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Lyme Disease Community

This forum is for questions and support regarding What Causes Lyme Disease, Diagnosing Lyme Disease, and Joint Pain. Topics for discussion also include Living with Lyme Disease, Babesia, Bartonella, Rocky Mountain Spotted Fever, Anaplasmosis, other Tick Borne Diseases, Nervous System issues, Prevention, Risk Factors, Skin Disorders, Symptoms and Treatments

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Avatar universal
Hi All. I have been in treatment for Lyme for about 9 months now. Likely had it for 2-3 years before Igenex tests helped to confirm the diagnosis. I do respond to antibiotics & anti-fungal/anti-malarial treatment for a month or two, ...
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Avatar universal
My mother has displayed Lymes Disease symptoms for many years. I too have started to devolop some. We are both therefore looking to get tested. I understand that John Caudwell had his family tested with the Armin Lab in Germany. Howvever...
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Avatar universal
I saw a new integrative Doctor who thinks I have lymes and wants to start treatment even though my labs are normal. I was diagnosed with hypothyroidism at 19 and now at 25 it never improved despite different methods of treatment. I ha...
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Avatar universal
I have been tested for everything and all blood test are normal. I had the Ingenix test for Lymes and I only showed presence of Band 41. I did have a brain MRI recently with a 3T MRI that should numerous subcortical lesions. The MS sp...
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Avatar universal
have muscle twitching constantly in lower legs spamatic upper legs and arms. Clean emg and cleared for clinical weakness by 3 neurologist(I feel strong). Had 3 blood test 3x (cbc ptt..etc.). in last 6 months even lyme anti body. stds...
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Avatar universal
I am desperately looking for an LLMD near Kansas City. I have been very ill for 3 months and has been to so many doctors and specialists to no avail. Does anyone have any recommendations, please!?' I've been diagnosised with Bartonella...
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Avatar universal
I was diagnosed with MS in 2010. Several people in my family have been diagnosed with Lyme. All of my test came back negative including lumber puncture. Below is my latest MRI result. EXAM: MRI BRAIN WITHOUT AND WITH CONTRAST HISTOR...
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Avatar universal
I am 25 year old male and have been diagnosed with Lyme Disease about 3 months ago. After 2-3 years of seeing doctors I finally found out what was causing my symptoms. Along with my symptoms my doctor said that I have abnormally low test...
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Avatar universal
Hi everyone, I am writing to you today because I've started my treatment for a Chnonic lyme disease III with Bartonela and Babésia in the USA. I am French and was sick for the last 4 years. I used to work in Connecticut in the US...
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Avatar universal
After almost 2 years of having I was able to finally see a LLMD. A wonderful man who took his time, listened to me, talked to me, and made me feel comfortable. He said I could be looking at 3-6 months of treatment, possibly IV. He feels...
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Avatar universal
Hello, I ordered my own lyme western blot test, and IgG p41 and p39 came back positive. All other IgG, and all IgM negative. Does that suggest lyme? From what I understand, the p41 is positive in everybody, but the p39 is specifi...
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Avatar universal
I've been ill for almost a year now, and I've started looking into lyme disease. I did an elisa igg and igm test, which came back negative. My lumbar puncture test came back negative as well, but my test from Germany came back +14. Wha...
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Avatar universal
My daughter had bloodwork in 2009 that showed high quant Igm and high igg/Igm. She had igg p41 and igg p58 present abnormal and Igm p23 present abnormal but it was flagged as negative since she didn't have 5 igg bands or 2 Igm bands. If ...
  Posted
Avatar universal
I have had weird undiagnosed symptoms so I did a Lyme disease test through Igenex. My test results overall came back as negative, but my IgM 41 was positive and IgG was indecisive/soft positive, also my IFA was equivocal meaning not posi...
  Posted
Avatar universal
Greetings- I have a very wide spectrum of symptoms, affecting most every body system. My main symptoms are constant exhaustion, both physical and mental (not restored by any amount of sleep), brain fog (constant), gastrointestinal (co...
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Avatar universal
Hi, Last year I had 6 bands on Western Blot come back positive (93,66,58,45,41, and 30). Do these indicate Lyme disease? I did not get treated but am seriously considering it now because I am having symptoms. Facial twitching, ting...
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Avatar universal
I live in the St. Louis area. I was a dog groomer for years. At one point I de ticked a dog that was loaded with seed ticks. That night my ear started throbbing and I woke up with blood on my pillow. I went to the dr and was told outer e...
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535822 tn?1443980380
Is this a symptom of Lyme disease..
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Avatar universal
Cross posted from Undiagnosed community: So this is long but I'm very frustrated and every doctor thinks these are unrelated. I have had acid reflux and pmdd for a while. In Feb of 2012 I got this bite looking thing on my neck. I we...
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Avatar universal
I had one about 10 years ago, and the thing I remember the most about it was that it had a strong smell (probably like amonnia). Does the bull's eye rash have any smell?
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