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My Lyme test results. False positive???

Hello. My name is Sean and last week I was diagnosed with Lyme from a naturopathic doctor but NOT a LLMD. I was prescribed antibiotics that I have not started yet because I want to be ABSOLUTELY sure they are necessary before putting any poison into my body. Also, I have an appointment with an LLMD in 3 weeks that I MAY end up canceling because of its high cost of $700 per appt. Again, before I spend that much, I want to be ABSOLUTELY sure I have the disease.

Possible useful info:
-I was diagnosed with herpes simplex virus II last year.
-I was diagnosed with Candida yeast overgrowth at the same time as Lyme
-symptoms include: massive fatigue, brain fog, attention deficit, joint pain, fall asleep fine but ALWAYS wake up after exactly 6 hours of sleep. These have all been going on for about a year now.

Attached is a PDF of my Igenex lyme test results. I would love it if you guys could help me out here. Sort of in a panic. Thank you in advance.
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Avatar universal
LOL comrade, thanks you for your very long-winded answer, however, you are putting many words into my mouth. I don't resent MDs at all and I actually DO have a nice house and car myself. :) Your comment in that regard was very strange to say the least.
I do have a very clear idea of doctor's fees and overhead, having a sibling who is an Ortho surgeon with a spouse who's an internist.
NDs also go through the extensive medical training of at the very least, 4 years of a university medical program. Not a whole lot different than MDs, with ALL the same overhead expenses and other issues that you mentioned, yet their fees compared to that of a LLMD are about half. Your long-winded rant still does not justify to me the exorbitant fees that LLMDs charge, but thanks anyway for trying. What I'm eagerly awaiting is your claim (proof) please that chronic Lyme disease can be cured. Thanks in advance!
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Avatar universal
You say:  

--- "There are NO MDs in Canada who treat for Chronic Lyme disease."  

Well, that pretty much sums up the problem right there.  If you don't have docs who know how to treat a disease, the disease will not be treated.  Full stop.

--- "Our 2 choices are to use a LLND, (who in most provinces cannot treat with long term antibiotics)"

That is a problem caused by your government, not by the Lyme specialists.

-- "... or go to the US where LLMDs charge huge 'consultation' fees, and then steep charges for mandatory visits and phone consultations every few months."

That is called 'practicing medicine':  would you expect your car mechanic not to charge you for rebuilding your transmission?

-- "There is no justified reason for their exorbitant fees"

Do you know how expensive it is to rent and maintain an office, hire a staff, pay taxes, keep up to date on medical advances by attending seminars and reading extensively?  All that takes time away from seeing clients, and it takes money to make it all happen.  A medical practice is a business like any other:  it is costly to run.  The money to run the business comes from payments by the patient and the patient's insurance, if any.

To run a medical practice, it is necessary to have a business license, to carry insurance, to pay rent on the office space, to pay the utility bills, to pay the staff, to stay up to date through continuing education programs and reading (all of which cost money and take time away from seeing patients).

And then there are taxes:  like any business, the net income of a medical practice (meaning incoming cash minus expenses) is taxable, so it's not all gravy by any means.

Do you resent MDs for having a nice house and a nice car, maybe?  Why is that?  Have they not worked hard enough for it -- 4 years of college, 4 years of medical school, then possible additional training as an intern or resident, as well as staying up to date on developments in the field?

Being an MD is a very difficult job, and an MD can be sued big time for failing to adhere to standards set forth by the medical community.  When you yourself go to work each day, do you do so knowing that if you mess up, you can be sued and lose everything you have worked for?

Think about it, and appreciate that MDs put years into their training and put their earnings and assets on the line if something goes wrong.  It takes courage to risk all that, and if MDs were not willing to do so, we would all be the worse for it.
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Avatar universal
... and if you don't buy that, here's another view:  your doc likely works out of an office.  

-- Rent for a medical office is not cheap, esp. in a good neighborhood and in a building that is in reasonable shape so that the patients feel comfortable getting there and being there.  Do you know how much the doc's rent is?  

