Aa
Igenex Results....
OK- so this is what Iearned today...
Active Lyme test did not back not 100% positive, there was one positive band and 3 indeterminates. My doc says this is like saying your are half pregnant so she considers those postiive too b/c it is abnormal and you would not see that in a "normal" human beings blood work. I also tested positive for another tick born bacteria called E. chaffeensis. For this I was very positive. So I am starting tonight on 2 different antibiotics to fight the different types of bacteria.
She did recommend magnesium for the twitches. I'm taking Doxy & Ceftin, 2xs day- breakfast and dinner.
She would like me to be re-tested for Lyme in 2 weeks. I'll see her again in 4 weeks for follow-up. Kind of hoping for a herx b/c that will mean that we are probably treating the right disease. Without a herx, my llmd said she'd question the diagnosis.
Wish me luck!
I shall keep you posted...
Renee
Active Lyme test did not back not 100% positive, there was one positive band and 3 indeterminates. My doc says this is like saying your are half pregnant so she considers those postiive too b/c it is abnormal and you would not see that in a "normal" human beings blood work. I also tested positive for another tick born bacteria called E. chaffeensis. For this I was very positive. So I am starting tonight on 2 different antibiotics to fight the different types of bacteria.
She did recommend magnesium for the twitches. I'm taking Doxy & Ceftin, 2xs day- breakfast and dinner.
She would like me to be re-tested for Lyme in 2 weeks. I'll see her again in 4 weeks for follow-up. Kind of hoping for a herx b/c that will mean that we are probably treating the right disease. Without a herx, my llmd said she'd question the diagnosis.
Wish me luck!
I shall keep you posted...
Renee
I am so glad that your Dr. believed in the one positive band!! I had the bullseye rash disseminated over my entire body but because I only had one positive band at the time my doctor told me it was an allergic reaction and delayed antibiotic treatment. I now suffer from many chronic neurologic symptoms that I attribute to the delay in treatment.I hope your dr. can help you avoid these symptoms.
Mg malate is what I take --- I started out with a different kind of Mg (asporotate?) but then read that malate is esp. easy for the body to use. I have no idea, but the malate seems to be working fine. I got mine online too, from one of those vitamin websites. I don't know about the other Mg you got, but I have never read that there is a 'bad' formulation, just some that are supposedly easier to absorb. And, it may be that people react differently to different formulations. A chemist could probably explain it, but I don't know that we have one posting here.
Never heard of BurBur! Will look into it.
Hang in there --
Never heard of BurBur! Will look into it.
Hang in there --
I hope you feel better soon too!
So yesterday the twtiching was my main problem, today I have tingling and pain in my hands... it's always something though... I do see mto get more tired than usual. I used to be a marathon shopper. Now one store and I'm done.
I ordered the Magnesium malate this morning from a company my llmd recommended- NutraMedix.com. LLMD also recommended have something called BurBur on hand in case of Herxing. It's a liquid. Ordered that on this website too.
I found chelated magnesium at my local health food store, not sure what the difference is? Could I take this one until the malate one arrives?
So yesterday the twtiching was my main problem, today I have tingling and pain in my hands... it's always something though... I do see mto get more tired than usual. I used to be a marathon shopper. Now one store and I'm done.
I ordered the Magnesium malate this morning from a company my llmd recommended- NutraMedix.com. LLMD also recommended have something called BurBur on hand in case of Herxing. It's a liquid. Ordered that on this website too.
I found chelated magnesium at my local health food store, not sure what the difference is? Could I take this one until the malate one arrives?
As I've heard the histories of various people here over the past year or so, I am amazed at the wide variety of symptoms and severity that different people have. Partly I think that's because of co-infections, and partly because different people react differently to infections.
I know someone who had the same diagnosis I did -- I was totally wiped out, but he didn't even think he was sick, till he got tested, and it turned out the 'little bit of tiredness' he had was due to exactly the same infections I had. Only after treatment did he realize how poorly he had been feeling.
