SHOULD I BE VERY CONCERNED I DON"T KNOW IF WHAT I HAVE IS A POLYP OR CANCER MY MOTHER DIED OF ENDOMETRIAL CANCER AT AGE 49
I just got back a report yesterday of a transvaginal ultrasound and it says I have a mass protruding into my uterine lining,suggestive of a polyp. It doesn't say how big it is and they don't say I should have a biopsy. I had my first transvaginal ultrasound in the Fall of 2006 because my internist gave me a prescription for it because I had spoting in between my period since The Fall of 2005 at age 40 and a half.
In July 2008 endometrial cells were found on my pap test so I had to have a uterine biopsy in September 2008 and it was normal.In December 2008 I had another transvaginal ultrasound and it said I had somewhat thickening of my uterine lining and a really small fibroid but no polyp reported.Now I have 2 small fibroids and what they said is suggestive of a polyp.My uterine lining is reported to be somwhat thick again but I got my period 2 days after this recent vaginal ultrasound.My mother died in September 1985 of a rare endometrial cancer,squamas cell at stage 4 after only 4 months of being diagnosed with it in both of her lungs.
I was told by so many gynecologists including an oncology gynecologist I saw at Fox Chase Cancer Center in February 2009,that they never heard of uterine cancer being genetic.Yet some cancer teatment and prevention organizations like The Women's Cancer Network and the web site of the hospital where my mother died,do say that family history,having a mother or sister with it is an increased risk for getting it. I also have never been pregnant and never took any birth contro pills either and this is a risk too,not being pregnant is also a risk for breast and ovarian cancer.
I'm really worried now and the gynecology nurse who just told me about this polyp says they are usually benign but they can't know for sure without a biopsy or D&C which I'm terrified to have,I'm terrified to even ever have a colonoscopy for irritable bowel pain,because I'm terrified of being put to sleep.
If anyone can let me know anything I really would appreciate it.
Hi ,,I hope to be able to aleve some of your fears.
First although a good dianostic test trans vaginal or abdominal ultrasounds dont always get it right.this explains seeing one thing first then another then the first thougt plus the two polyps.
for example when I had a large cycst on my ovary,,,sometime a ultrasound (trans vag) saw it sometimes they could not even find my ovary.
Diagnostic lap or coloposcopy would be what id ask for...no need to give permission for hyster at this point and a good dr would not suggest it. a Laproscopy would enable surgeon to take out polopys or fibroid if possible...
Uterine biopsy being begnine is great news...
the genetic component of ovarian cancer can exisit. othe causes are smoking, being obese, never having a child. These are for Epitheial cancer...
However given the family history..I am very glad your going to gyn next week...
the nurse is very right polys are almost 100% begnine...I can understand your fear of being put to sleep..I will tell you what it feels like to me....you lay on the table..they inject into your iv a med that will put you to sleep..it takes 3 secons or less..I usually fight it..but you cant..you will sleep...anestesiologists are very well trained he/she will be in the room every second watching you.
when you awake its odd..because its not like a regular sleep ther is no feeling of time passing,,like when you take a nap wake up and think oh..I musta slept 2 hrs...other than that feeling its ok. I happen to get very naustated from the anestesia..I ask for anti nausea meds with the anestesia..that way I dont puke when awakining.
Take a tablet and paper write doen all your questions and fears..talk to Dr//you will not have a question he has not heard before....write down the answers
get back w me after you see him and I will try to help more
THank you for your very supportive response. They said I had only 1 small fibroid back in December 2008 now they are saying there are 2 plus what they said is suggestive of a polyp. I have also read gynecologic medical information that says that uterine polyps can sometimes though not often turn cancerous. And you don't really understand my terror of being put tp sleep,I just won't do it! Not even for a colonoscopy for my irritable bowel pain I have been having off and on for 16 years now.
should I see an oncology gynecologist first now or go back to my regular one and have another biopsy? I had a fairly new biopsy test done called,the TruTest actress FRan Dcrescher supports it and she was misdiagnosed with endometrial cancer for 2 years and was diagnosed at age 2 or so.
But I also just read a few days ago on an online gynecology surgery journal written by 2 gynecologists one from Yale in September 2008 the same month and year I had it done with this test,that more recewnt studies showit's not as accurate at geting as much tissue as the traditional more painful biopsy and that it's more like a microbiopsy.
But on The National Cancer Institute's web site they say the Tao brush,which this test uses is as effective.The company who makes it,Gynecor claims it actually gets *more* cells because of this brush and is not too painful.