-- The doc likely has (at a minimum) a receptionist/bookkeeper and at least one nurse.  Those salaries, and the employer's portion of certain employment taxes, have to be paid for by the doc ... meaning he has to get enough money coming in from the patients to cover those expenses.  

-- The doc does not just show up and do doctoring all day long.  The doc has to review test results, communicate with other docs about shared patients, communicate with patients who are not in the office but need to talk with the doc, stay up to date on current events in medicine, review the test results of all the patients before seeing the patient, manage the office at some level (even if the doc has an office manager), and everything else that goes into running a business.

-- The doc has taxes to pay:  in addition to paying the staff salaries and benefits (likely including a chunk of the cost of health insurance for the employees and their dependents), the doc has to pay the employer's portion of the employees' employment taxes, and the doc also has to pay income taxes on the net income the doc himself receives after expenses of running the business and having employees.

-- The doc has to pay insurance premiums for the office and its contents and to pay the employer's portion of government-required employment taxes (these are not the same as income taxes).  And did I mention malpractice insurance?

--  The doc has to spend time studying to stay current on developments in medicine, by reading and attending seminars.  None of that brings in any cash, and indeed costs money to subscribe to journals and to attend and travel to seminars as needed.  This creates downtime when the doc cannot be seeing patients -- and remember:  the needs of patients are the source of income that keeps the doc's office in business.

-- The doc has to oversee the work of the office manager and troubleshoot any personnel problems with the office manager, which is not chargeable to anyone, in addition to the salaries and benefits and employer's portion of all employment taxes.  The doc could get rid of the office manager, but then the doc would have to take over ALL those chores directly.
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So ... did you really think the doc takes your check and goes out to party?  Rent, employees, taxes, down time to keep up with developments in the medical field ... all of these are utterly necessary and do not come out of thin air.

If you don't like that set up, then sign up with a plan like Kaiser.  They may be more adept at keeping overhead costs down, but when you have an orphan ailment like Lyme, the most important thing is having a doc who understands it.  

An old saying:  there ain't no such thing as a free lunch.

And what is more important than your health, after all?
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Avatar universal
"There is no justified reason for their exorbitant fees" -- it's called the free market.  But somehow I don't think you'd care much for the medical care in ... say, the UK, much less the old USSR.  I personally know people in England who CANNOT get treatment for simple things done routinely over here.  The govt-run medical authority in the UK is a nightmare.  Is that really what you want?

Your LLND can charge less if they want to, just like Joe's Burger Joint down the street can charge less than McDonald's.  If you like Joe's burgers, then eat there and pay less.  If you want McDonald's and are willing to spend the money, then do that.  It's called freedom.  

The old USSR controlled EVERYthing about life in Russia, and gee, that was successful, wasn't it?  Not.

It's your choice to see someone who charges less, and my choice to see someone who charges more because I prefer his/her services.  Choice:  it's up to you, but to demand that your mechanic, your shoe store, and your doc all pay what you think they OUGHT to pay is just not going to work, Comrade.  
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Avatar universal
Jackie, please do share the "evidence" that chronic Lyme is curable! Site your sources please. Acute Lyme disease certainly is curable, if one is lucky enough to catch it in time! The majority of people do not, and many go on to suffer the Chronic stage of which, at present time there is no cure. One can reach "remission", where your immune system can once again function and keep the spirochetes under control or in a dormant state.  My well-known LLMD (who developed Chronic Lyme herself) and my LLND, along with several Facebook Lyme groups and the scientists/microbiologists, and MDs studying and treating for chronic Lyme, all say that there's no cure. It is put in to remission, and can come back when a major life stressor occurs, ( but no evidence of a cure yet).
As far as the cost of LLMDs, it's MUCH less costly to be treated by a LLND....who are also on "the cutting edge in medicine and other important areas". So why can they charge less than an MD? There are NO MDs in Canada who treat for Chronic Lyme disease. Our 2 choices are to use a LLND, (who in most provinces cannot treat with long term antibiotics) or go to the US where LLMDs charge huge "consultation" fees, and then steep charges for mandatory visits and phone consultations every few months. There is no justified reason for their exorbitant fees, and most of them are now covered by their state law to be able to provide long term antibiotics and care. :)
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Avatar universal
"Unfortunately LLMDs fees are quite steep, I'm not sure why they have to be that high."

