desperate as nobody is helping me

Grace, I am sorry this will be a long post but I desperately need your help. my life has stopped because of this so please please help me. My world is falling apart and nobody is listening or helping.
I had unprotected vaginal and oral sex a couple of times with a man I know and trust. Previous to this we had both been in very long term relationships and had previously been tested for all stds with past partners so were confident we were clean. However two or three weeks after our first contact I developed an array of horrific symptoms. The slight pelvic pain I'd experienced for the previous couple of weeks became unbearable along with severe vaginal itching, swelling,redness,burning and discharge. It felt like my insides were very swollen and heavy with pressure too. I had pain urinating for a couple of days too. I also had growths on the entrance to the vagina which started small and lumpy but grew into long floppy bits of skin. I also had the chills and a terrible fever with sweats. I felt very ill. I developed a small area on the vagina that looked raw along with papercuts in some folds. As well as this I had had chapped lips that wouldn't heal that sort of looked like red raw and a bit swollen as if I'd bitten my lip but not massive fluid bubbles which would then become dry skin. Not classic cold sore but never like anything I've had before. Also a sore throat with difficulty swallowing.
This is the full list of symptoms which developed. I went to my doctor on day two when I knew something was wrong. She agreed I was red and swollen with lots of discharge and in pain so tested for everything. I asked about the growths and was told it was normal skin so nothing to worry about. I asked about herpes as I'd read on the web that all my symptoms pointed to that. She said it wasn't herpes because I didn't have sore blisters. I suffered for a week with the severe and intense itching burning and swelling and chills while watching these two skin growths get bigger. The tests all came back negative. No chlamydia or thrush etc. I did have mild bacterial vaginosis and was treated with antibiotics. I still wasn't happy with this as I knew something was wrong with me and these severe symptoms couldn't be just bv (could they?). Long story short I have been to four doctors now including sexual health clinic and all have told me the same thing. I can't have herpes as I don't have sore blisters. And the growths are not warts just normal tissue. The man has been twice to get looked at and has been told he does not have herpes as he's displayed no signs whatsoever. He did have a slight rash on the top of his leg which they told him was just a fungal sweat rash and cleared up the next day with cream they gave him. His past partner never had anything like this and he even called his previous partner before her from years ago who also has never had symptoms.
This was all nearly two months ago. Since then I have had more lip trouble and my throat gets sore and red and swells with difficulty swallowing. Also got chills and fever again as well as a feeling of sunburn all over my body especially in the lower back and hips. Vaginally I have had the odd itch and small paper cut but nothing out of the ordinary. I am convinced this is oral and genital herpes but doctors just say it isn't and won't test for it as the blood test they do isn't reliable and as I've no blisters they can't swab fluid to test. They think I'm overreacting which is frustrating as I have been so so ill and nobody is helping or even believing what I'm saying eg the growths are new-not just that I haven't noticed them before! So I am just left. What do I do? Just wait and wait for months to see if I get an outbreak or blisters. That's no way to live. I can't function. I need this sorting.
So I have hundreds of questions obviously but mainly, do you think this is herpes and warts. can you please explain reasons for your answer please as nobody is doing that for me! Thank you so much for taking the time to read this. I am truly desperate. I need somebody just to help me. Thank you.

[HardKnocks]

Just want to offer you support and encouragement. You are in a good place to share and get good answers!!  Grace will answer your questions!!

Have you had the igg blood test done for hsv?  And do you know if you had that test before? I would call and find out your previous test results. Hsv is not normally tested for--even if you ask to be tested for everything.  So you assume you have been tested for everything- and you haven't.  When was your last sexual contact?

I have been dealing with this several months and have been "amazed" at some of the bad information I have received from health care providers.

[puzzle2779]

Hi. Never been tested and they all won't test me! I'm in the uk and have been told the only blood test they have isn't reliable as most people will have antibodies for type one. So I can't get it done. Only way I can get tested is if I have fluid filled blisters that they can swab. I suppose I'm holding on to hope that it's not herpes as doctors say it can't be with the lack of painful blisters and the man and his previous partners have had no problems but I know it has to be. There is no other std it could be with these symptoms and I've been negative for all others. I'm petrified how my life has changed from now on. I can't stop crying. Plus my vagina has started to burn and itch with some discharge again. Could this be the start of an outbreak! Even if I go back they'll just tell me it's yeast cause I don't have blisters. And then there are the growths too. I can't stop crying night and day. I just want somebody to help me.

