Too Young for Hysterectomy

[JETupstate]

I don't want to have it! I need a doctor in Syracuse, NY who can help. I don't have a child and I'd like one as soon as I'm pain free, or at least the option to have one. I've had pain and heavy bleeding with no known cause since I was 20. I'm now 34.  At age 29 two different doctors said, "Ah, it was endometriosis". I was dubious as it seemed to be the catch all for any unexplained pain. But I was dutiful, did the Lupron for six months, started on continued contraceptives to avoid having a period and it felt better not to be crawling around in pain all the time. But that relief was shortlived... the pains came back, on the right side, shooting down my thigh to the knee, and round the flank to the back, almost constantly. It's bearable and I can block it except when once a day or so I get a serious contraction that has me paralyzed waist down from pain, moaning and gasping and sweating and shaking and nauseus for about 15 to 20 minutes. it even hurts to breathe and by the time the "attack" is over, I'm drained and scared to death. Last year my doctor did a laporoscopy to see about taking out the "endometriosis". Well, there wasn't a single one she saw! Instead, she saw that my uterus was all the way over to the right, looked almost attached to the pelvic wall, and some strange fibroids that looked attached to each other were weighing the organ down to that side. She couldn't take them out because of the location (plus apparently I've the strangest blood vessels she ever saw and so couldn't make other incisions safely at the time). Well, so I got closed up with nothing done only plans to have a full abdominal myomectomy to deal with the fibroids in a way that can preserve my uterus while freeing me from pain. (I live on motrin, it's gross... and sometimes at night I take stronger stuff if I know I can sleep thru' the night).  Last week I had another horrible "attack" and think I passed out as someone called 911 and I ended up in ER. A new sonogram is what's changing all my plans for the surgery: there are now a whole bunch of small fibroids all over it seems. My gyno asked if we shouldn't just take the whole uterus out since they make up my uterus it seems. I was shocked. In this day and age can a doctor really recommend that for a young woman who wants a family someday soon? And then she wants to do the myomectomy on the DaVinci robot, is that safe for someone with so many fibroids? Plus she added that the surgery may not take away the pain (I felt she was suggesting it's all in my head). Well. What to do? Why do doctors dismiss women's pain so fast?

[Cherie762]

Im glad to have you write back, your not at all "mental" your young and have every right to want to be a Mom. If it ends up that you can not carry a child remember one can grow in your heart as well as your womb, there are tons of innocents who would love to be loved by you. New York is one heck of a great place for you to be. If you dont find a new dr. let me know asap and I will research and send you a pm...Cherie

[JETupstate]

Thank you for your concern. I'll post the query on "Ask a Doctor" that's good advise. I'm really confused. I've spent the whole week feeling absolutely lost, useless, and unable to whine about it to anyone because no one knows what to do. Hope someone knows a doctor in the Syracuse, New York area or even anywhere in the East Coast who could treat me quickly and effectively and not make me feel like I'm mental for wanting to be well, pain-free, and not living on BC pills and pain pills. And daring to hope she can have a baby someday!

[Cherie762]

Hi, I read your post twice and am most concerned for you. I have to admit your question is way out of my expertise. I am concerned if your blood vessels are so odd, and they could not remove the fibroids, how on earth are they going to remove your entire reproductive system makes no sense. I do know the DaVinci Robotic is top notch and safest allows persion motionsl how insulting to say the surgery may not take away the pain if you uterus is in the wrong spot and you have fibroids....I would really like to encourage you to repost this on our ask a doctor forum. and also please see a new doctor, maybe even a fertility specialist. as having a child is so important to you maybe getting a view point from one to preserve your fertility would be benificial.

Lots of  good wishes to you,,Cherie