ;)
Thanks!