Aa
FINALLY... MY IGENEX RESULTS!!!
I Finally got em!! Here they are:
IgM
18 -
22 -
**23-25 -
28 -
30 +
**31 +++
**34 IND
**39 -
**41 IND
45 -
58 -
66 -
73 -
**83-93 IND
And IgG are: IGENEX POSITIVE
18 -
22 -
**23-25 -
28 -
30 +
**31 ++++
**34 -
**39 -
**41 ++
45 -
58 -
66 -
73 -
**83-93 -
I can't believe this!!! I am IgG POSITIVE!!!!
I am in shock!! I'm also upset that my dr didn't tell me this yesterday when I talked to her. She said my results were Identical to the QUEST which only showed IgG 30 and IgG 41 POS.
So does this mean I really have lyme??? Also I see that on the IgM one all my +'s and IND are on double starred bands, but overall it says I'm both CDC and Igenex NEG.
What do you all think?????
IgM
18 -
22 -
**23-25 -
28 -
30 +
**31 +++
**34 IND
**39 -
**41 IND
45 -
58 -
66 -
73 -
**83-93 IND
And IgG are: IGENEX POSITIVE
18 -
22 -
**23-25 -
28 -
30 +
**31 ++++
**34 -
**39 -
**41 ++
45 -
58 -
66 -
73 -
**83-93 -
I can't believe this!!! I am IgG POSITIVE!!!!
I am in shock!! I'm also upset that my dr didn't tell me this yesterday when I talked to her. She said my results were Identical to the QUEST which only showed IgG 30 and IgG 41 POS.
So does this mean I really have lyme??? Also I see that on the IgM one all my +'s and IND are on double starred bands, but overall it says I'm both CDC and Igenex NEG.
What do you all think?????
Congratulations! Having a diagnosis is indeed the first step toward getting well.
Others here are better at parsing the +++s so I'll leave it to them, but as a matter of strategy, since you still need your military MD, you might guide her to the ILADS website and especially Burrascano's treatise posted there as "something interesting that helps explain the controversies in this area".
By acknowledging that there are differences of opinion, it might make it easier for her to indulge your viewpoint and not get her in trouble with her superiors. I have found that it is difficult to keep a regular dr while I'm being treated with long term abx, because non-LLMDs are uncomfortable appearing to endorse or tolerate a non-CDC treatment regimen. It's their professional right to do so, but it leaves me and others in the lurch when I need something besides an LLMD. Therefore it would be very good to stay on friendly terms with her, since she seems to be trying at least. So I'd suggest making it easy for her to continue to see you by acknowledging that it's a difficult and developing area of medicine. (I was thinking last night about her flustered manner in your last appointment -- she's clearly uncomfortable, probably for a lot of reasons. That's the dirty side of Lyme treatment -- drs who are afraid to think out of the box.)
I'd try the LLMD/rheumy if you can afford it -- then if he's not what you need, then how soon till you are stateside? Planning ahead is important because of often lengthy delays in getting an initial appointment with LLMDs here.
Your persistence is paying off. Hang in there, skarey!
Others here are better at parsing the +++s so I'll leave it to them, but as a matter of strategy, since you still need your military MD, you might guide her to the ILADS website and especially Burrascano's treatise posted there as "something interesting that helps explain the controversies in this area".
By acknowledging that there are differences of opinion, it might make it easier for her to indulge your viewpoint and not get her in trouble with her superiors. I have found that it is difficult to keep a regular dr while I'm being treated with long term abx, because non-LLMDs are uncomfortable appearing to endorse or tolerate a non-CDC treatment regimen. It's their professional right to do so, but it leaves me and others in the lurch when I need something besides an LLMD. Therefore it would be very good to stay on friendly terms with her, since she seems to be trying at least. So I'd suggest making it easy for her to continue to see you by acknowledging that it's a difficult and developing area of medicine. (I was thinking last night about her flustered manner in your last appointment -- she's clearly uncomfortable, probably for a lot of reasons. That's the dirty side of Lyme treatment -- drs who are afraid to think out of the box.)
