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Symptoms
Hi, I haven't been diagnosed as of yet for Lyme. I was recently diagnosed with ms. I have been experiencing nausa and had vomited a coupled of times. I can't even tell you the time I got a stomach bug. I've been under a lot of stress lately and is wondering if this is a symptom that I should add to the list? Thanks!
I am glad you are going to an LLMD, ask him/her to run co-infection test as well as Lyme. You could have Bartonella which causes lesions. I have them in my brain, and all over.
Good luck and let us know how you make out at the LLMD.
Good luck and let us know how you make out at the LLMD.
I had a MRI on my spine which showed a couple lesions, then a brain MRI and showed inactive lesions as well. I didn't have symptoms at the time but that was about a year ago. THe more I have been researching I came across possible Lyme and a symptom of anxiety came up which started almost 2 years ago. I did have a Lyme test trough my neuro and came back negative. I do however have an appointment with a llmd on Monday. They will be using igenex.
Hi. Welcome to the Lyme forum. What led your doctor to conclude you have MS? And what symptoms do you have that are not explained by MS?
Lyme is well documented to mimic MS, sometimes closely enough for a misdiagnosis. Have you taken any steroids or other immune suppressing meds? (That will make a Lyme patient feel worse.)
My Lyme mimiced MS. I had a coinfection called Bartonella which makes the neuro symptoms of Lyme worse, and also affects the GI system. Nausea is indeed a Lyme symptom. Lots of people have tummy trouble for many different reasons, so it is easy for doctors to conclude it is either not related to your other condition or is just from stress.
My neuro gave me a blank look when I told him about my loss of appetite, weight loss, stomach pain, and a developing pain where my diaphragm connects to my sternum and ribs. Here he was trying to figure out why I had so many brain lesions and why I had chronic, unexplained shortness of breath, and he had no clue what to say about the GI problems.
Have you ever been tested for Lyme Disease? If so, what was the result?
Lyme is well documented to mimic MS, sometimes closely enough for a misdiagnosis. Have you taken any steroids or other immune suppressing meds? (That will make a Lyme patient feel worse.)
My Lyme mimiced MS. I had a coinfection called Bartonella which makes the neuro symptoms of Lyme worse, and also affects the GI system. Nausea is indeed a Lyme symptom. Lots of people have tummy trouble for many different reasons, so it is easy for doctors to conclude it is either not related to your other condition or is just from stress.
My neuro gave me a blank look when I told him about my loss of appetite, weight loss, stomach pain, and a developing pain where my diaphragm connects to my sternum and ribs. Here he was trying to figure out why I had so many brain lesions and why I had chronic, unexplained shortness of breath, and he had no clue what to say about the GI problems.
Have you ever been tested for Lyme Disease? If so, what was the result?
and PS, "LLMD" is patient slang for an MD who thinks bigger and more progessive thoughts about Lyme and its co-infections than most docs do.
It's not a title or designation, and no doc calls him/herself an LLMD.
ILADS [dot] org is a voluntary organization of LLMDs who view Lyme in similar ways. The email for a referral is
contact [at] ILADS [dot] org
It's no guarantee of quality of the MD, but that's only because Lyme is a fast-changing and murky area of medicine. There are however many brilliant MDs who belong to ILADS, and that's what to keep your eyes open for.
I personally don't go for docs who sell their own brand of vitamins and such things. A little checking around and you can usually weed out the oddballs from the good docs.
It's not a title or designation, and no doc calls him/herself an LLMD.
ILADS [dot] org is a voluntary organization of LLMDs who view Lyme in similar ways. The email for a referral is
contact [at] ILADS [dot] org
It's no guarantee of quality of the MD, but that's only because Lyme is a fast-changing and murky area of medicine. There are however many brilliant MDs who belong to ILADS, and that's what to keep your eyes open for.
I personally don't go for docs who sell their own brand of vitamins and such things. A little checking around and you can usually weed out the oddballs from the good docs.
Hi,
sorry you are here.
I was misdiagnosed with MS among other things. Lyme is famous for this.
Stomach problems and anxiety could indeed be a sign of Lyme disease.
Your best bet would be to see an LLMD , Lyme literate doctor, who can rule out MS or Lyme. I am ill so others can give you more info but start by going to our association, ILADS dot org and emailing them and asking them for an LLMD in your area. Make an appointment and go from there. Do you have brain lesions?
We are here for you. Hang on!
sorry you are here.
I was misdiagnosed with MS among other things. Lyme is famous for this.
Stomach problems and anxiety could indeed be a sign of Lyme disease.
Your best bet would be to see an LLMD , Lyme literate doctor, who can rule out MS or Lyme. I am ill so others can give you more info but start by going to our association, ILADS dot org and emailing them and asking them for an LLMD in your area. Make an appointment and go from there. Do you have brain lesions?
We are here for you. Hang on!
Sorry to hear you are suffering! I would add all symptoms and occurrences rather than edit them down to what seems most Lyme-like. A good doc will know how to see patterns in the data and exclude the outliers.
I'm not medicallyl trained, but if I were diagnosed with MS, I would consult an LLMD for a second opinion, since nonLLMDs are not likely to consider Lyme in a differential diagnosis. Standard treatment for MS is steroids, which suppress the immune system, which are the exact opposite of what the body needs in a bacterial infection such as Lyme.
imo, the single most important thing in dealing with Lyme is finding a competent MD who knows how to consider Lyme and doesn't just exclude it as 'rare' or 'not in our part of the country' or based on the usual tests. It takes a Lyme specialist. I went through 20+ highly trained docs at major medical centers before I finally was diagnosed with Lyme and babesiosis. None of the other docs even considered Lyme.
I'm not medicallyl trained, but if I were diagnosed with MS, I would consult an LLMD for a second opinion, since nonLLMDs are not likely to consider Lyme in a differential diagnosis. Standard treatment for MS is steroids, which suppress the immune system, which are the exact opposite of what the body needs in a bacterial infection such as Lyme.
imo, the single most important thing in dealing with Lyme is finding a competent MD who knows how to consider Lyme and doesn't just exclude it as 'rare' or 'not in our part of the country' or based on the usual tests. It takes a Lyme specialist. I went through 20+ highly trained docs at major medical centers before I finally was diagnosed with Lyme and babesiosis. None of the other docs even considered Lyme.
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