[puzzle2779]

The man involved was also told that it could be that I have always had genital herpes and it has just appeared now due to stress. Is it possible for herpes to be contracted over ten years ago and only show up now? Is there also the possibility that if I contracted cold sores for the first time through innocently kissing people that I could have spread it to my genitals myself through all my constant self examination? I know it's not likely but I need to know if either of these is possible.thank you. I meant to say in my last post that it means a lot to me that someone is actually discussing this with me.

[Mistakeguy789]

As I am sure you notice I am not grace.  She is better looking than I.  Onto your questions.

You don't say how long after your sexual encounter these symptoms developed.  This does sound like a case of inital outbreak.  But being diagnoised with BV could play a role in the bumps and so forth.  

For the UK some of those things are not so clear.  Let's try and clear things up.  First of all you can get a culture of a sore without the "fluid" since the virus lives on the skin not the fluid.  They just swab the area just like a normal culture and send it off for culture and typing.

Blood testing can be done easily at least in the US.  The UK your healthcare system is different.  Blood tests are more accurate if they use a type specific igg blood test.  Though you may have to pay out of pocket for this test.  Not much of a way for us to tell you how to do it.  Most people do test positive to HSV-1 as they have it via cold sores.  But not everyone.  As long as they use an IGG test it is okay.  IGM is the test that cross reacts to things and isn't type specific.

If the "growths" come back my advice is be seen within 24-48hrs of them appearing.  Show them and request that they culture them even without "blisters" or "blister fluid".  You may need to go to a STD type clinic for best results.  

You could autoinncoulate yourself early into a new infection.  But that is often low.  Stress isn't the cause of most outbreaks.  Best thing to do is get to a doctor to show them whats going on.  

[puzzle2779]

Thank you so much for your reply. The pelvic pain started not long after and just felt like period pain but in a wider area. But everything really started about 2-3 weeks after initial contact. I don't have any blister type areas. The growths I have are like extra skin growths either round and small or large and long and floppy. They are still there and growing and more coming but when I've seen doctors they've all said it isn't warts and just normal tissue. They all wouldn't agree to do a biopsy to put my mind at rest as they were all confident it was normal tissue. I'm worried sick about all this. My vaginal area has changed by feel and sight along with what I think is herpes and I've just been rejected by all doctors and sexual heath clinic. I know I'm not well but there doesn't seem to be anything I can do about it. Other than accepting what the doctors say and carry on with life as normal as I've been told these growths are normal and I don't have herpes. But I can't do that cause I just don't believe it.

[Mistakeguy789]

This could be anything.  Have you tried going to a dermatologist?  Their speciality is the skin.  I hate to say it but maybe give them a shot.  I really am at a loss for a suggestion at this point.  The pain has to be bad.  But you know while this could be herpes it could not be herpes too.  

[puzzle2779]

Thank you for taking the time to try and help me. I really appreciate it. I saw a dermatologist at the sexual health clinic who said it was normal tissue and I must have just not noticed it before. This is completely not true. I saw the bumps appear and watched it grow. Every time another one appears or it gets bigger I go to a doctor or clinic who say it isn't warts. I can't believe that as it started after unprotected sex with a new partner. It has to be! Same as the herpes issue. It has to be as nothing else would explain all those symptoms and I'm negative for all other infections. I'm really not coping at all. I am so scared.

[gracefromHHP]

the gum clinics don't do type specific herpes igg blood testing from what I understand. you need to seek out a private doctor and pay out of pocket. they are widely available in the UK, just not in the gum clinics from what prior uk posters have mentioned over the years.

grace

[puzzle2779]

Thank you grace. I think I have a very long and difficult road ahead. I'm not sure I have the strength! I know you can't diagnose on this site and especially with not even seeing me but I assume you are confident that I do in fact have herpes? Is it possible to get herpes from someone who has no symptoms and whose previous two partners have no symptoms? Also is there anything else that produces these symptoms? I'm clinging onto hope that I don't have it.

[gracefromHHP]

whether or not someone has symptoms or not doesn't have anything to do with evaluating your risk. odds are none of them have ever been tested to know their status to know if they are infected or not.

you've been seen multiple times now and no one thinks you have warts or herpes going on. I'd continue to go and be seen monthly as needed for testing for yeast and bacterial infections vaginally until things return to normal. Getting back to normal after vaginitis is sometimes rough.  It can take several treatments to get rid of completely sometimes.  

