Still unsure

[honeybee72]

Hi again
Would like to ask another question regarding my test results
I had neuro symptons for about 7 years then sent blood to igenex to be tested
My igm come back positive
But igg was negative
I have read that to be igg negative and igm positive means a false positive as the igm is when u are just infected, and as I have been having symptons for years my igg should of been positive.
Any advice!!!!!!!
My 12 year old daughter is the same as me but her igm was both positive, and her igenex igg was positive, the only negative she got was igg cdc.
This doesn't make sense
I just want to make sure we both really have lyme before treating, especially her.....
Will repost my test results with my positive igm and negative igg for long term symptons

[Ricobord]

I sent you a private message (PM).  Just click "My MedHelp" on the upper menu bar.  Then find "Messages" in a tiny font in the upper right quadrant near the center.  Click that and you'll see messages.  Once you're viewing a message, it's easy to reply in the box below it.

[mojogal]

Rico is a  great source., I agree with her and as i said last time, I believe you have Lyme. If you PM me, I will be glad to email you the "translation" of IgeneX results document.

[honeybee72]

Are u an Aussie
Would love to chat to u some more
Thanks for info
We are seeing a lyme Dr in August
Not sure if I can give u my email address on here

[Ricobord]

I have Aussie neuroborreliosis.  Had it six years before diagnosed. My IgG was also negative, both CDC & IGeneX.  Only my IgM was IGeneX positive, with fewer bands than you have.  You show Lyme specific antibodies, which could only appear if you've got the Lyme spirochetes in your body.  Clear symptoms + specific antibodies (should) = diagnosable illness.

It's confusing because the CDC chose a ridiculous and highly controversial interpretation of the Western Blot. They ignore Lyme specific bands, which makes no sense. They ignored extensive evidence showing how poor their interpretation is and have ignored protests by patients, doctors, and scientists ever since.  I am still confused as to why they're doing this.  

But I'm not confused about whether or not I have Lyme. (Note: I also had band 18. I read somewhere this band isn't uncommon in Aussie Lyme.)  I think without treatment, it would have killed me thanks to the steroids I'd been given.  Full blown neuro Lyme is awful.  Aussie Lyme is nearly always neuro and can be difficult to treat. I am not a doctor, but given my experience, I encourage you and your daughter to start treatment with a Lyme Literate Doctor.