Get tested for Lyme. It doesn't hurt and it’s low cost.
As for your symptoms, I'm dealing with (or dealt with) every thing you listed: tingling, twitching, eye fleeting issues, and heart palpations and a lot more. My symptoms are fleeting too and move around different parts of my body. I'm also not 100% convinced I have Lyme, but I have had nearly every test possible known to man-kind and the only thing that returned remotely abnormal were my lyme tests (including the CD57 marker). I don't recall getting bitten by a tick either, but I'm a fly fisher and outdoors person and i lived in the east coast of the US 4 years ago, so there is a chance i could have been exposed without knowing.
Re your nerve tests, you had an EMG and a NCS. That’s great news those returned clean! They weren’t fun, eh?
Get tested! If you don't have it, the tests will show it.
Good luck…
No, you're not going nuts. Maybe half of all those with Lyme don't remember a tick or a rash -- the tick is so tiny it can hardly be seen. Lyme doesn't just go away on its own, and it can be problematic later on if not cured. Even the CDC says Lyme is the fastest spreading vector-borne [spread by a bug or other means] disease in the US -- more so than West Nile, which you hear about all the time.
I'm not sure what the tests were called. I know one was an EEG. The other one was a test that gave me little shocks and it was normal. I think it is a NCS but I'm not sure. And I had a muscle test where a needle is inserted to see if my muscles worked properly and it was also normal.
I mentioned lyme to my mom and she thinks I'm nuts for thinking I have it and now I'm doubting myslef to get tested. I have never seen a tic on me let alone a bite or rash so I don't know how likely lyme disease is.
I'm just fusterated with the ongoing tingling, twitching, and eye issues. The thing that most scares me is the heart palpataions and pounding. Something has to be going on. I know I'm not going nuts.
-Sarah
My tingling is much less than it was but I still have it on a daily basis. I used to have it all over my body, all the time. Mine gets worse with activity.
I get localized muscle twitching, and I have Lyme. Partly through magnesium depletion by the Lyme bacteria, and partly due to irritation of the muscles where the Lyme take refuge in their cystic form.
With magnesium supplements, the twitching is quite manageable, but also I have been under antibiotic treatment for over a year. When first ill, I got tingling as well, jumping from place to place.
my experience with tingling is similar to Wonko's; however, mine started as a low grade buzz in my left leg and then went crazy for a while and has now mellowed out. it seems to come and go with various levels of intensity and frequency.
i read your other post re muscle twitching. i have the same thing sister! my neurologist told me you don't get diffuse muscle twitching with MS, so you likely don't have it. my neuro said diffuse muscle twitching is a result of an issue with your peripheral nervous system, not your central nervous system, which includes your spine and brain. I confirmed this with people on the MS forum. People with MS only get localized muscle twitching, and it's generally when they're losing the integrity of a particular muscle. have you had an EMG/NCS and have you had your CK checked in your blood work? I know you said you had nerve tests, but you didn't mention these. If you haven't had them, ask your dr if they think it's warranted.
good luck!
I don't think it is silly to ask. Tingling doesn't sound like a big deal, but going through it for months on end in strange places and in strange patterns adds up to constant psychological distress. For me, it felt like my body was sending me this message that something was wrong, though I couldn't figure out what!
Usually I couldn't shake my tingles out. For me, applying pressure (like holding a bag even) would make it worse. So does heat. If I am cooking and get a face full of stream, my facial tingling temporarily goes nuts. Getting into a hot car last summer, too hot a shower, washing my hands, etc. Posture is another trigger. When I lay down or even recline, my tingling gets stronger and spreads out.
My tingling is a lot better now (over four months on antibiotics) than it was. And even before treatment, the severity and locations would wax and wane on its own. It is very annoying and distracting.