It's a free-market economy in the US.  I understand that Canada has nationalized all or much of its medical and health system, which works well when there are no differences of opinion within the medical community, and all diagnoses and treatments are straightforward and wholly in accord with what the top people in medical field say they shall be.  

That works well in a static environment, where nothing new ever arises or needs to be worked through by MDs who try different diagnostic and treatment approaches:  if all wisdom was already clear and proven, then everyone would be diagnosed and treated in the most effective and most efficient manner.  (Sounds good!  Sign me up!)  

That works well among humans who all agree on all the aspects of illness all the time, but unfortunately Mother Nature didn't sign on to be a member of that club:  she enjoys creating new medical miseries that need new and creative diagnostic and treatment standards.  

To have a top-down government determine what a patient's diagnosis and treatment should be can easily overlook new and emerging diseases and treatments.  Lack of diversity would doom plant and animal life on Earth, and the same is true imo of all areas of life on our planet.

I am certain Canadian MDs are good, but they are only human too -- and they are operating within the 'received wisdom' of those at the top of the heap in your government-run medical structure.  Interestingly, the US 'mainstream medicine' approach to the newly recognized infection called 'Lyme disease' has (until fairly recently) been a huge mess in its approach  to discovery, study, testing and treatment for Lyme disease:  this split in the US medical community is because the IDSA and the US govt are hand-in-glove that Lyme is rare, hard to get and easy to cure.  (Not so, it turns out.)

The lack of open-minded back-and-forth among the researchers has severely hampered the US medical community in recognizing, understanding, and acting against Lyme, and that is not imo good medicine.  A bureaucracy is not a good place to create new things.

By comparison, the Canadian system is well run, from what I hear, and the costs are nationalized and spread among everyone, but at what cost to keeping up with Mother Nature's constant evolution in the areas of disease?  
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Back to your statement above:  "Unfortunately [US] LLMDs fees are quite steep, I'm not sure why they have to be that high."  In exchange for the ability to study, diagnosis and create new treatments for their patients, US MDs have the freedom to try new things in order to fight old and new ailments.  The fees do not 'have to be that high' -- but being on the cutting edge in medicine and other important areas is often expensive, and in a good cause.  

That's why US medical care is expensive:  research costs money to keep moving ahead in the areas of illness, diagnosis and treatment, but it works pretty well, which is why those with sufficient funds and a serious ailment often come to the US for diagnosis and treatment.

To each his own:  our system is messy, but it keeps moving along, trying to keep up with Mother Nature.
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Avatar universal
Stated above:  "...at present there is no cure for chronic Lyme disease..."

A 'chronic' disease is one which cannot be cured, but Lyme is curable.  It may be that some people have a more difficult time eradicating the Lyme bacteria, but there is no scientific evidence I am aware of that confirms that Lyme cannot be cured at any stage.

For example, I can understand calling allergies 'chronic', because they are not bacterial infections and cannot be eradicated, but only suppressed.  But Lyme, which is a bacterial infection, can indeed be eradicated (aka 'cured'):  perhaps it takes longer in some people than others, depending on their immune status, co-infections, and other health issues, and perhaps there are some people who never do clear Lyme for reasons unclear.  However, to state flatly that *Lyme itself* is incurable is simply contrary to the evidence.
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Avatar universal
I'm doing a natural Lyme protocol; Cowden Protocol. It incorporates antimicrobials, supplements which target the pleomorphic aspects of the bacteria, Magnesium as those with Lyme are low on this, Serrapeptase for the vasculitis and biofilm breakdown, and other detox herbs,etc. It's easier on the gut biodome than pharmaceutical antibiotics and easy schedule to follow. It's presently showing an 85% success rate in helping one reach remission (at present there is no cure for chronic Lyme disease).  One must also follow very clean eating and detoxing (Epsom Salt baths and plenty of lemon water). Probiotics are recommended along with a low carb diet, basically eliminating sugar (feeds bacteria and other protozoans). Will keep you posted on how it goes. It's a 9 month protocol. There is a Financial Assistance Program offered through Nutramedix, the supplier. Anyone basically can qualify, which allows you to do the protocol for $100/month plus shipping (and customs if you're in Canada).
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1763947 tn?1334055319
If you absolutely don't want to take abx, you can do a natural Lyme protocol. You definetley have Lyme and with your candida the abx can be difficult to take.

