Lymes/Neuroborreliosis

[RoseHK]

  I was diagnosed as having Lymes disease and was treated with a course of antibiotics.  The doctors placed a 'picc' line in my upper right arm and thats how I recieved the antibiotic 'injections'.  

It has been a year or so since and I was told by my doctor that I have 'end-stage' Lymes.  It's has 'spread' to my brain.  I am suffering debilitating effects from this, does anyone know of a doctor that may be able to help???  

[patsy10]

I am very sorry to hear of your illness and suffering.  I have heard of chronic or late-stage lyme but not end-stage. Where is your town located in the state?  I know of a couple of doctors in the western area.  If you are near there let me know and I will PM you some info.

[gorbybelle]

I have not heard of 'end stage' lyme either.  How long were you on antibiotics for ?

perhaps you could describe the 'debilitating effects'   -  maybe you need more treatment - as 'wonko' suggested - you should see an LLMD. - there are other infections that often go along with lyme.

[wonko]

I have never heard of "end-stage" Lyme disease.  I've heard of "late stage," which to my understanding means that it has spread to many systems of the body.

Is the doctor who told you about "end stage" the same doctor who treated you with IV antibiotics?  For how long were you treated?  Were Lyme co-infections ruled out?

Many patients chose to see a "Lyme Literate" physician, or "LLMD."  You could start looking for one by doing an internet search of "LLMD" and your location, or more in general, try an internet search "how to find an LLMD."

I've always heard that the later it is, the harder it is to treat.  But I've never heard or read that it is too late to treat.