DRS LLIE...FOLLOW YOUR GUT

[ErinZoe23]

Do you have a feeling in your gut ever since you where diagnosed that it wasnt right? Well i did...and i asked and fought and continued that for 2 years with drs saying straight to my face noone in pgh gets lyme when in fact i knew manyy people and my own dog got it that month, and no one could expain all my beg. symptoms and just threw them away like nthing, i wasted almost 6 years of my life from 22 yrs old and will be 28 in june form these doctors. I am getting a second opinion from a dr not afraid of lyme and the whole fda and cdc mess up and conspiracy. I FOUND A PAPER FROM GETTIN A DUI BC I HAD A BREAKDOWN FROM BEING BED RIDDIN AND ALL THESE WEIRD THINGS THAT NOT ONE MS PERSON COULD EXPLAIN OR RELATE.....

I DID THE FINAL STEP TO CLARIFY IN MY OWN EYES, AND STOPPED ALL MD MEDS   AND WHAT HAPPENED????          I CAN WALK AGAIN! I CAN TALK NORMAL! I COULD EVEN POSSIBLY WORK AGAIN! I DONT TWITCH NOMORE I DONT SHAKE.....HOWEVER I HAVE THE FEW SYMPTOMS THAT SEPERATE LYME AGAINT MS AND THEY ARE THE ONLY SYMPTOMS I GET AS IN MASSIVE JOINT PAIN.

With dui of being sick non stop never going into remission and my dad going into 3rd stage dementia and me yelling for help and noone lisented i almost perished in my car. But i belive i t was GOD and this heped me sooo mcuh bc the e.r  ( the same place my MS speaciaist and neuro work) printed out a paper saying MS ad a past history or LYME DISEAES???   IM SORRY BUT WHAT? WHAT DID THEY JUST PRINT??? SO MY DOCTORS ALL THESE YEARS HID FROM ME THAT I HAVE LYME? AND NEVER TREATED ME? When i told them to test me and i got me own test from Igenex and everything and still was told NO< NOONE IN OGH GETS LYME! even with all those symptoms they ignored? who the F are they to hide this from me? to do this to me? to feed me injections and infusions knowing it makes LYME a million times worse..knowing im so sick everytime.more then the usual MS patient and never go into remission but still i get call RRMS but never remitted from day one?

The did print that paper.. i beieve to cover their own ***** when i do finally find out b.c i was fightin my heart out the first 2 years with n help from noone...emotional disabled mentaly and physcialy.. alreay using a cane 24/7 and going into a wheel chair that they put this diagnoses on paper and in my file and hid it from me... WHY? WHY WHY? WHY?   so they can make money from MS meds? please tell me why i dr would hide a file that i would of never seen unless i got a dui in july? why? thats all i want to know..i go to see my neuro who wrks for my ms secialist the 23rd ..and i dont even know to bring this up. I know if i do they will start hiding stuff and so on. I knew deep down this was all wrong i knew it in my heart. It took so much life from me and why would i dr put that i have a history of yme disease when he stated straight to myyy face im negative and noone in pgh get lyme. I read sooo much about it and over 250,000 in pgh/pa are misdiagnosed wih MS from Lyme

So follow your hearts. I will sue. and i know he put that so i couldnt sue. but i looked it up and out of the 10 questions you can sue for misdaignosis, my doctor fitted all 10. And now  hiding files from me more and likely to cover his *** when i find out i do have lyme...calling me an idiot and stupid to even think? putting me down bc i thought so making me stop fighting and mental brainwashing me. I have ha d 4 months of no symptoms since i stopped all my MS meds and its unbelievable the change like totally a 180.  So i havent been on here in a long time because i felt and was disrespected by many of you. thinking im nuts and stupid. Thing the ruler os this site know it all and reading what yyou ntell people and judge people. I was mentaly and emotional messed up from my disease pus with drugs being pumped into me making it 100 times worth.

Should i tell my neuro what i founs? shes new, im on welfare, im going to be under a bridge bc of these people and having W from college 3 times, i dont even know wh i tried... but damn when m pcp said when was the last time you felt normal like when u where 22 i just startes to cry and i said 3 days.  I COULD COUNT THE NUMBER OF DAYYS ON MY HAND IN THESE MANY YEARS? but now 3 ddaays and 4 months.