[puzzle2779]

Please, does anybody have any input to my situation. Today I have vaginal itching, burning, pelvic pain, sunburn feeling on hips and vaginal swelling but again no blisters. Surely this has to be herpes. Also got sunburn feeling around shoulder blades and my throat is starting to swell again with difficulty swallowing. How often does throat herpes cause recurrences? Please any info or experiences will help me try to sort this out. I am going to pay privately to get a blood test done when I find somewhere but in the meantime your help is all I have. Thank you.

[gracefromHHP]

if you have new symptoms then you need to return to be seen again by your provider.  You won't have herpes recurrences both orally and genitally at the same time like this. whatever is going on, you'll need to continue to follow up to get better answers.  I know it's frustrating but really nothing else you can do at this point.

[puzzle2779]

Does anybody have any input to my situation. Sorry to ask but this forum is all I have until I source a private test. Has anyone had a similar experience to mine with regards symptoms? My world is falling apart. I can't believe this is happening. My whole life will change from now on. I can't cope with this.

[puzzle2779]

Grace I am so sorry! Your posts and my previous couple of posts weren't showing up when I was logging in to check until now for some reason so I apologise for repeating my plee and sorry I wasn't aware you had replied and was trying to help. I appreciate it. I now have a very tiny blister that normally I would have thought was a spot but I will go again and get them to look at it. I doubt they will swab it though as it is tiny. I am also going to get the igg blood test done privately. With the knowledge that you don't have to have big blisters with genital herpes and the fact that I have all the other symptoms I am confident I have it so will persue to get an answer. But obviously I will be glad to be proved wrong! Thank you for your patience with me.

[gracefromHHP]

so I was really talking to myself there for awhile? lol

best of luck finding out what is going on :)  stop back and keep us updated!

[puzzle2779]

Thanks. I will return to the clinic and probably go ahead with private blood test so I will let you know. I am convinced of the answer already so unfortunately I am anticipating returning here for advice on coping and preventing transmission to partners. One query that does pop to mind from reading info on this site, and I know this will sound a little weird, but looking at what people say about transmission would it work if a man was willing to contract oral herpes from a genital outbreak of mine in order to build antibodies to prevent a genital outbreak in himself? There seems to be conflicting views that if once infected in one site you can or cannot get reinfected in another site.

[gracefromHHP]

not many folks get hsv2 just orally for us to study just how much it protects you from contracting hsv2 genitally. Not many folks have hsv2 orally to start with and those who do, almost all also have it genitally too.  We assume it gives you protection but how much we still aren't sure of.  

you can get the risk to a male partner down to 1%/year of contracting hsv2 from you.  no reason to try to infect a partner orally when they are so unlikely to be infected with hsv2 in general from you if you take daily suppressive therapy and use condoms as well as avoid sex any time you have anything going on genitally.

[puzzle2779]

Thanks grace. I think my problem will be getting somewhere here to agree daily suppressives if I have no blisters, but I will show them blood test results and see what they say. I'll let you know updates. Thank you once again for your help.

[puzzle2779]

Grace. My update. I went back when having some itching along with papercuts that were very sore. I showed them the tiny tiny white blister along with the few spots on my bum cheek that were red. They said these were just spots. Assured me the papercuts were just yeast infection (swab showed a little yeast but I'm doubtful this is the cause as I've had thrush loads and never had these papercuts or pelvic pain with it, especially if it was only a small amount of yeast detected). I managed to get them to swab the little cuts for herpes so will see what happens. This episode was nowhere near as bad as the first major incident. The doctor doesn't think it's herpes but swabbed to stop me coming back again I think! Says it is not herpes because if you get a bad initial outbreak with fever and chills and so much pelvic pain and vaginal itching and burning then you would certainly have blisters! Would you agree with this? Could you have really bad symptoms and no blisters? I have further bumps developing which they say is not warts. Sigh. Nobody will biopsy so I am just watching lots of bumps and long fleshy growths appearing around the entrance to my vagina that are very distressing to me and I can do nothing about it. Also I am unsure of where to post related questions. Do I post them in this thread to keep my story together or start a separate thread for direct questions. I'll ask them in this post and you can tell me what to do. I want to keep the forum running smoothly as intended! 1) I have been told that fungal yeast infection cream makes herpes outbreak symptoms worse. Is this true? So if the rash the man had was indeed herpes would the cream they gave him make his symptoms worse instead of clearing it up in a couple of days. Or has this no relevance. 2) is it possible to have genital herpes virus lay dormant for a lot of years and then just break out like this ie not infecting anyone for years but now become infectious as it is now active? I had one more question but can't remember it now! Many thanks.