Honestly anything Can be cancerous...but its very very unlikely in the case of polyp....about the IBP has any Dr ever connected the two...the polyp to the IBS?
If your health is i jeopardy and you must be put to sleep..the hospital will give you aa sedative once you have filled out legal papers,,its against the law to let some one sign for "informed concent" if they are sedated in any way..even the lowest dose of valium and they will not let you. as soon as legal things are in order you can be given meds to calm nerves/
THank you again for your nice response. I have since called THe National Cancer Institute and asked them if they knew anything about the Tao brush uterine biopsy because I had read an online article from The National Cancer Institute on Women's Health and it had mentioned the study of 101 women some who had the Tao brush biopsy and some who had the tradional biopsy but a woman at The National Cancer Insititute looked whike I was on the phone for at least 15 minutes and she told me they have no information about it.
I called The American Cancr Society and asked them and they also have no information about it and this really worries me how accurate was my endo biopsy back in SEptember 2008? But 3 months after it I had a transvaginal ultrasound and the only thing that was found was 1 really small fibroid.And it's not likely cancer if what I have now truly is a polyp.And no it's not connected to my gastrointestinal pain,as I said I've been getting that off and on for 16 years now long before I even had any fibroids!
A diagnostic laproscopy , allows dr to see into the pelvic cavity. This is done by placing three "rods" -sm round hollow ,long metal tubes....into three areas on pelvis..usually one neaar top of belly button...leaves no visable scar..(these are small..scar for other two is 1/3 inch approx) the other two are left and right lower pelvis.
You will be put into sleep or what is called twlightsleep...often used for diagnostic tests..you are 4 sure asleep just not as deep a level as a typical surgery.
the pelvis is filled to distend the abdomen..with gas..the dr inserts a camera on a thin metal piece..into the rod near belly button...because abdomen is distended he can actually see and take photos of what is wrong...this is how my andeomyosis was diagnosed.....the Dr can put medical insturments into any of the rods/ for possible biopsys or if you had discussed w Dr they can often remove things such as cysts during this procedure.
the general thought however is to get a very accurate diagnosis so you and your Dr can make a plan as to what to do next.
I know these tests and procedures sound scary,,,I had a deliema I will tell you about it scared the you know what outta me.
My 3 vertebrae in my neck had degenerated to the point that my nerves where trapped, there was hardly NO discs left in 2 spots...If the nerves was trapped/pressured so hard they could die....I had been loosing feeling in my harnda arnd arms (right mostly) for a while it got worse and worse over three years...I knew something serious was wrong...
Found a neurologist..tests many...final choice...1. have surgery (as in have my neck cut open///donor bones put in...a titanium plate,,,wear a hard coller neck brace and so on.
2, second choice...become a parapalegic eventually I would loose use of my arms.
///I had the surgery,,it was hard. it hurt. but sometimes you get pushed into a corner where you have to make choices about your health that could possibly effect your life...and they are scary, but waiting may be a bad option.
I am not trying to make you think I assume anything, after all im a volunteer, whos answered a few thousand questions. I do have some knowledge , plus I have had a ton of female problems myself.
I think its best to never ever assume, when it comes to ones health. could be something very minor as I and the nurse you saw both said polyps are mostly always begnine...do they hurt you thought? most women claim they do.
I know you dont want surgery! hardly anyone does, its not a pleasant experience .and the first time most people get put to sleep they are scared . as I tried to explain to you, its a really odd feeling/
there are lots of members in this community..I have tried very hard to help you. I am going to have the co-cl read your thread and perhaps she can be of more help.
Cherie is our Hysterectomy Community Leader and she is extremely knowledgeable about any condition that has to do with a womens reproductive organs.
Please take her advice because she does know what she's talking about.
If you do have to be put under there is no need to be afraid. Of course it's natural to be scared. But like Cherie said, you can ask for a sedative. Actually, they will probably ask you first if you want one.
I had the diagnostic lap test done and believe me, it was no big deal at all.
Cherie is right. Polyps are almost never cancerous. Just have it removed and diagnosed then go for regular check ups after that. Take care. Remar
You are telling me I should be very concernced but at the same time you are saying that polyps are almost always benign. I went to my regular gynecologist today and he said in pre-menupausal women it's 10% or less that it would be cancer.He said he doesn't think uterine cancer is genetic,and every gyneocologist I have seen since my mother died when I was 20 including the oncology gynecologist at Fox Chase Cancer Center I saw,has said that they never heard of it being genetic.I told the gynecologist today that The National Cancer Insitute said there is still a lot they don't know about cancer and he said that's true.
