Did i do the right thing?

[Prepcook]

My PCP does not believe in Chronic Lyme so i made an appointment with another PCP's Physisians assistant. She is the one I saw for my Bull's eye rash. She actually listened to me. So i made another appointment with her after I see the Rheumatologist in September. My PCP's office called today and told me I had to see one of his PA's or i have to change my PCP to another doctor who is in the group. I have dealt with his other PA's before  and did not care for them. So I guess i have to change my PCP. Im very upset about this. I thought because they are all in the same group that it wouldnt be a problem. I have met this other Doctor but do not wish to have him as my PCP. I hope I made the right decision in staying with this PA. Like i said before she is the only one who has listened to me!
On another note...I had a pre-colonoscopy appointment today and I just happened to see the paper work for my PCP's office. Under conditions they have DEPRESSION! I am not depressed and they have me listed as if Im a syco! Im not crazy and Im tired of them saying i am.,The report mentioned nothing about me having Lyme!
I am starting to feel a little better. Not as much Brain Fog! At least today im having a pretty good day.
I would also like to thank all who have responded to my posts. I know i am not alone and can come here if i need support.Thank you so much!

[mojogal]

When I lived in Texas there was no LLMD in the area but I hear that has changed now.

The ID docs usually do not treat Lyme. I would do a google search for LLMD near you and then you could contact ILADS . Org and write and ask them for an LLMD in your area.

[JackieCalifornia]

Welcome to MedHelp Lyme --

It's my understanding that Texas is a hard place to find a good Lyme doc, because the medical board(s) keep a tight rein on anything more than a short course of doxycycline and similar measures.  Would be interested in your perspective.

In my experience, ID docs and rheumies are the least useful specialists because they adhere to the IDSA/CDC approaches to diagnosis and treatment.  Have you had a different experience there?

[ThatMedGuy]

You need to be seen by an infectious disease specialist, Rheumatologist, and maybe an endocrinologist or hematologist, most pcp's are clueless when it comes to chronic Lymes it mis diagnosed quite often. All the pcp is good for is for a referral if your insurance co wants it and acutely treating symptoms good luck

[JackieCalifornia]

and PS, there are Lyme charitable organizations that can help with costs for those who have no other resources.  Lymelight Foundation is one, and LymeTAP is another.

[JackieCalifornia]

Lyme is bad enough, and then you gotta deal with the clueless portion of the medical profession.  I hear you.

It took me 20 docs to even get a Lyme diagnosis, and the trick then is finding a good Lyme-aware doc.  Are you stuck in a medical plan that requires you to stay in-network only?  My insurance at the time reimbursed me for out-of-network docs, but at a lower rate than in-network docs.  A lot of LLMDs don't participate in insurance plans to avoid the second-guessing the insurance 'administrators' and their guidlines impose on Lyme diagnosis and treatment.

Trust me, it was worth the extra $ out of my pocket to be well again.  Think of it as an investment in your future.  What else is money for, but to sustain life and well-being?