9 years continues headache, 24hrs\7days\9years

[MR_WHY]

I have this problem: chronic continues headache evry single minute during last 9 year approxmitly without significant causes & all investigations, images,.. etc are normal. No medication affect on headache  or control it. I see alot number of doctors & try doffrent treatment like acupuncture & magnetic energy therapy but no result. I have other symptoms, some of symptos come &back &others daily or like daily, but no symptom continues evry day & evry single minute during all this period like this headache. I have also sleep problems which begin before this headache. I have other symptom may i write about it later. I hope there is some one can helping me to know what i have? whats my problem? which can cause continues headache for long time & no medication affect on it with normal results for investigation? I loss control of my life! ifail in my life & my study with unknown causes & im in pain all time.
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I was meet at least 2 neurologist. & i did 2 CT-scan during first 5 years after i have this headache. Both CT-scan were normal, nothing was observe.
I meet other spechaist for other symptom or try to have answer.
Its not migrine or clustures or vascular headache. & its also not tension headace. Its realy difference with unknown causes. all days evry my last 9 years i lived with this very bad headache not only evry days but evry minute without any explanation or answer or medication affect on it. nothing.
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THESE SOME SYMPTOM I HAVE, I HAVE IT DAILY OR LIKE DAILY OR MUST TIMES DURING LAST  9YEARS:

-24hr headache
-sleep problems
-general fatigue &tired
-psychological changes (nervous, tension, depression, stress..)
-emotional changes
-obesity (sometimes unintelligible gain weight (mainly) & sometimes unintelligible loss weight) with changing my appetite.
-l cannot study
-loss of concentration
- affect on my memories & remember words or other language
- change my behaviour or desire

THERE ARE OTHERS SYMPTOM BUT ITS PERIOD LESS THAN OTHER SYMPTOM I WAS MENTION IT ABOVE. Iwill write it as soon as posible.

Can you suggest any test to determine what i have? new one.
Thanks

[MR_WHY]

its realy not help me.
thanks

[hava]

What I described, are breathing techniques, and you need to do it everyday to benefit. Read my post several times and start doing the pranayam. You have to do it yourself and help your body to get better. It will definitely help you.Think positive.

[MR_WHY]

I do relax exercise, Its not help me.

[hava]

You have been through a lot of tests. I have something very natural, which will improve your body systems gradually.Start today and post your feedback, every week for 4 weeks and then monthly feedback.Do not give up this pranayam.
To to get relief from headache/migraine naturally, the full pranayam exercises are described below.Do it seriously, regularly  and at the suggested duration, and you can call it a cure or control without medication.
Initially do Anulom Vilom (as much as you can) for the fist few days and then start the full set of pranayam.This works gradually, so allow time (1 week upto 24 weeks) and concentrate fully on the breathing. Avoid cold drinks and drink warm water.

Build up your timing gradually.If you feel tired or dizzy, stop and resume after 1 minute.
Kapalbhati -(Do it before eating) Push air forcefully out through the nose about once per second. Stomach will itself go in(contract in). The breathing in(through the nose) will happen automatically. Establish a rhythm and do for upto 15 minutes twice a day. Not for pregnant women. Seriously ill people do it gently.

Anulom Vilom -  Close your right nostril with thumb and deep breath-in through left nostril  
then – close left nostril with two fingers and breath-out through right nostril  
then -keeping the left nostril closed  deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 20 to 30  minutes twice a day.
You can do this before breakfast/lunch/dinner or before bedtime or in bed. Remember to take deep breaths into the lungs.

Bhramri Pranayam -Close eyes. Close ears with thumb, index finger on forehead, and rest three fingers on base of nose touching eyes. Breathe in through nose. And now breathe out through nose while humming like a bee.
Duration : 5 to 15 times

Continue the pranayam once a day to stay healthy.The factors helping are the extra oxygen and the relaxation(reduced stress) you get when doing the breathing exercises.

[MR_WHY]

I do evry thing

My case still worse.

I do not know, what i do?

My headache very bad & so sever.
My sleep problem make me so tired.

[Dr Santos]

Hi,
How are you? If the pain is still present, inform your doctor about this for a stronger medicine. You can also try complementary and alternative medicine such as biofeedback therapy to help you with the headache. This has been effective in plenty of headache sufferers. Take care and do keep us posted.

[MR_WHY]

Im continues taking this medication. My doctor give me Tiapride Hydrochloride also.
But my pain is present & no change . All my problems are present, are same, no change.
My head killing me, what i do?

[Dr Santos]

Hi,
How are you? It is good that the tests done were normal.  At this point, take the medications and see if there is any improvement in your symptoms. Headaches with plenty of other symptoms  may also cause anxiety. That is why the medicine prescribed by your new doctor would want to address this.  Paroxetine ( a selective serotonin reuptake inhibitor), melitracen (tricyclic antidepressant), and flupentixol ( neuroleptic) all help with this. Take care and regards.

[horselip]

I'm not a doctor and I don't know about the medications.
Look up some of my ideas, and see if these might fit what you have. Then ask your doctor.

In the U.S. we have pain control doctors and pain control centers. In Europe these are sometimes called palliative care? Anyway, you may not have this where you live. These are doctors who work with patients who have pain. Many of them have headaches. There are 100's of medications, just for headaches. The doctor tries to narrow down what kind of headache you have. Then they can better treat your pain. One of the things that is happening in headache pain management are nerve blocks. This is where an injection is done right into the nerve to see if it removes the pain. If it does then they can sometimes kill the nerve.
Good luck!

