Aa
major headache for months
I have headaches every day and nothing helps i also have a pineal cyst measuring 10 x12 cm i have brain seizers and blackouts. plus other symtoms.
Can anyone help
Can anyone help
MEDICAL PROFESSIONAL
Hi,
Is this the correct measurement in cm?
I suggest you keep a close follow up with with your neurologist .The brain seizures and black outs may hurt you and warrants further evaluation and management.
Pineal cysts are benign and usually asymptomatic.They should be monitored for their growth. Things to watch out for are intracystic hemorrhage and mass effect due to the cyst's increase in size.It may manifest as vision problems and hydrocephalus.
When was your last scan done?
Further evaluation may be needed due to your persistent headaches to rule out aforementioned cause such as intracystic hemorrhage.
Stay calm and keep a positive attitude.
I hope this helps.
Is this the correct measurement in cm?
I suggest you keep a close follow up with with your neurologist .The brain seizures and black outs may hurt you and warrants further evaluation and management.
Pineal cysts are benign and usually asymptomatic.They should be monitored for their growth. Things to watch out for are intracystic hemorrhage and mass effect due to the cyst's increase in size.It may manifest as vision problems and hydrocephalus.
When was your last scan done?
Further evaluation may be needed due to your persistent headaches to rule out aforementioned cause such as intracystic hemorrhage.
Stay calm and keep a positive attitude.
I hope this helps.
my last MRI was done in september 2006.
I try to stay positive but it is hard when i can find any help.
I try to stay positive but it is hard when i can find any help.
MEDICAL PROFESSIONAL
Hi,
How severe are your headaches?
Has your condition worsened recently?
Have you experienced any "blackouts" in the last 3-6 months? Or this has only occured recently?
I suggest you seek immediate consult with your physician who might request for a repeat MRI. Any progresion of symptoms warrants further investigation.
Be proactive about this and be positive.
Keep us posted regarding your progress.
How severe are your headaches?
Has your condition worsened recently?
Have you experienced any "blackouts" in the last 3-6 months? Or this has only occured recently?
I suggest you seek immediate consult with your physician who might request for a repeat MRI. Any progresion of symptoms warrants further investigation.
Be proactive about this and be positive.
Keep us posted regarding your progress.
Hi,
My headaches get real bad. I get nauseous have sensitiviy to light and sound my head just throbs feels like a one ton truck is parked on my head i get light headed standing up and when i'm just setting or lying down. i've had blackouts since i was 7 but they have gotten progressivly worse in the last 6 months or so. I black out about 3 to 4 times in a 2 week period. About 3 weeks ago i had a seizer everyday for 4 days and had a blackout 3 days in a roll.
I see my family Doctor once a month to monitor my headaches and my seizers but all he does is give me more pain medication and says i just don't see how you can keep living like this, it's not much of a life and sends me on my way. He has sent me to a Neurologist but the neurologist doesn't think that the cyst is what is causing my problems but also couldn't tell me what was. I live in a small town and the doctors here don't know much about pineal cyst. My family doctor is still looking up information about it. He himself has told me and my dad that i will never be able to work again due to my condition and that i needed surgery to remove the cyst and just a few weeks after him saying that is when i seen the neurologist. And a week after that is when he got the results from my EEG and discovered i was having Brain seizers. he has been trying to find outwhat is causeing the seizers but hasn't came up with anything yet. Yes my condition has gotten worse.
My doctors are at a lose they don't know for sure how to treat my condition so they just keep giving me pain meds and sending me on my way. I have taken my doctor more information on pineal cyst then what he has found. And this is the best doctor that i have had yet in the last 15 years but yet he still cant help me fix this.And like i said My doctor told me and my dad that i will never be able to work again but yet wont help me try to get on disability yet and i am a single mom of 4 kids i live with my dad because of my medical condition. I do have a wonderful boyfriend who i have been with for a little over 2 years now but i have known for 11 years so he has known about my medical condition for years and they both help me out alot. If i didn't have them i don't know what i would do. I am on MC+ and temporary assistance from the state since i cant work but that doesn't go very far with 4 kids. And this is also hurting my kids and i hate that.