ALL IM SAYING HERE IS FOR YOU ALL WHO ARE WONDERING IF OU GOT MS OR LYME OR W.E. ..OU DO YOUR OWN RESEARCH AND DO IT WELL. WRITE IT DOWN FROM SYMPTOM ONE YOUR VERY FIRST AND DONT STOP FIGHTING, PLEASE DONT STOP. IM GETTING A SECOND OPINION AND HOPFULL BY THE END OF SUMMER IL GET THE APT. MY BASKETBALL COACH AMOST DIED FROM LYME AND THIS GUY SAVED HIM. HE HAS A YOUTUBE VIDEO AND THE WAITING LIST IS ABOUT 8 MONTHS MY OLD COACH TOD ME BUT HES PUTTING A WORD IN FOR ME.
                                                                        ((( POSTED IN MS AND COPIED TO HERE I DO NOT MEAN TAT ANY OF YOU DISREPECTED ME YOU GUS WHERE ACTAULY VERY NICE AND HEPFUL AND GAINED AOT OF FRIENDSHIPS BUT OST CONTACT DO TO JUST THIS SITE AND JUDGEMNT ON MS FORUM DISGUSTED ME))

[Ephedra]

I ordered my own meds from an overseas pharmacy internationaldrugmart- just Google it up.  

I ordered Flagyl and Doxycycline.  But there are so many different Lyme meds and combinations to use.  You really just need to do your research and know what your doing as far as dosages and interactions and such.  It takes about three weeks for the delivery and it arrives via registerd mail.

You can also order your own labs too, just Google affordable online lab testing.  It all cost money opposed to insurance if you had your own doctors order, but I would pay anything over dealing with what you all have been through.  That is ridiculous!!!  You guys are tough!  Let me know if you have any questions about it.

[mojogal]

Most LLMD generally start off with 200 MG doxycycline twice a day. My LLMD added on a cyst buster on a rotating basis. The Lyme bug goes into cyst format and the cyst buster like Flagyl is suppose to kill that.  After that my LLMD started working on co-infections.

If you don't like antibiotics, you could try the natural route. There are many natural protocols. I did 2 years of antibiotics and since my liver enzymes are high I am now doing a natural protocol.

[ErinZoe23]

how did u treat urself? any tips? i thought antibiotics sssooo easy if they would of given me them the first week i explained this all it would f being gone now with it in me for soo long its gonnabe a long ride... what did u treat yourelf with my i ask? id love to try bc MS meds put me in bed and does nothing but make mse worse? any aive on what to take?

[ErinZoe23]

I completey understad. thats whathappened to my caoch, he got lyme and ended up not talking stright in e.r. with new iv meds or he would of died and slowly recovered and wroking again but with all that damage from the meds and so on, i do belive he has lupus now... u suffered all them years? u get that lawyer it cant hurt and u see what u can do about it. they obviously thought of nothing but what they wanted. i was never ven tested they just jumped straight to MS and right their is one of the 10 questions..no drs an jump right to a diagnostic w.o ruling out sooo many that mimic it.. im sorry for your struglles and how much it much hurt to lose all hat life when they messed up! u def should look into. no dr should get away with taking so much life away from you like that

[Ephedra]

I don't know what I would ever do without internet!  Forget doctors!!!!  I just diagnosed and began treating myself until I was able to get into a LLMD.  

You guys are really tough to deal with all that bs, I'll tell ya!!  I don't think I could handle it mentally or physically...  If I had to go through all that... hard telling where I would be today!

[mojogal]

Hi, I can understand your frustration. I was also misdiagnosed with MS, Lupus, and many other illnesses for over 20 years. By the time I saw a Lyme literate Dr 2 years ago, there was already much damage done to my body.
We don't deserve this treatment.

[ErinZoe23]

DO I BELIVE I HAVE THE RIGHT TO SUE? HELL YEAH I DO. YOU WANT TO KNOW THE ?'S TO KNOW IF U CAN SUE I CAN FIND THEM AGAIN FOR YOU...THESE PEOPLE TOOK MY LIFE AWAY AND MADE ME FEE CRAZY FOR YEARS TOOK MY OUTH AWAY TOOK MY PASSIONS AND DRIVE AWAY TOOK IT ALL AWAY. I NEVER COULD ACCEPT BC I KNEW DEEP DOWN THIS AINT HOW MS WORKS AND HIS AINT RIGHT AND I SHOULD OF NEVER STOPPED FIGHTING..SO DONT EVER STOP HEN YOU KNOW. PEASE DONT

IVE LEARNED SO MUCH ABOUT LYME AND MS IN ALMOSY 7 YEARS ITS INSANE. AND 4 MONTHS AND 3 DAYS I FELT NORMAL. MY PCP COULDNT TELL ME WHAT TO DO ACCEPT FOLLOW WHAT YOU FEEL. I COULD GO IN A MASSIVE RELAPSE IN A WEEK OR MONTH IF I STOP, BUT I DIDNT, BUT I STILL COULD AND I DONT CARE IF I DO I GOT 4 MONTHS SO FAR OF NO NOTHING ANTHING BESIDES LYME SMPTOMS AND BARELY ANY OF THOSE BESIDE THE JOINTS AND A FEW OTHERS.. BUT FUNNT THOSE ARE THE ONLY ONES THAT STAYED..THE ONES NOT RELATED TO MS STAYED..ISNT THAT IRONIC?