I'd try the LLMD/rheumy if you can afford it -- then if he's not what you need, then how soon till you are stateside? Planning ahead is important because of often lengthy delays in getting an initial appointment with LLMDs here.
Your persistence is paying off. Hang in there, skarey!
So can I call myself a POS "lymie"??? I don't know what to think???!!!! I want to be excited that I have an answer to my problems... but I'm not sure yet? Can I be happy about this????
I don't know where to go with this. The recommended LLMD here in ENGLAND isn't taking new patients. I tried calling today but no one answered. There is another Rheum. who has a special interest in Lyme who I think is where I'll go next.
Should I even bother with my GP with this? I was thinking of printing some stuff off and taking it to her, but I don't want to offend her or make her mad. But it's clear that she doesn't know much about lyme and interpreting the results.
I still need her... It also stinks cause if I see a lyme dr here, the insurance won't cover it and I have to pay in GBP (british pounds) which is going to break us!
Oh well!! I'm just happy that I see (possibly) a light at the end of the tunnel.... I hope!!
Gosh...
I don't know where to go with this. The recommended LLMD here in ENGLAND isn't taking new patients. I tried calling today but no one answered. There is another Rheum. who has a special interest in Lyme who I think is where I'll go next.
Should I even bother with my GP with this? I was thinking of printing some stuff off and taking it to her, but I don't want to offend her or make her mad. But it's clear that she doesn't know much about lyme and interpreting the results.
I still need her... It also stinks cause if I see a lyme dr here, the insurance won't cover it and I have to pay in GBP (british pounds) which is going to break us!
Oh well!! I'm just happy that I see (possibly) a light at the end of the tunnel.... I hope!!
Gosh...
I'm no doctor but it looks positive to me. Your doctor may tell you it's past infection but it does not matter. A positive IgG or IgM can mean you have active lyme. Your doctor may not know this. So you may want to print some info about this and show it to her. You may want to read about testing at drcharlescrist.com. He explains it very well.
Holy cow, okay, let me think....
I just pulled my results and it specifically says the presence of one or more starred bands with positive or IND result can be clinically significant.
Also, when you look at C. Brenner: Explanation of the Western Blot (can google it), it says "the first band to show up on a Lyme disease patient's IgM blot is usually the one at 41 kDa" You are indetermnate. That still means something if you ask me!
It also says "certain other bands are considered highly specific for Bb -- the aforementioned
31 kDa band, for example, or
34 (OspB) or
39 or OspC (anywhere between 22 and 25).
Also thought to be species-specific are
The 83 and
94 kDa bands.
Skarey, I think we have something here. I'm at work and have to run, but I will check back at other posts. Celebrate! Don't worry about the doc, b/c you now have your results. You just need to celebrate that you have some evidence right now. Most docs are going to blow you off, so be prepared. But the good news is, there is evidence in this test that you have good reason to suspect Lyme (in my unprofessional and hurried opinion). Now, you just have to find the right doc to help you out. Next, you need a co-infections blood panel done - again in my non-medical doc opinion:) Let's see what the others have to say before I put all our eggs in one basket.....
I just pulled my results and it specifically says the presence of one or more starred bands with positive or IND result can be clinically significant.
Also, when you look at C. Brenner: Explanation of the Western Blot (can google it), it says "the first band to show up on a Lyme disease patient's IgM blot is usually the one at 41 kDa" You are indetermnate. That still means something if you ask me!
It also says "certain other bands are considered highly specific for Bb -- the aforementioned
31 kDa band, for example, or
34 (OspB) or
39 or OspC (anywhere between 22 and 25).
Also thought to be species-specific are
The 83 and
94 kDa bands.
Skarey, I think we have something here. I'm at work and have to run, but I will check back at other posts. Celebrate! Don't worry about the doc, b/c you now have your results. You just need to celebrate that you have some evidence right now. Most docs are going to blow you off, so be prepared. But the good news is, there is evidence in this test that you have good reason to suspect Lyme (in my unprofessional and hurried opinion). Now, you just have to find the right doc to help you out. Next, you need a co-infections blood panel done - again in my non-medical doc opinion:) Let's see what the others have to say before I put all our eggs in one basket.....
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