[puzzle2779]

Oh yeah 3) can you get blisters or papercuts in future herpes outbreaks even if you didn't get them in the first initial outbreak when infected. Does anyone reading this suffer from papercuts as outbreak symptoms rather than blisters. Would be interested to hear from you to direct me to your story if you've posted it.

[gracefromHHP]

there is more than just 1 type of yeast you can get infected with. Some of them can cause different issues than others. Thinning of the skin and paper cuts are common with yeast infections genitally.  

yeast infection cream can cause herpes to reoccur but not always. Some folks are just more sensitive in their genital area than others.  

yes you can have herpes for years and not know it until you start getting obvious recurrences.  

the initial herpes ob can appear differently on different people. It only tends to occur with "classic" symptoms such as your provider mentioned if you are hsv1 negative prior to contracting genital herpes. Many adults have hsv1 orally, whether they get obvious cold sores or not by the time they reach their 20's so most folks do not present with the "classic" symptoms of genital herpes when they contract hsv2.

[puzzle2779]

Invaluable grace. Thank you. Why oh why do doctors all say something different then! How frustrating. I'll let you know the outcome of my swabs and blood test if I can get one done. Many thanks.

[gracefromHHP]

treat this and keep going back when you have symptoms to try to get to the bottom of it. As I already said, you've been seen and no one thinks these are herpes or hpv going on. The rates of hsv2 infection in the UK are rather low in general so certainly looking for other causes is worthwhile.

[puzzle2779]

Grace. It has been a week since I started with some discharge, burning, itching, pelvic pain and papercuts. I assume this was an outbreak. As mentioned I got the papercuts swabbed for herpes and was told it will take two weeks for results. Also told there was mild yeast detected so got cream, tablet and pessary for this. By the time I got seen and got the medicine the symptoms had started to ease. However, The day after using the pessary I started again with burning in groin and pelvic pain. I also have a few spots on the top of my inner thigh and bum cheek. Normally of course I would have just thought they are spots but it is unusual for me to get these. My questions are-could the treatment for thrush be bringing on another herpes outbreak? And if I did not get any spots during my initial outbreak can I get them in future recurrences? I was under the impression that whatever symptoms you displayed when first infected would be the same for any future outbreaks but milder. The wait for the test result is killing me! Many thanks.

[gracefromHHP]

if you have new symptoms since you were last seen, go back and be seen again.

[puzzle2779]

Thanks grace. I wish it was that easy. I live miles away from the clinic and it is extremely hard for me to get there. Plus they will not do anything else for me if I did go back. They are not open at all to the possibility that a burning feeling in the groin area is related to herpes. They are quite clear that you HAVE to have sore fluid filled blisters. That's why I am spending so much time and effort on the internet to try and sort this myself by gathering info from knowledgeable people like yourself.

[puzzle2779]

Can anybody tell me if herpes can cause hard bumps or normal looking spots or does it just produce fluid filled blisters? I have a hard bump at the top of each of my inner thighs and a few spots on my bum and knicker line on my lower back that have appeared after a week of burning in the whole area but the discharge and itching went after a couple of days-but the burning has been there a week-and now these spots. I need to do what to look for so I know if to put these down as symptoms or if they are just spots that I should disregard. My doctor will just say it is definitely nothing to do with herpes as it is always a blister-but I'm not so sure. Any info is appreciated.

[puzzle2779]

Bump. Anyone? Any ideas? Thanks.

[puzzle2779]

Quick question and I would truly appreciate a quick answer. Does genital herpes cause blood and white blood cells to appear in urine?

[puzzle2779]

Sorry realized that could be taken wrongly. By quick I meant concise question and answer so not to take up lots of your time. Not speed to reply. I appreciate all help here is voluntary and would never demand a 'quick' response! Thanks.

[puzzle2779]

Any knowledge on blood and wbc in urine with relation to herpes. I can't find good info. Conflicting as always!

[gracefromHHP]

that can be due to herpes but it's more likely to be due to other causes - like infection.

[puzzle2779]

Thanks. I was hoping you'd say herpes wouldn't cause anything like this. But it looks like it could be another piece to the jigsaw. Sigh.