I did the abx route for 2 years, unfortunately it didn't work for me. I have Lyme and 3 co-infections. In a few weeks,  I will be going to an integrative medical LLMD and using natural abx. He is an ILADS trained LLMD so it's still important to go to a Dr who knows about Lyme.

Good luck!
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Avatar universal
Band 31 is very Lyme specific (it's the outer surface protein of the Bb spirochete) and so specific that the Lyme vaccine they used was from this Osp.
Your symptoms could definitely be Lyme, and Candida is a BIG issue with chronic Lyme disease as is the Herpes Simplex, which gets reactivated. I'm fighting both those issues big time right now during treatment.
I agree with Jackie, to see a doctor (whether MD or ND) who is familiar with Lyme and its treatment. Unfortunately LLMDs fees are quite steep, I'm not sure why they have to be that high. If you can find a good LLND, their fees are usually much more reasonable. I'm in Canada, so speaking from experience here with LLNDs. Good luck!
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Avatar universal
Welcome to MedHelp Lyme --

-- "I was diagnosed with Lyme from a naturopathic doctor but NOT a LLMD."  If s/he is a good doc, doesn't have to be an LLMD.  Being an LLMD is more a state of mind than anything -- it's not a title or a degree -- just shorthand for docs who take Lyme more seriously.

-- "I was prescribed antibiotics that I have not started yet because I want to be ABSOLUTELY sure they are necessary before putting any poison into my body."  And if you've got Lyme, you've got seriously bad bacteria in your body.  And antibiotics are not classified as poisons:  instead abx kill things that make you sick.

-- "Also, I have an appointment with an LLMD in 3 weeks that I MAY end up canceling because of its high cost of $700 per appt. Again, before I spend that much, I want to be ABSOLUTELY sure I have the disease."  Well, let's see, you've got positive tests and you've got a boatload of Lyme symptoms, so .... yeah, I'd go see the doc.  Chicken soup won't kick Lyme.

"Possible useful info: ... symptoms include: massive fatigue, brain fog, attention deficit, joint pain, fall asleep fine but ALWAYS wake up after exactly 6 hours of sleep. These have all been going on for about a year now."  Dunno about the sleep issues, but fatigue and brain fog are pretty high up on the list of Lyme symptoms.  Why would you *not* go get this checked out?

-- "Attached is a PDF of my Igenex lyme test results. I would love it if you guys could help me out here. Sort of in a panic."  Being in a panic is a common sign of Lyme and possible co-infections.  

If you don't have Lyme or any of its co-infections, a Lyme doc will be the first to tell you so.  I'd go see the doc.  Lyme doesn't just go away by itself.
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Avatar universal
Sorry for the technical difficulties. Ignore my last comment with thee separate pages. I wish I could delete posts.

Here is the complete PDF:

https://www.dropbox.com/s/ugit6s6gz7qpsgp/filename-1-3.pdf?dl=0
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Avatar universal
page 2:

https://www.dropbox.com/s/hcy3jdpc7h2mcc8/lyme2.jpg?dl=0

page 3:

https://www.dropbox.com/s/2k7zbww75999i62/lyme3.jpg?dl=0

page 4:

https://www.dropbox.com/s/thzx1oq09bf4zgw/lyme4.jpg?dl=0

page 5:

https://www.dropbox.com/s/0s5pn425suy4xun/lyme5.jpg?dl=0


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