Please contact that doctor in Missouri.
I just got my tests back from Lyme and lupus everything came back negative. My vitamin D was very low and they started me on vitamins today does this sound like what it could be!
I have a appointment with my RM tomorrow morning. I am seeing him to get a battle of tests done which Lyme is one of them he is doing. I am going to talk to him and see if he has any expierience with Lyme. I also found a doctor that researches and treats Lyme in Missouri and will be calling after my appoint. with this Dr. If I don't like what I hear. Thank you all for the help!
Friends of mine could not find doctors, not LLMD's but found doctors that did believe in Lyme enough to sign the IgeneX papers. So that is a last resort for you. Integrated medicine doctors or herbal/natural remedy doctors are some of those that you may find easier.
My LLMD was on vacation and I needed a doctor who knew of Lyme, I called an integrated medicine doctor, they were shocked when they asked for positive test results, and I had them and mine were even CDC positive. Of course its much better to find an LLMD but as a last resort there are other doctors to try.
It's been covered already, by other posters, but first you have to find a doctor who knows about Lyme, not just one who SAYS s/he knows about Lyme and there are way too many of those!
Then s/he will order the tests for you from Igenex. They aren't inexpensive! But no other lab does as good a job at testing for Lyme or co-infections.
Most LLMDs do not accept insurance but they WILL give you an invoice that you can then use as a claim for your insurance company. (So you may have to pay up-front at the time of appointment.)
How much will be reimbursed is strictly up to your insurance plan.
There is a very good LLMD in Missouri. Because there are some contentions about the advisability of posting a doctor's name here (by other members, not the web site) I will tell you how to find his name.
Just Google "Lyme doctor in Missouri" and his web site is at the top of the hits.
Keep us posted, please?
You could order the tests directly through IgeneX if you can find a doctor to draw the blood you could take the Lyme panel and also find out the Lyme co-infection tests. Most Lyme comes with co-infections which are another problem that most lymies have. An LLMD can diadgnose these Lyme -co-infection tests.
Thanks so much for your reply I have never felt so bad in my life. I will check out the info regarding thanks again!
Yes those symptoms sound quite familiar of Lyme. The testing for Lyme is tricky. It is not very accurate and false negatives are all to common. You would really need to find an LLMD. There are few and far between. Some of us have to travel, but it is worth it. Most of us get our answers through IGenex, a specialized lab dedicated to testing for Lyme associated diseases. However even that is not always foolproof. LLMDs often treat based on clinical presentation and do not rely on test results..
You can go to the ILADS site and click on contact. Then click on physician referral. You will get a list of the closest LLMDS to you.