IM GOING TO BE STARTING A WEBSITE HOPEFULLY BY THE END OF THE YEAR AND IF I CAN FUNDRAISE THE MONEY. CLOTHES, ANIMAL STUFF, PORTAITS , ARE JUST AFEW TABS ON IT. BUT WIL BE PATENING A FEW CLOTHING IDEAS I HAVE THAT WILL HELP PPL WITH LYME OR MS .  ONCE EVERYTHING SETTLES DOWN ILL BE ON THAT AND CANT WAIT TO GET IT GOING AND HELPING OTHERS AND THE PROCEEDS GOING TO HELP PEOPLE WITH BUYING EQUIPMMENT OR A VACATION OR ANYTHING THEY NEED. I TRURL CANT WANT WAIT AND I KNOW IT WILL BE A SUCCESS. I DONT KNOW HOW TO HAVE A FUNDRIASER BUT I WILL.  RIGHT NOW IM SPENING AS MUCH AS TIME WITH MY DAD AS I CAN FOR HE GOT DEMENTIA LIKE A SAID AND WITHINA YEAR WENT FROM 2ND STAGE TO 3RD STAGE AND ITS GOING FAST AND I WANT TO STAY BY HIM.... LONG POST BUT I HAD TO SAY SOMETHING AND THATS IT. NOW I HAVE ANOTHER PROLEM FROM AL THOSE MEDS THAT MAYBE THIS SITE WILL COME IN HANDY. THANK YOU ALL AND GOD BLESS. IF YOU NEED ME AT ALL OR SOMEONE TO TALK TO I AM HERE AND I DO OT JUDGE IF U JUST NEED T YELL OR SCREAM OR CRY TO SOMEONE AND BE HAPPY AND JOYFUL OR ANYTHING . JUST TO GET IT OUT BC DONT HOD IT IN, I WONT EVENT EMAIL BACK IF U DONT WANT ME TO. JUT A RELEASE U MIGHT NEED,  PUT SPACES AND SUCH SO MAYBE IT WILL WORK BC THE NEXT TIME ILL BE ON HERE IS IF IM SUEING THE DR AND WILL LET U NO WHAT THEY DID AND HOW THEY WEN ABOUT COVERING IT INCASE U MIGHT NEED TO DIG UP SOME FILES AND TRUST ME I ASKED FOR ALL MY RECORDS AND NOT INDICATED THAT MY MS DR SAID I HAVE BACK HISTORY OF LYME.... MY *** MYY "BACK" HISTORY WAS THE DAY U SAUD MS...  MS DONT JUST BAST U , IT PROGRESEES ANDU CAN TEL NOT JUST WAKE UP ONE DAY HALD DEAD... OKA GOODBYE EVERYONE AND GOD BLESS AND FIGHT FOR YOURSELF.... JUST BC WE AINT RICH WE DONT GET CURES ...FUNNY IF YOU REALLY LOOK AT THE FAMOUS PEOPLE AND BILIONARE AND MILIONARES AND SEE HOW MNAY ARE SICK? FUNNY HOW ABOUT NONE IS? FUNNY HOW THAT B BALL PLAYER GOT AIDS THEN THE NEXT FEW MONTHS NOLONGER HAD AIDS NOMORE? FUNNY HOW A GUY WAS ASSISNED FOR TRYING TO THE PRESS SAYING HE FOUND THE CUE FOR AIDS YEARS AGO. ALL JUST MESSED UP. MONEY MAKING SCHEME AND POPULATION CONTROL.... THINK IM NUTS W.E. BUT WHEN THAT MAY YRS OF M LIFE WAS STOEN AND U FIND OUT YOU WERE LIED TO AND THEY KNEW ABOUT IT AND COULD DARE DO THIS HOW WOULD U FEEL?  HERE YOU GO IF U NEED TO JUST TALK ( IF YOU GET IT LOL) LOVE ALWAYS  ERINZOE ( MY FAVE NUMBER IS 13)          @       ^$#%&*$#^(  GMAIL