But like i said i am from a small town and the doctors here don't know much about pineal cyst. The Neurologist says that pineal cyst don't cause symptoms.And yes i know that alot of them don't but larger ones like mine do and i cant get that through to them.
My headaches get real bad. I get nauseous have sensitiviy to light and sound my head just throbs feels like a one ton truck is parked on my head i get light headed standing up and when i'm just setting or lying down. i've had blackouts since i was 7 but they have gotten progressivly worse in the last 6 months or so. I black out about 3 to 4 times in a 2 week period. About 3 weeks ago i had a seizer everyday for 4 days and had a blackout 3 days in a roll.
I see my family Doctor once a month to monitor my headaches and my seizers but all he does is give me more pain medication and says i just don't see how you can keep living like this, it's not much of a life and sends me on my way. He has sent me to a Neurologist but the neurologist doesn't think that the cyst is what is causing my problems but also couldn't tell me what was. I live in a small town and the doctors here don't know much about pineal cyst. My family doctor is still looking up information about it. He himself has told me and my dad that i will never be able to work again due to my condition and that i needed surgery to remove the cyst and just a few weeks after him saying that is when i seen the neurologist. And a week after that is when he got the results from my EEG and discovered i was having Brain seizers. he has been trying to find outwhat is causeing the seizers but hasn't came up with anything yet. Yes my condition has gotten worse.
My doctors are at a lose they don't know for sure how to treat my condition so they just keep giving me pain meds and sending me on my way. I have taken my doctor more information on pineal cyst then what he has found. And this is the best doctor that i have had yet in the last 15 years but yet he still cant help me fix this.And like i said My doctor told me and my dad that i will never be able to work again but yet wont help me try to get on disability yet and i am a single mom of 4 kids i live with my dad because of my medical condition. I do have a wonderful boyfriend who i have been with for a little over 2 years now but i have known for 11 years so he has known about my medical condition for years and they both help me out alot. If i didn't have them i don't know what i would do. I am on MC+ and temporary assistance from the state since i cant work but that doesn't go very far with 4 kids. And this is also hurting my kids and i hate that.
But like i said i am from a small town and the doctors here don't know much about pineal cyst. The Neurologist says that pineal cyst don't cause symptoms.And yes i know that alot of them don't but larger ones like mine do and i cant get that through to them.
MEDICAL PROFESSIONAL
Hi,
Do you have your MRI results?
What I am concerned is the size of the pineal cyst which is 10-12 cm as you have posted.Is this correct?
If this is correct, then the cyst is large and can compress nearby structures .This may cause neurologic deficits and warrants immediate intervention. Pineal cysts may enlarge due to intracystic hemorrhage and accumulation of cystic fluid.This may cause hydrocephalus and increased intracranial pressure.The pineal cyst if it progressively enlarges and causes symptoms requires surgical intervention. Get a good referral to a neurosurgeon for immediate intervention.
Consult your doctor and ascertain your MRI results.Bing the results with you each time you see a physician.
Keep us posted.
Do you have your MRI results?
What I am concerned is the size of the pineal cyst which is 10-12 cm as you have posted.Is this correct?
If this is correct, then the cyst is large and can compress nearby structures .This may cause neurologic deficits and warrants immediate intervention. Pineal cysts may enlarge due to intracystic hemorrhage and accumulation of cystic fluid.This may cause hydrocephalus and increased intracranial pressure.The pineal cyst if it progressively enlarges and causes symptoms requires surgical intervention. Get a good referral to a neurosurgeon for immediate intervention.
Consult your doctor and ascertain your MRI results.Bing the results with you each time you see a physician.
Keep us posted.
Yes i have 3 of my MRI results and the films and the second one done shows the cyst measuring 1.2 x.07 cm. then the other 2 that i have it measures 10 x 12 cm.
MEDICAL PROFESSIONAL
Hi,
How is everything? I hope you are better.
When were these MRI scans taken?
Your physicians were able to see the MRI results?
Do keep us posted.
How is everything? I hope you are better.
When were these MRI scans taken?
Your physicians were able to see the MRI results?
Do keep us posted.
