Aa
got into opthamologist! gonna try for abx!
I got into an appt for tomorrow ophthamologist! Thankyou for suggesting it! &i Btw u guys are GREAT! THIS COMMUNITY IS AMAZING! &sooo helpful! Will the opthamologist actually be able to tell if the Lyme has affected my eyes? I hope so bc it most definitely has! What should expect or be prepared for? Like how do i get him to give me antibiotics?
Mine was not called a Neuro opthomologist but just a Retina Specialist. Since I am on antibiotics, he didn't get me more but I was getting intense pain in my eyes like there was glass in them. Also floaters and blurry vision.
My problem was extreme inflammation in addition to borderline optic neuropathy which can cause blindness. After trying different things I was helped with a steroid drop. Even though we are not suppose to have steroids , the amount and kind hasn't bothered me but has helped a great deal. It feels so much better! If I had not been on abx, he would have given it to me.
My problem was extreme inflammation in addition to borderline optic neuropathy which can cause blindness. After trying different things I was helped with a steroid drop. Even though we are not suppose to have steroids , the amount and kind hasn't bothered me but has helped a great deal. It feels so much better! If I had not been on abx, he would have given it to me.
I haven't read all the posts as I am on a hurry, so sorry if I'm being irrelevant, but here's what hte excellent ophthalmologist tested me for when I mentioned Lyme (It wa partly guided by my lyme doc who wanted the whole run of tests done).
test of peripheral vision (I had to stare into goggles focusing on an X and click a thingy every time I saw a little light flash in the periphery. It took ages and was an exhausting test)
test of colour vision (colourblindness) which lyme can cause
You do one eye at a time as usually you get one eye that stops seeing colours properly, they all go a bit grey, that means something serious but I cannot remember what. What I'm trying to say is, you usually get this problem in only one eye and you can detect it by comparing to the other eye which may be normal.
standard eyesight test/astigmatism etc
photos of retina to look for retinopathy of any kind - this detects damage to optic nerve
drops in eyes to stain and check state of corneas
exam of vascularisation in eyeballs (I have vascularised left eyeball, means lots of blood vessels growing into cornea where they should not be, cannot remember how lyme causse that, it's the standard check they do when you're getting contact lenses.)
asked lots of questions, I particularly remember being asked abotu floaters, light sensitivity and pain.
I also think they did something to monitor the contraction of my pupils to make sure it was normal, I am not so sure about this as I was exhausted by this point - I was there over 3 hours.
Hope this is helpful.
BTW the two most important thigs were peripheral vision test and photos of retinas, these are the ones that check for the most serious damage you can get (ie damage that can make you go blind).
test of peripheral vision (I had to stare into goggles focusing on an X and click a thingy every time I saw a little light flash in the periphery. It took ages and was an exhausting test)
test of colour vision (colourblindness) which lyme can cause
You do one eye at a time as usually you get one eye that stops seeing colours properly, they all go a bit grey, that means something serious but I cannot remember what. What I'm trying to say is, you usually get this problem in only one eye and you can detect it by comparing to the other eye which may be normal.
standard eyesight test/astigmatism etc
photos of retina to look for retinopathy of any kind - this detects damage to optic nerve
drops in eyes to stain and check state of corneas
exam of vascularisation in eyeballs (I have vascularised left eyeball, means lots of blood vessels growing into cornea where they should not be, cannot remember how lyme causse that, it's the standard check they do when you're getting contact lenses.)
asked lots of questions, I particularly remember being asked abotu floaters, light sensitivity and pain.
I also think they did something to monitor the contraction of my pupils to make sure it was normal, I am not so sure about this as I was exhausted by this point - I was there over 3 hours.
Hope this is helpful.
BTW the two most important thigs were peripheral vision test and photos of retinas, these are the ones that check for the most serious damage you can get (ie damage that can make you go blind).
Yes, do see the ophthalmologist -- no other doc knows enough about eyes to be able to treat them. Of all the many docs I saw when I was pre- and post- diagnosis, the ophthalmologist was right at the top (with my LLMD) in taking it seriously. Call tomorrow for an appointment, okay?
Keep us posted -- you're on your way!
Keep us posted -- you're on your way!
That is amazing u are getting it treated now!!! Awesome! I hope this leads me in the right direction or something good comes from it! I just need to get this ball rolling bc I cant keep being a "antibiotic seeker" that I am..they are catching on..lol. But they help soooooo much! Ugh why does it have to be so hard. Just hoping this will be a step in the right direction!
Yes..It is like santa is coming early! An LLMD is what this girl REALLY wants tho! :( But I am thankful and just praying this guy knows a little something about lyme and wont blow me off like everyone else! Thanks for the Tips! Will do! :)
YES go to the eye dr for SURE! And oh man I sure can relate to everything u say! Our medical history and issues in general really seem to be in sync! I have a hard time reading bc its hard to get the words to come into focus. and so yeah, I have become a slower reader due to my vision issues. But yes, see that dr for sure! I have heard they take lyme seriously(u are soo lucky u have an LLMD! I wish I could find one!) and can maybe tell u have Lyme from your eyes..I am hoping..?
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