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5248641 tn?1367587247

Nueropathy and Lyme or MS

I have been tested by a critical care assessment and was told I was showing neurpathy in left arm and leg. Is this typical for Lyme or MS? I am so confused with all my symptoms. Both legs hurt, twitch, muscles roll. I get leg weakness and it doesnt affect my feet except buzzing in the left foot that changes form day to day. HELP??? My symptoms are different eveyday only constant is leg tenderness in the thighs and twitches in my calves.  Dr.s are so confusing and dont know whats going on. I have had a ton of testing. Neuro says clear and rheumy says clear excpet for and elevated RA test. LLMD says lyme. I just dont know anymore. Getting so tired of the symptoms, and worried...

Thanks Cyn
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5248641 tn?1367587247
Thanks for all your support, I also get shortness of breath These day and buzzing in left foot from time to time. I am going to start the salt c protocol. Has anyone done it before? I've also been doing acupuncture. Which seems to help a little. I'll give you my exact test results once I find them. Brain doesn't always function either.
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1211030 tn?1381137342
I am still enjoying remission, hopefully I can avoid reinfection this summer, though thats highly doubtful.
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1094370 tn?1317134825
Seriously.....   There are two separate articles from the Lyme Disease association today showing that ticks tested positive for lyme in Southern California (where I grew up).  One was in my sister's local newspaper today too.

And these doctors say lyme doesn't exist in California....

I'm grumpy today!!!!!!!!!
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Avatar universal
How sad that a renowned and otherwise splendid medical center (UCSF, short for the University of California at San Francisco) is still using spinal taps to diagnose/rule out Lyme.

Sigh.
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1094370 tn?1317134825
I have to tell you that your symptoms VERY MUCH sound exactly like mine when I first developed symptoms after my gallbladder surgery.  I also had numbness in my face, feet and leg in addition to all you describe.\

I have lyme (dx by Igenex) and test positive time after time.  

Sounds like lyme to me for sure!

I was screened for MS at UCSF and despite having 20+ lesions on my brain, they say this isn't MS.  They say it's not lyme either though because my spinal tap did not show lyme but that is pretty typical I guess.  I have made improvements with ABX but it's a long journey.
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Avatar universal
How are you doing these day?  I remember the good news when you said you'd reached remission!  I am hoping you're still feeling good.
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