He said he doesn't think it's likely that this is cancer but he recommends I have a D&C biopsy just to be sure.He said I could have an epidural local anestesia.I'm not sure if the oncology gynecologist will do it that way,if she does I'll go to her.
And no I have never heard of polyps causing any pain.
I went to see an oncology gynecologist today at a local good cancer center,I had seen this Dr. once before back in February 2009 after I had an endometrial Tao brush (this oncology gynecologist said she doesn't know what a Tao brush biopsy is) biopsy(which came back normal) by my regular gynecologist because endometrial cells had turned up on my Pap test done by my former creep of a gynecologist,she wsn't sensitive to the fact of my mother dying at only 49 in only 4 months from stage 4 endometrial cancer.
I didn't like this Dr.at this cancer center then,she was very cold and detatched,and she only spent a few minutes with me.After she had examined me,she left the room and looked at my biopsy film,and written reports,and then she comes into the room and coldly says fortunately for you you don't have any family history,I said my own mother died of endometrial cancer at age 49,how is that not a family history?She said I don;t have a lot of family members with it and my mother died of a rare aggressive type.
I told her that The Women's Gynecological Cancer Foundation,the web site for the hospital where my mother died,and The College of Obstectricians and Gynecologists all say that having a close female relative,a mother,daughter or sister increases your risk some say twice as much,and she said well I never heard of it,and she said I was arguing with her.I said no I'm just trying to discuss my valid concerns.
I looked up this Doctor on health doctor's rating sites and on one of them she gets just one review but it says it's poor,and the patient only gave her 2 and half stars.On Rate MD's she only gets one review and it had no written review only a smile emoticon for the rating of fair.On another site 6 people only gave her 3 stars overall.
Well when I saw her today she was just as cold she came in ,after she looked at my film and she was ready to do a uterine biopsy.She said that this is what they do before a D&C with a possible polyp.I asked her if she thought it was likely cancer and she said probably not but there could be something going on with the uterus and they have to make sure what it is.
And her nurse was in the room too,I had spoken weeks ago with another one of her nurses and told her that I needed to be prepared if she was going to do a D&C or biopsy,and that I needed to talk with her about what I was going to do for this appointment first.And her nurse said that she didn't think that she would just do a procedure this appointment without talking about with me.
She said she thought that she likely will do a test a something scopy that looks into your cervix.But I said she can't see into my uterus with that can she,and she said no.I said well that's where this polyp is in my uterine lining.Anyway,I was not at all mentally or physically prepared for a endometrial bippsy today,I hadn't known that she was planning to do this so I hadn;t even taken any pain medication beforehand.
I have read on many other health message boards including this one,that many women have bad pain from traditional uterine biopsies,and that many say even taking Advil,Motrin,or Ibuprofen didn't really help too much.Many women said the pain was worse than childbirth andthey had several kids!
I asked this doctor today don't you numb it or anything and she said no,and the nurse said she has had the doctor do several on her and it's not really bad.I wasn't willing to take this chance,I'm very sensitive to pain.On this very site there is a great topic called,Endometrial Biopsy- DEMAND Pain Relief! About how many women do have very painful endometrial biopsies and that some doctors use the lidcocaine anesthesia and that that they all should!
what your talking about is a colposcopy,,the cervix is gently slowly dialated so dr may insert camera on end of small rod to get a good visual that shows up on similar to tv screen.
You have the rightto ask for oral pain meds prior ti this ..In my opinion it would bea narcotic stronge than advil etc...to numb the cervix w a injection would be quite painful so oral route would be best..
good luck to you..if we can help any more let me know...Im glad your reading up on things !
Thank you very much Cherie762! Below is a post I made on the ***** site.
No sorry I'm not having any unterine biopsy if they won't numb me! I'm so glad I didn't go through with it yesterday after reading both before and after yesterday,posts by so many women who said the biopsy was extremely painful, and many said it was the worst pain they ever experienced,and many of them said they had a lot of other painful tests,surgeries,and even many had more than several children and that this was worse! And they said that you really should take some serious pain medicine both before and after the biopsy,and many said that even that didn't help enough!
And several women said that they never had children and so their cervix is more closed and this makes the biopsy even more painful,which it would be for me too! When my regular gynecologist gave me the Tao brush biopsy he told me that since my cervix had never been opened it was going to hurt,and it really hurt bad!
And to say what you did about oncologists seeing a lot of death and difficult cases and so sometimes they brush off less difficult ones is inaccurate and not fair.As I already said I have had 2 internists that are cold,detached and nasty,and one of them has nasty medical staff as well,this is why I haven't been back to her office in a year and a half.And I have had too many medical assistents and a few nurses like this too.
