lyme disease and fentanly

[desperatetodumpdrugs]

how do i get off fentanly. it seems to be a vicious circle. if i pull back on the meds, i am in serious pain. If i wait to long to put my patches on i go through terrible withdrawls. i don't know what to do. i hate being married to this stupid patch but without it i am down for the count. i have had late stage lyme for 8 years. the past three was when we finally figured out the problem. i have a lot of irreprebrable damage. been through nomurous amounts of testing, therapy, counsling, chiropracters, and doctors galore. i am much better now than what i was. my legs are functioning again along with my brain. i had terrible brain fog. my kidneys and liver are on the mend also. there is still a long road ahead. i just keep plugging away. I wonder if there is anything i can do to get off these patches and not suffer so much. Like i said before, i am miserable when my 48hrs. runs out. I am on 125 every 48hrs. i also take morphine for breakthrough pain, attivan for chest pain, zoloft for depression, muscle relaxers for the twitching and spasams, synthroid for the thyroid. celebrex for the collateral AR. that is very painful in itself. it's throughout my every joint. It seems like a never ending battle. Before this i was a healthy mom of 2 wonderful boys. extremely active with them. unfortunately they have missed out on mommy for 3 years now. And seen some extremely scary situations. I pray they will get through this with minimal scarring. I guess my question is, has anyone gone through this and how did you get off all the medications without any problems. Is there just noway around this? Do i just have to buck up and suffer even more. I hope there is an easy answer that someone might have for me. Thank you for your time reading this and taking the time to care about a stranger. I am truly begging for any advise. thank you.  sincerely, Donna

[cly117]

Sorrry, for the bad spelling and grammar on that last post.

Cris

[cly117]

I also, have had lyme and not known it.  I have had lyme for at least 4 yrs without it.  I was put on the patch and vicodin for about two years before I found out.  My dose is 50mcg/hr and I have been able to move to every three days with this dose.  I am still not off the patch but, I have some advice to help you get the pain under control.  1.) Have you been to an Ilaids doctor? (Lyme literate)?  Probably, but if not you can find one from the site www.ilads.org.  2.)  I have found alot of pain relief through the combination of a couple of none narcotic meds.  These meds are Cymbalta, neurontin, and or Lyrica.  Together these are great for pain and anxiety.  Cymbalta is also an anti-depressant so it may replace your zoloft.   These drigs work great for twitching and spasms too.  I am not off the medications but I feel that soon I will be on my way to be able to get off.  Hope this helped and I didn't tell you anything you didn't know already.  They are still drugs but are none narcotic and much less gentle on the body.  The only side affect is some sleepiness sometimes, after you get accustomed to them.  My number one piece of advise would be to find the best Lyme doctor you can because it still doesn't sound resolved totally either.  Look at the www.ilads.org and try to find a doctor from there or a support group who could help you locally and tell you of the best local Lyme Doctor.  Best Wishes and Hope I helped some.

Cris  

[patsy10]

I would think a pain specialist could help you with this.