[puzzle2779]

Grace. I know you must be fed up with me, but you are seriously all I have at the minute. Hoping for results next week so hopefully you'll get rid of me soon. But can you tell me, do you get the same symptoms with future outbreaks as you did during initial infection? Or can you get blisters in future outbreaks if you only got papercuts the first time or would this not happen? Thank you.

[victimizedperson1]

I feel your type of desperation too puzzle2779. This kind of feeling is really terrible. :'C

[puzzle2779]

Thank you. I am not mad. I just know my body and want someone to help. That's all. Not too much to ask is it! Anyone know if each outbreak has different symptoms or would you always get papercuts or can you start with papercuts then develop blisters in future outbreaks. Thanks.

[sadone72]

Hi Puzzle2779
Hope it's ok I chimmed in on this.  I was reading all the replies and everything. I was seeing someone who when we were together (and it wasn't from me, I got checked and was ok) he got molluscum contagiosum , it appears as "flappy skin growths" as you descibed.  They can be itchy, sore and red.  When I went to my doctor to be checked for these, he told me he's been seeing a rise in this lately.  I'm in the US, but might be something to look into, was the first thing that came into my mind when you mentioned the extra skin.  You can catch it anywhere except the palms of your hands and feets and can pick it up from objects, towels, clothing, toys, etc.  It can also look like blisters.  Just might be something to look into.
Again, hope it's ok I added my 2 cents :-)

[puzzle2779]

Hi. Of course it's ok. It's more than ok. It's really great that you're trying to help thank you. I have researched this and from what I've seen that are round hard lumps with a dimple so I don't think so. But I'll keep my mind open to it. Thank you. I am currently wondering if the few spots I've had in my groin are herpes related or just spots! That's why I'm asking if you get the same symptoms each time as I only had papercuts the first time and need to know whether to take notice of these or disregard them. I wish this wasn't happening!

[sadone72]

Hi
I have problems too I wish weren't happening myself, lol.
Only other thing I can think of , is have you had a PAP smear lately.  I myself had a papercut, but it never went away.

[puzzle2779]

How accurate is a swab test if the cut is new?

[puzzle2779]

Grace, please I really need your help. I cannot get to a doctor today and then it's the weekend. I am so frightened and feel so sick I can't stop crying.  I think I'm having another outbreak but it's a bit different. Can you tell me if these symptoms are familiar with herpes. Rash on thighs and little on stomach and lower back. Some red spots on bum. Sunburn feeling on bum hips and slightly on vagina, as well as between shoulder blades. Skin is hot to touch. Generally feel hot then shivery with a flushed face. Tiny papercut above clitoris. This is similar to how I felt in the initial outbreak and for a time afterwards but so far there doesn't seem to be much vaginal swelling itching and discharge going on. But of course this may come. Please grace, your input would be so helpful to me right now. I'm not coping at all. Thank you.

[Mistakeguy789]

Be seen by your doctor.  This could be herpes and it may not be.  But it isn't going to be herpes all over your body.  Be seen by a doctor.  If you can't get into your normal doctor go to a clinic.  

[gracefromHHP]

honestly there's really nothing I can help you with at this point. following up each time you have symptoms is the best you can do at this point.

[puzzle2779]

Grace I am sorry. I am looking to you to rescue me out of this hell and I know you can't. Thank you for replying though. Even to see a reply from you is really helping me at the minute and I don't feel so alone. I have nobody to talk to about this and I honestly think I'm going mad now. My papercuts came back after more sunburn feeling in the hips and a couple of spots on my bum. Some milky discharge and mild itch too. Main problem is pelvic pressure. It feels like my whole insides are swollen. The swab of my papercut came back negative for herpes and there was no yeast or bv. Now what. I'm at a dead end. Doctors are fed up with me. They say they've done all the tests and there's nothing wrong. But I feel awful and I'm in lots of pain with these symptoms. Is it the most likely situation now that I do in fact have herpes but the swab test wasn't adequate from what I've read here and only way now is through a blood test? These symptoms can not be anything else, other than herpes.

[gracefromHHP]

obviously something is going on, just not likely to be herpes.

are you seeing a gyn for these issues?  