And my mother died at age 49 of stage 4 endometrial cancer in just 4 months and the doctors know this.I also said that my father told me that her first oncologist with my mother's very serious,difficult and deadly case,said to her very coldly and unfeelingly,you have only 3 months to live and there is nothing we can do for you,and he said it like he was saying it was raining or sunny out today! My father said he was like this the whole time he saw her as her oncologist.She then went to a much better and much nicer one at a different hospital where he was a top recommended oncologist.
And by the way the oncologist I saw yesterday,her mother had breast cancer so she should really be more understanding! And also please look up the topic on this very site, Endometrial Biopsy-DEMAND Pain Relief! by member LindaWmn.
THis is another of my recent posts on Hystersisters,
I have not been going through this since 2008 at all, as I said in July 2008 I had a regular Pap test that found some endometrial cells on it and so I went to a new gynecologist who gave me the TruTest biopsy which uses a Tao brush which some say is more accurate and not that painful and the only thing that really hurt was when he opened and kept open my cervix,as he said it would because it had never been opened before because I have never had any children.This biopsy came back benign.
I wanted to have my second transvaginal ultrasound soon after this biopsy but my internist wanted me to wait 3 months in case the biopsy had disrupted the uterus so in December 2008 I had the transvaginal ultrasound and the only thing that was found then was one very small fibroid which wasn't even there when I had my first transvaginal ultrasound in October 2006 because I had been spotting in between my period off and on since the Fall of 2005.
This possible polyp is a new thing that was just found when I had another transvaginal ultrasound in March after a new gynecology nurse asked me to because I told her about the history of my spotting off and on and that it went away for 8 months and came back recently and a little heavier. And I had told her that I had 2 transvaginal ultrasounds.And I told her about the endometrial cells and my biopsy done in September 2008.
And I said that I would only have a D&C if they can as my nice cardiologist suggestedgive me,an epidural to numb me instead of being put to sleep.And I won't have a biopsy without being numbed and or some serious pain killers as many women said they used.Many said that even after taking 800 milligrams of Motrin,Advil,Ibuprofen it still hurt bad!
And I saw a head and neck surgeon who treats people with head and neck cancers at the same hospital where this cold military officer oncology gynecologist works,but she was very warm and nice so was the endocrinologist I just saw for the first time on Monday because of my 3 thyroid nodules,and she also treats patients with thyroid cancer,my eye doctor,dentist,and cardiologist are all also very nice warmer people too,which is what patients want and deserve in a doctor.If they are cold,detached and or nasty then they shouldn't ever become doctors in the first place! People are not Guinea Pigs!
How come nobody responded in all of this time? I want to know if 600 mg of Ibuprofen is going to be strong enough for the endometrial biopsy I'm having July 8. I have read too many women on health boards including this one who even took 800 mg of Ibuprofen and they said it was still very painful some still said it was the most painful test they ever had. A member susadia on this site in The Women's Health Community in the topic of Endometrial Biopsy,said she gave birth to 4 children and is 53 and she took 600 mg of Ibuprofen and that it was still the most painful thing she had ever gone through without gas or some major pain killer.She said she's always handled pain well but that this was so painful that when the OBGYN said it would be another 15 seconds more,she better hurry because she couldn't take any more.They also told her she would stop cramping immediately and stop bleeding within an hour but she bled for 3 days and cramped into the night! She said she would never recommend having this done without some great pain prescription pain killers first.
I had asked the oncology gynecologist's nurse if the doctor could proscribe 800 mg and I have to take a liquid because I can't swallow pills,but the nurse said for some reason she proscribed the 600 mg of Ibuprofen instead. I had asked my regular gynecologist a month ago if he would proscribe a pain killer for the biopsy and he said yes but he didn't say what type.He usually does the TruTest brush biopsy and not the regular type but even GYnecor who makes the TruTest admits that the regular bippsy has an advantage over this for uterine polyps.I asked my gynecologist if he could do the regular biopsy and he said he could but the reason he uses the TruTest is because it's 90% accurate.I said I know it tends to be less painful than the other biopsy and he said it usually is less uncomfortable.
I had gone to my internist las month because I hoped she would give me a proscription for the stronger pain killers percocet or vicodin because many women on different health boards said they really helped.But she refused and wanted to just proscribe 800mg of Ibuprofen.So what should I do I'm very sensitive to pain and I'm really afraid the 600mg isn't going to be strong enough.
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