These pranayam exercises will help control the headache and the side effects.Build up the timing gradually.If you feel tired or dizzy, stop and resume later.The benefits will be noticed in weeks.Over the long tern the headache will be in full control and the medicine can be reduced in consultation with the doctor.You will feel better as you can do something about it yourself.Please post your progress so others can benefit as well.Nothing has helped, but pranayam will help.
Anulom Vilom –
Close your right nostril with thumb and deep breath-in through left nostril
then – close left nostril with two fingers and breath-out through right nostril
then -keeping the left nostril closed deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 20 to 30 minutes twice a day(maximum 60 minutes in one day).
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep long breaths into the lungs.You can do this while sitting on floor or chair or lying in bed.
Kapalbhati -(Do it before eating) Push air forcefully out through the nose about once per second. Stomach will itself go in(contract in). The breathing in(through the nose) will happen automatically. Establish a rhythm and do for 20 to 30 minutes twice a day.(Max 60 min/day) Not for pregnant women. Seriously ill people do it gently.
Anulom Vilom –
Close your right nostril with thumb and deep breath-in through left nostril
then – close left nostril with two fingers and breath-out through right nostril
then -keeping the left nostril closed deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 20 to 30 minutes twice a day(maximum 60 minutes in one day).
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep long breaths into the lungs.You can do this while sitting on floor or chair or lying in bed.
Kapalbhati -(Do it before eating) Push air forcefully out through the nose about once per second. Stomach will itself go in(contract in). The breathing in(through the nose) will happen automatically. Establish a rhythm and do for 20 to 30 minutes twice a day.(Max 60 min/day) Not for pregnant women. Seriously ill people do it gently.
Hi
Other then the fact that i have a headache that will not go away i guess things are ok.
The first MRI was done 02/2003 and my last one was done 09/2007.
and several done in between. Yes my doctor has seen all the MRI results.
Other then the fact that i have a headache that will not go away i guess things are ok.
The first MRI was done 02/2003 and my last one was done 09/2007.
and several done in between. Yes my doctor has seen all the MRI results.
You mentioned that you live in a small town, so I don't know what the chances of finding an acupuncturist near you would be, but if you could vist an acupuncturist just 2-3 times and recieve thorough teratments and the acupuncturist gets a full understanding of what your entire condition is like, he/ she can prescribe your herbs that you can take, which are much cheaper, but sooooo helpful and effective for your condition. Herbs work from the inside and they strengthen what needs to be strengthened and remove what needs to be removed. I wish I had a way to explain this medicine to you, but I truly hope that you would keep your mind open and try acupuncture and herbs. It really changes peoples' lives all the time. It's been practiced for over 2000- 3000 years. There's a reason why. try it. it cured many of my conditions.
My mother had uterine cysts that were the size of a softball and it shrunk to half of its size within 1 month of treatment. Luckily, it was a benign cyst so there was no rush, but she decided to just go with surgery because she wanted it completely out of her.
I do NOT want to give you false hopes. everyone is different. Some poeple get quick results while others have to be more patient. But if you prefer a less invasive and a natural approach, try acupuncture. It's healing in so many levels.
My mother had uterine cysts that were the size of a softball and it shrunk to half of its size within 1 month of treatment. Luckily, it was a benign cyst so there was no rush, but she decided to just go with surgery because she wanted it completely out of her.
I do NOT want to give you false hopes. everyone is different. Some poeple get quick results while others have to be more patient. But if you prefer a less invasive and a natural approach, try acupuncture. It's healing in so many levels.
MEDICAL PROFESSIONAL
Hi,
Your last MRI was done in late 2007 and showed a 10-12 cm cyst is that right?
If this is correct, your cyst seemed to have progressed rapidly from a
1.2 x.07 cm cyst to one measuring 10x12 cm in 4 years time.Is this correct?
The size of the cyst itself warrants surgical intervention.A large pineal cyst as I have previously posted may compress surrounding structures, blocking cerebrospinal fluid flow and increasing intracranial pressure. Visual symptoms may be experienced, as well as vomiting and headaches due to the cyst's mass effect. The frequency of your seizures and "black out "spells also need close supervision and follow up.
