Don't know if I may have Lyme

[Chulita100]

I had a positive ANA come back my doctor says I could have Lupus, but before I went to doc, I thought I could have fibromyalgia until I found a site comparing fibromyalgia and Lyme disease.  I asked the doctor if I could possibly have Lyme. I explained to him that 4 years ago I had a questianble bite and around the same time I had about 1 week of heavy night sweats. I was also very fatigued and lost lots of hair.  Since then I still have periods of lots of hair loss and fatigue..Muscles hurt when I try to work out. I have lots of twitching in legs, my right ear has begun to bother me.  Does this sound like lyme, lupus or fibromyalgia? Any advice. thanks!

[Chulita100]

Thank you so much for informing me about the magnesium, I will start taking it until I see the doctor again, my appointment is next month Feb. 5th.. Glad you two are working on getting Lyme resolved.  It is the first time i come on this forum, I'm 34 years old and feel 70 at times, thanks for letting me vent.  It is incredible the amount of people that don't understand that there could be something wrong with me and label me as "lazy", can't wait, and really hope to feel normal again, so I can feel energetic again.  The "heart palpitation" type of sound on my ear is getting more annoying by the day.  Anyway I hope I do not have lupus, I understand that Lyme is likely to be curable and Lupus is not. Somewhere I read that flaxseed oil is good for body twitching, but haven't tried that yet, just a thought...

[holdingon2hope]

I have experienced all the symptoms you described since aquiring Lyme disease. I would suggest getting in to see a LLMD to confirm and begin treatment.

[JackieCalifornia]

It's certainly worth getting checked out.  If your current MD isn't tuned in to Lyme and its co-infections, then I would strongly consider getting to an LLMD and getting properly tested.

When I had Lyme and babesia, my hair didn't fall out.  I got treated, and then got another tick bite, which gave me Lyme and a different coinfection.  It was only with the second infection that about half my hair fell out.  It's growing back now quite nicely, tho my LLMD didn't confirm my deduction that the new bite and the hair loss were connected -- but I still think they were.

I have read that Lyme bacteria use up magnesium (Mg) stores in your body, and that's what causes the twitching (in me, my eyelid, calf and eventually heart (!) were twitching).  I supplement with Mg now and it helps a lot.  

I have read that blood tests measure the Mg in your blood, but Mg is stored in your cells, so that the cellular 'warehouse'  can be empty because it's been shipping all its stores of Mg out to the bloodstream.  Therefore you can be wobbling on the edge of Mg deficiency, but the blood tests can look pretty normal.)  I was warned by an MD not to take too much Mg, because it is hard on the kidneys.  So now I stick with the minimum daily requirement and do not exceed it.  Check with your MD to be on the safe side -- I'm not medically trained and wouldn't want to lead you wrong.