This forum is for questions and support regarding What Causes Lyme Disease, Diagnosing Lyme Disease, Joint Pain issues, Living with Lyme Disease, Nervous System issues, Prevention, Risk Factors, Skin Disorders, Symptoms and Treatments.
I'm currently seeing a Dr. H in Wisconsin. He's a good Dr. but i'm afraid he's a little too old school for me and isn't very responsive when I have questions on the future of my treatments, plans, goals, other drugs, etc. I'm looking for recommendations from others on who they'd recommend as an excellent LLMD. I would like to work with someone who's knowledgeable on the latest treatment methods of Lyme...who's open to talking about treatment strategy...and who is very thorough! I am reading so many new things about Lyme and my MD disimisses a lot of it. He doesn't do the CD-57...and he's got me on oral Abx's even though i'm definitely a Late-Disseminated Lyme candidate. Can anyone make some suggestions? Feel free to email me privately if you don't want to post it. I live in Indiana...there are no LLMD's. I'd travel for a good one...i'm traveling 8 hours now as it is. Thank you everyone! and Remember, ticks SUCK!
google: 'how to find an llmd' and add a geographic descriptor like ohio or chicago or missouri.
I think there is a lyme assn in Chicago I ran across once ... you don't say what part of Indiana you are in...close to Ohio or Kentucky or Illinois and whether you might be willing to go say to St Louis.
We have some Ohio people in this forum.
also try websites like ilads dot org, which has a referral function.
truthaboutlymedisease is another.
google will locate more with an artfully crafted search.
I'm in Indianapolis (central) Indiana...yes i've actually compiled quite a list of LLMD's but all are not created equal and i'm hoping to get some personal experiences from others to lead me in the right direction. St. Louis is definitely doable...ANY state is doable at this point for a really good LLMD. I'm waiting to see one in Kansas City, MO and the wait is a YEAR! I'm also going to check out a local Osteopathic and Eastern Medicine Dr. here locally to see if I can get some help on immune support.
Some of our posters here are in Ohio, I think, but I haven't heard anyone rave about their Lyme MDs that I can recall.
If you're not getting responses, you might try posting something like "Seeking LLMD in [name of state]" because that might get someone's attention. When I read your post, I couldn't tell where you were and therefore what would be doable for you. Then if you don't get a response on [Ohio], move on to [Illinois] or whatever.
Names of specific MDs are usually communicated via private message to avoid unwanted publicity for LLMDs, who are sometimes hounded by their local/state medical boards.
Also check for local/state Lyme associations ... there may be one in the Chicago area I remember stumbling across. They can sometimes give you the scoop.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.