[puzzle2779]

Thank you so much for replying. I'm going to ask to be referred to a gynaecologist anyway for the growths. However can I please ask why you don't think this is herpes? Because from what I've read about it and the other threads you comment on with similar symptoms all point to it. Initial outbreak after two weeks, fever symptoms, intense itching, burning and swelling with cuts and spots. And now outbreaks  with burning in boxer short area and lots of pelvic pressure and cuts and spots. With this plus all other tests being negative including stds and bacterial and fungal infections, I can only keep coming back to it being herpes. I would be interested to hear your thoughts and reasons why you think it isn't. And any other suggested of what else it could possibly be so I can pursue this with my doctor. I understand fully you can not possibly diagnose me, and I'm not asking you too, but I would be really interested and appreciative of you standpoint on this. Thank you.

[gracefromHHP]

you've been told by multiple providers now who have actually seen your symptoms that this doesn't appear to be herpes related. why continue to doubt it so much?

[puzzle2779]

I was worried you'd say that. If this is the only reason you think I don't have herpes then I'm actually more convinced of it! Rather than you thinking it is not herpes due to my symptoms. The doctor I saw at the time was confident something was wrong due to the state of my vagina but wouldn't test for herpes because they said you have to have blisters-which I know now you don't, so tested for everything else which was negative. All other std tests were negative however the symptoms of herpes have recurred. I have only actually been tested once via a swab on very tiny cut. I have very little faith in the doctor's knowledge of herpes especially when saying you have to have blisters and would definitely know when you have it, but I read here that most people are unaware they have it. Plus at the time of contact the man had an itchy rash at the top of his leg. I got all the initial symptoms and in a big way including the chills fever intense itching and redness etc.. The pain of my symptoms have been extreme. I am burning with papercuts and a huge swollen pressure internally. But I guess my time here is done. Thanks for your time and all your help. I really didn't mean to annoy you or take up so much of your time. I had nobody else to turn to about this and was desperate for someone with expert knowledge to just listen and help. I apologise for taking up your time. I'll have to await blood tests to confirm now and will try somehow to sort this out. Sorry grace.

[gracefromHHP]

out of all the posts I've made to you about your situation, you chose to believe that because I said that no one has seen any signs of herpes that that must mean that you really do have it?  You've had vaginitis going on which is the far more likely culprit and I've instructed you to continue following up for that.  even though tiny cuts in the skin are mentioned as herpes symptoms, typically they are due to other reasons like infection and thinning of the genital skin. the pelvic fullness you mention is not associated with herpes.

don't do yourself the disservice of fixating on herpes as a cause.  lots of gyn and skin issues can be going on and the odds of you having this many symptoms for this long and no one seeing an active herpes lesion on your cervix or elsewhere make it less likely that herpes is the culprit.  

[puzzle2779]

Ok. This will be my last post. Especially after being 'warned' about using the site too much, which I must admit I was very upset (and a little angry) about. I used this site to ask questions and to genuinely learn things, because I was deeply worried and very anxious with nowhere to turn to. Not because I'm a hypochondriac or trying to annoy people. I really don't have that much spare time on my hands. I posted cause I really NEEDED to.

Anyway, it turns out all my panic was justified. I wish to god I wasn't posting this, and I nearly didn't but thought others may benefit as I know I always wanted to know what happened to people. So I had an appointment yesterday to get results of tests I demanded to get done by different specialists-I'd had enough.

So the 'end' to my story is - well, I've been waiting for all results to come back before posting. My partner got a blood test done which was negative but we're concerned about the accuracy of it as it wasn't a well know test. Unfortunately it turns out I do have hsv2 and warts. Confirmed via swab (so at least no need to try and find a good igg blood test now) and biopsy. And to make the situation even better I have both orally aswell. So oral hsv2 and oral warts may be rare but unfortunately I have it. partner in complete denial that he has given me these, so he is now my x partner. What a way to re-enter the dating scene after coming out of a ten year relationship. suddenly that relationship doesn't seem bad anymore compaired to this. Too late now. Appointment soon to discuss starting treatment.

Thanks to all who replied to my posts on here. Sorry if I annoyed anyone. I never intended to. I got lots of useful info so thanks.

So to anyone who has any cause for concern about their body, but keeps getting told you are ok-don't give up if you know you are not right. I KNEW it. I wish this wasn't happening to me but I'm glad I kept going back and demanded to be tested again by different people. You know your body better than any doctor. Look after you and make sure you get answers! Good luck.

[gracefromHHP]

at least you have answers now and can deal with this all and move on.

just to confirm -you also had an oral swab come back hsv2+?  

what herpes medication did they give you?