"Annoying but not devastating", as you describe your situation, is about where I am now. I can't work full time, but I manage to get by. So I really need to get really well.
Hope you get better fast and soon.
I know someone who had the same diagnosis I did -- I was totally wiped out, but he didn't even think he was sick, till he got tested, and it turned out the 'little bit of tiredness' he had was due to exactly the same infections I had. Only after treatment did he realize how poorly he had been feeling.
"Annoying but not devastating", as you describe your situation, is about where I am now. I can't work full time, but I manage to get by. So I really need to get really well.
Hope you get better fast and soon.
Good luck Jackie! I don't think you could ever get better w/o taking Antibiotics though! I will from now on always been inspecting my skin but I have psoriasis so it may be hard for me to spot!!!!!
To date, I think I've been lucky. My symptoms have been annoying but not devestating. That's sometimes why I wonder if it is really Lyme though I've read that symptoms can be subtle. A month ago my symptoms were worse actually. On christmas I had terrible neck tingling stuff going on. It was awful. I still have symptoms- lots of twitching and burning pains crop up now and again each day but not as severe as before. So sometimes I doubt it's lyme . We'll see....
I wonder though if it is could be b/c I caught it somewhat early (compared to many on here who went yrs with it). We think I got it in Nantucket late sept. It's been 3 months since my symtpoms started. Hard to say....
To date, I think I've been lucky. My symptoms have been annoying but not devestating. That's sometimes why I wonder if it is really Lyme though I've read that symptoms can be subtle. A month ago my symptoms were worse actually. On christmas I had terrible neck tingling stuff going on. It was awful. I still have symptoms- lots of twitching and burning pains crop up now and again each day but not as severe as before. So sometimes I doubt it's lyme . We'll see....
I wonder though if it is could be b/c I caught it somewhat early (compared to many on here who went yrs with it). We think I got it in Nantucket late sept. It's been 3 months since my symtpoms started. Hard to say....
My doc says she thinks the antibiotics will in fact make the lyme more active and will likely show more in a couple weeks in my blood test. I'll let you know!
It's interesting that you came up IND with having an actual bulls eye!
It's interesting that you came up IND with having an actual bulls eye!
I am with Mrs_k75 about Herxing -- I was very ill when first on abx, and I never really Herxed very much. I had been afraid of the side effects of abx and so delayed beginning treatment, but actually the side effects of abx were not nearly as bad as the disease! But everyone is different.
I'm about to start abx again, since I got another tick bite and a couple of new infections ... so I'm with you! Sigh!!
I'm about to start abx again, since I got another tick bite and a couple of new infections ... so I'm with you! Sigh!!
Jackie-
Not sure if this is what you need. She mentioned this is for current "active" Lyme disease.
23-25 kDa one +
39 kDa- IND
41 kDA- IND
83-93 kDa- IND
I was positive on the E. chaffeensis IgM at 1:320 & E. chaffeensis IgG= 1:80
Yes, I'm taking acidopholus capsules.
Not sure if this is what you need. She mentioned this is for current "active" Lyme disease.
23-25 kDa one +
39 kDa- IND
41 kDA- IND
83-93 kDa- IND
I was positive on the E. chaffeensis IgM at 1:320 & E. chaffeensis IgG= 1:80
Yes, I'm taking acidopholus capsules.
It sounds like your doctor is doing very well for you. My LLMD pretty much regards IND as having at least my case because I had the bullseye rash. I went to antibiotics and tested again 3 months later and I am now CDC positive whereas before I wasn't. I didn't even herx that much. It will interesting to see what happens as the antibiotics like in my case made my Lyme more active.
Do you have copies of the test results? If so, would you post which 'bands' on the Lyme test were positive (+) and how many + marks for each, and any which are marked IND (meaning indeterminate). Some bands are more Lyme-related than others.
Sounds like a good beginning with your MD! Are you taking probiotics to avoid killing the good bacteria in your system and getting diarrhea?
Sounds like a good beginning with your MD! Are you taking probiotics to avoid killing the good bacteria in your system and getting diarrhea?
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