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tingling

I've had tingling since december 2009, and it wont stop! Whats going on? Isnt this to long for this to be going on?
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101028 tn?1419603004
one more reason why this isn't herpes causing you tingling for almost 3 months if you've been taking acyclovir to suppress the virus.

grace
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Avatar universal
Yes your right everything isnt due to herpes....I've been taking Acyclovir as of Oct.2009, so i guess i've been doing the right thing by taking that every day..
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101028 tn?1419603004
Since this would be a herpes recurrence, the tingling in the legs should've only lasted about a week max if that even.

The only dose of lysine that showed any help at all at reducing recurrences was the 1gm 3x/day dose. It reduced ob's by 2. We don't have any info on if reduces shedding or not.  If you want any bang for your buck, go with the prescription antivirals suppressively.  Acyclovir is the cheapest - even without insurance it's under $20/month most places.  

keep in mind that just because you know you have herpes, doesn't mean that everything that goes on in your body is due to herpes.

grace
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Avatar universal
1250 mg of lysine...but i got what your sayn tho...i just got off the phone with my physician and have a new appointment on mar 12..
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101028 tn?1419603004
1250 mg of what?

antibodies are the body's way of protecting you. When you have a herpes recurrence, your body has protective antibodies to help fight off the recurrence so it stays relatively mild compared to the initial ob and limits how long it is going to be bothersome.  

grace
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Avatar universal
Even if you take more then 1250 mg its not going to work? I thought it helped with the producing of the antibodies. To stop them from multipling when an outbreak is about to start.
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Avatar universal
You remember my post from last week, I havent been to the doctor yet about the tingling, I made an appointment, but they closed do to an state emergency. But its the same tingling I got  when I had my first outbreak in september 2009. The base of the spine and legs..I feel it when i bend over to wash my face, thats when I feel it. and if i bend over to pick up something. But it stopped as of today.
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Avatar universal
I pray you are so right about the tingling and that it is just something else that can be worked out. But I am not so sure, I will let folks know once I see the Nuero. Today is more like shooting pains that itch more than the burning. I have some tingling in my toes. Today has actually been an okay day.
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101028 tn?1419603004
lysine doesn't do much at all for herpes, if anything. we don't recommend its use since most folks already get more than enough lysine naturally in their diets.  

many things can cause tingling. herpes is not going to cause tingling for months and months.  folks typically aren't getting proper work ups so be careful what you read/hear from others.  tons of posts from HHH, Dr Hook and Terri Warren on all of this for more reading.

have you been seeing doctors for this these last 2 months?  what sort of work up have they been doing on you?

grace
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Avatar universal
Thank you...Your right about the phn. I was talkn to someone that was going thru the same tingling situation and they said it last for months. They didnt have pain like me. It just stopped on its on. She didnt take any meds, she just used vitamins. You kno what Joe, I've been taken the supplement L-Lysine for 3 days now and this morning I woke up and didnt have any tingling. But im still going to the doctor
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Avatar universal

Here is a great website that talks about the effects of herpes and nuerothopy

http://www.ninds.nih.gov/disorders/peripheralneuropathy/detail_peripheralneuropathy.htm


Infections and autoimmune disorders can cause peripheral neuropathy. Viruses and bacteria that can attack nerve tissues include herpes varicella-zoster (shingles), Epstein-Barr virus, cytomegalovirus, and herpes simplex-members of the large family of human herpes viruses. These viruses severely damage sensory nerves, causing attacks of sharp, lightning-like pain. Postherpetic neuralgia often occurs after an attack of shingles and can be particularly painful.



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Avatar universal
Well Grace I have an appointment tomorrow and will see what they say. I thank you for all the feed back from you and joe239. So I will let you two know .
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Avatar universal
I agree I schedule an appointment with one I am just trying to figure this out.
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101028 tn?1419603004
not everything is herpes. a neurologist is the next course of action for you.

grace
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Avatar universal
I can respect that however the web attracts millions of people who have a forum to share more freely. This is a million patient sharing their experience.  A forum where things are not passed by since it is not text book. It is documented and I really believe people can not make up so many symptoms that are similar if not exact in nature.

Of course everything has to be taken with a grain of salt. The problem I am running into is I have yet to test positive. Deep down I hope I never do... but with these symptoms I am not feeling that confident.

I have tested negative 5X through 15 + weeks , Elisa IgG 4,7,11 weeks 13 weeks WB and 15 weeks 1 day HS immunoblot and I still feel the burning and tingling in my thighs buttock and tailbone/lower back especially when sitting it is very dehabilitaing as well at the twiching of muscles... I could not make this up if I tried.
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101028 tn?1419603004
phn rarely occurs with hsv. it's more of an issue with herpes zoster.  

all 3 herpes experts here on medhelp who see hundreds of patients each year and have been practice for 30 years minimum each, all say they've never seen it.  There are a few small studies on chronic neuralgia and herpes but they aren't really big and all of them, antivirals significantly reduced symptoms.

many things can cause tingling and you need a full work up.

grace
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Avatar universal
Oh yea you told me that...didnt put two and two together. Thank you
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Avatar universal
post herpetic nueralgia
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Avatar universal
I'm still tryna read everything about herpes. What is PHN? I hope I dont sound stupid! But I really dont know
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Avatar universal
Isn't it possible to have PHN from gential herpes? If that was the case you see where people have this for not only months but years.

I believe this is more common than people believe.
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101028 tn?1419603004
herpes will not cause tingling for 2 months.

grace
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Avatar universal
I made an appointment. This been going on to long! Im getn a lil fustrated!!!
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101028 tn?1419603004
you need to call monday and make an appointment with your provider and followu p on this.

grace
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Avatar universal
Its my legs and the base of my spine..if i do a certain movement i the tingling will come
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