This forum is for questions and support regarding What Causes Lyme Disease, Diagnosing Lyme Disease, Joint Pain issues, Living with Lyme Disease, Nervous System issues, Prevention, Risk Factors, Skin Disorders, Symptoms and Treatments.
I had a mildly positive Western blot (can't locate the lab results at the moment) almost a year after I got sick, and then went to an LLMD for follow up, after the doc who ran the first test said I wasn't sick enough to actually have Lyme, and never mind the positive test result.
The LLMD's tests were
-- POSITIVE for babesia
-- negative for bartonella and Ehrlichiosis
-- NEGATIVE for Lyme, under CDC/NYC standards, but POSITIVE on the following Lyme-specific bands:
IGM (appears soon after infection):
band 18 (+) ==> highly specific to Lyme
band 23-25 (indeterminate = IND) ==> specific to Lyme
band 30 (+) ==> unknown but may be Lyme
band 41 (IND) ==> indicates a spirochete
(maybe Lyme, maybe not)
IGG (appears later after infection):
band 41 (+++) ==> indicates a spirochete
(maybe Lyme, maybe not)
band 58 (+) ==> unknown, but may be Lyme
My LLMD said he was surprised my tests were so positive, since I had already been ill for close to a year. fwiw. everybody's different for a whole lot of reasons.
I tested negative on all 3 (4)'tests according to the CDC and IDSA.
IFA (an alternative screening test to the ELISA),
CSF antibody test,
IgM Western Blot (CDC Negative / IGeneX positive),
IgG Western Blot (both CDC & IGeneX negative).
I was "Not Negative" (halfway between positive and negative) on the Bartonella antibody test and negative on the Bartonella FISH test. My LLMD diagnosed me with Bartonella based on these results.
I had to go out of network to the LLMD where I was diagnosed and treated. Fortunately for me, my GP believes me and the diagnosis and is supporting my treatment.
I had had Lyme for 6 years when I was finally diagnosed but only had chronic symptoms for the previous 16 months. The IDSA says the IgM is unreliable and therefore irrelevant in someone sick over a month and to ignore a positive for such patients. Because of this, I don't think any ID doc, Rheumie, or Neuro in CA would have diagnosed me with those results. None of the doctors I went to had even seen a case of neuro Lyme, let alone knew anything about the testing.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.