[MR_WHY]

I see new doctor today, &he give me this medcation:

Flupentixol &melitracen tablets
Paroxetine

What are your sugeetion?
thanks

[MR_WHY]

-Has a Cerebral Spinal Fluid leak been ruled out?
NO

-Are you being seen by a GOOD pain control center?
I DO NOT UNDERSTAND

- Trigeminal neuralgia, has this been ruled out?
I DO NOT KNOW. THE DOCTORS ONLY SAID TO MY EVRYTHING OK, YOU HAVE NOTHING.

- -What about hypothalamus and or pituitary issues? Have these been ruled out, you sure?

I WAS DO TEST FOR HORMONE LEVELS & IT NORMAL. MORE THAN ONCE.

I DO FOR OTHER HORMONE BUT I DO NOT REMEMBER IT EXACTLY.

I DO ALSO 24H URINARY FREE CORTISOL TO DETERMINE IF I HAVE CUSHINGS. ITS NORMAL ALSO,

-Has any of the doctors ever tried to nerve blocks specifically to your Supra orbital or Sphenopalatine Ganglion? I ask because if a lidocaine block works, then there may be other long term procedure that could help you

I GUESS NO.

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WHAT ARE NEXT STEPS??

[horselip]

Hi I have some ideas:
-Has a Cerebral Spinal Fluid leak been ruled out?
-Are you being seen by a GOOD pain control center?
-Trigeminal neuralgia, has this been ruled out?
-What about hypothalamus and or pituitary issues? Have these been ruled out, you sure? Have you seen a special type of endocrinologist who specializes in the Pituitary and Hypothalamus gland. They are called neuroendocrinologists. They can run a complete pituitary panel on you to check growth hormone, thyroid, testotesterone, ACTH, Antidiuretic hormone etc
-Has any of the doctors ever tried to nerve blocks specifically to your Supra orbital or Sphenopalatine Ganglion? I ask because if a lidocaine block works, then there may be other long term procedure that could help you.

[MR_WHY]

About two years ago, are suffering from hallucinations during sleep, and I see things like a real, even when I shut my eyes I see it, and became afraid because of sleep in the dark, then turned not to sleep in the dark to the custom, and later became a sleep in the dark, naturally, but since two or Become a little more afraid to sleep in the dark, and became afraid to close my eyes at the beginning of sleep and I can not sleep in the dark
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Today, i have new symptom:

i feel like nerve pulse in my Rt middle arm extends to Rl little finger, whats that mean?


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What are differntial diagnosis of my case?
thanks

[MR_WHY]

The only thing observe on EEG IS:
Abnormal EEG showing evidence of bilateral frontal delta activity discharge with eventual generalization.

but my last neurologist cannot explain why? or the causes, & the CT-scan was done appear normal, & he said its not problem or mean anything.

[MR_WHY]

THESE SYMPTOM, I FORGET WRITE IT:
When I want to write with the pen, I feel difficulty in the maintenance of the pen &start writing –special when I start- & I feel that heavy pen, &my hand gets tired quickly, &my arm is sweating alots.  

JUST TO KNOW:
I was meet other specialists, like: 4cardiologist, pathologist, 3psychiatrist, psychologist, 5internal medicine doctors, endocrinologist &MORE

[MR_WHY]

Hello.
thanks.
My headache feature is not on one side, its on both side & in sever episode may include face &neck.

Yes, i sweat alot &quick.
Yes, i feel runny nose, but not all times.
The headache is may increase due to Physical exertion  but in general my headache is may increase the severity of the pain with factor or without, so i cannot control it or manage my life according to it.
Im not alcoholic.
Im not smoking.

What are you mean by tearing?

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I have other systemic symptom with unknown causes, all investigations, tests. U\S,... normal.
like:
GIT problems &general abdominal pain.
Back pain spechal lower part
Chest pain
Increase breathing rate
muscle weakness & sometimes spasm
feal hot in lower & uper limp joints
i feerl weak in perpheral like hand, arms, foreams, foots.
I drink alot & i have polyuria
nausia
numbness
heard in left ear is weaker than right one.I suffer from time to time in the ear defect similar to that which occurs in the aircraft when taking off and upset pressure due to rise.
sometimes i do not natural movement to my limb spechal my foot to feel better, & i cannot explain why?
sometimes tremor.
all symptoms above are not continues, its go & back, & witth normal results.
Im in pain all the time, but without know the cause.

[Dr Santos]

Hi,
How are you? Hemicrania continua is a rare form of chronic headache marked by continuous pain on one side of the face. Associated symptoms include runny nose, tearing, eye redness, eye discomfort, sweating, nausea, vomiting, and sensitivity to light and sound.  Physical exertion and alcohol use may increase the severity of headache pain. Unfortunately, the cause of this disorder is unknown. Talk to your doctor about this. Take care and do keep us posted.

[MR_WHY]

The problem is i cannot do MRI , so my only choice is CT-scan, & i was do it twice.
whats now?

[selmaS]

HI ask for a MRI of the brain w/wo contrast and a MRI of the cervical spine as well.....CT scans do not show everything and I also suggest u ask for copies of the MRI's and the reports so u have them to get a second opinion...also see if u can get copies of the CT scan...it seems u already have those reports.

Good luck
"selma"