Calcium oxalate and carbonate apatite stones

[Crazybeautiful11]

So I'm looking for a little input. I was diagnosed with several stones in November, after a CT scan that my doctor ran because of my complaint of constant pain with waves of intense cramping pain.

I had a lithotripsy on 1/16 and found out the doctor was only able to break two large pieces off my two largest stones. I have not had another scan to measure the stones again, but was able to pass a bit of gravel that was sent to the lab.

My results:
Calcium oxalate monohydrate 35%
Calcium oxalate dihydrate 30%
Carbonate apatite 35%

The results came after hours so I wasn't able to speak with my urologist yet... From what I've read, the calcium oxalate monohydrate are strong, which explains the lack of success in my lithotripsy procedure... And I read that carbonate apatite stones are indicative of infection.

Does anyone have any experience with these types of stones??

I'm hoping my urologist will speed up the process, and I will be opting out if he suggests another lithotripsy.
Not only was it unsuccessful, but it was far more unpleasant than I was told... And they billed my insurance almost $70,000 which I think is outrageously high!

Would also appreciate any info on other procedure options!

[Crazybeautiful11]

Thank you for your response. I finally have a follow up appointment with my urologist Friday, and a repeat ct and KUB X-ray to take with me. I have been to emergency three times since the lithotripsy, but still nothing has passed. The ER doctor seemed convinced that the stones were moving but must still be too large to pass. There has been no infection or blockage so I'm happy about that!

I also scheduled an appointment with a nephrologist in a few weeks to help me figure out how to manage this, and hopefully prevent them from reoccurring. My urologist hasn't offered any guidance in that aspect, and has also repeatedly told me that I shouldn't be in any pain or feel any discomfort. I've called each time I've gone to the hospital but he doesn't seem concerned. I just wish there was more than one urologist in town!

My biggest concern is that I'm in pain daily, and at least once or twice a week I suffer hours of sharp, stabbing pains. This is typically when I go to emergency. I cannot keep living like this, but my doctor doesn't take it seriously.

[Dr Santos]

Hi,
I understand your concern regarding the lab results and if the previous procedure was unpleasant, you need to discuss medical management and other therapies for the remaining stones. However, these may also recur and it is important that risk factors such as not drinking enough fluids, presence of co-morbid conditions, consuming a high-protein, high-sugar, high-sodium, low-fiber diet diet and intake of certain types of medications must be controlled. Cutting out calcium from your diet is usually not recommended, unless your intestine absorbs too much dietary calcium. It is best that you talk to your attending physician also about this for proper management. Take care and do keep us posted.