Please seek immediate referral to a neurosurgeon and do keep your scan reports with you for reference.
You have mentioned that you are from a small town, you may ask your primary physician to refer you to larger centers for a complete work-up.
Be proactive about this and for any doubts ,keep us posted.
Your last MRI was done in late 2007 and showed a 10-12 cm cyst is that right?
If this is correct, your cyst seemed to have progressed rapidly from a
1.2 x.07 cm cyst to one measuring 10x12 cm in 4 years time.Is this correct?
The size of the cyst itself warrants surgical intervention.A large pineal cyst as I have previously posted may compress surrounding structures, blocking cerebrospinal fluid flow and increasing intracranial pressure. Visual symptoms may be experienced, as well as vomiting and headaches due to the cyst's mass effect. The frequency of your seizures and "black out "spells also need close supervision and follow up.
Please seek immediate referral to a neurosurgeon and do keep your scan reports with you for reference.
You have mentioned that you are from a small town, you may ask your primary physician to refer you to larger centers for a complete work-up.
Be proactive about this and for any doubts ,keep us posted.
Yes my last MRI was in 2007 showing the cyst measuring 10 x 12 cm. And yes it sarted out measuring 1.2 x 0.7 cm in 2003.
As the cyst has grown the symptoms that i already had have gotten worse and and new symptoms started.
I'm just lost i don't know what to do anymore. I mean how do you get a Doctor to believe that the cyst is symptomatic when they say pineal cyst don't have symptoms. There are 3 doctors in the practic where i go and the main one i see understands a little had said at one time that i needed surgery and sent me to a neuosurgeon but the neurosurgeon ans the 2 other doctors in the practic say pineal cyst don't cause symptoms.
As the cyst has grown the symptoms that i already had have gotten worse and and new symptoms started.
I'm just lost i don't know what to do anymore. I mean how do you get a Doctor to believe that the cyst is symptomatic when they say pineal cyst don't have symptoms. There are 3 doctors in the practic where i go and the main one i see understands a little had said at one time that i needed surgery and sent me to a neuosurgeon but the neurosurgeon ans the 2 other doctors in the practic say pineal cyst don't cause symptoms.
Yes my last MRI was in 2007 showing the cyst measuring 10 x 12 cm. And yes it sarted out measuring 1.2 x 0.7 cm in 2003.
As the cyst has grown the symptoms that i already had have gotten worse and and new symptoms started.
I'm just lost i don't know what to do anymore. I mean how do you get a Doctor to believe that the cyst is symptomatic when they say pineal cyst don't have symptoms. There are 3 doctors in the practic where i go and the main one i see understands a little had said at one time that i needed surgery and sent me to a neuosurgeon but the neurosurgeon and the 2 other doctors in the practic say pineal cyst don't cause symptoms. So what do i do?
As the cyst has grown the symptoms that i already had have gotten worse and and new symptoms started.
I'm just lost i don't know what to do anymore. I mean how do you get a Doctor to believe that the cyst is symptomatic when they say pineal cyst don't have symptoms. There are 3 doctors in the practic where i go and the main one i see understands a little had said at one time that i needed surgery and sent me to a neuosurgeon but the neurosurgeon and the 2 other doctors in the practic say pineal cyst don't cause symptoms. So what do i do?
MEDICAL PROFESSIONAL
Hi,
I suggest you discuss with your physicians your concerns. A referral to a neurosurgeon in larger centers may help. You have mentioned your seizures and blackouts. Was an EEG done? Your seizures need to be properly classified and managed. You may want to consult with a neurologist who specializes on seizures.
Also, please bring all your scans when you consult with your surgeons.This is important .This way they wil be able to properly evaluate your condition.
I hope I can help more.
I suggest you discuss with your physicians your concerns. A referral to a neurosurgeon in larger centers may help. You have mentioned your seizures and blackouts. Was an EEG done? Your seizures need to be properly classified and managed. You may want to consult with a neurologist who specializes on seizures.
Also, please bring all your scans when you consult with your surgeons.This is important .This way they wil be able to properly evaluate your condition.
I hope I can help more.
Hi,
Yes i have had an EEG done. One in 2003 that came back normal. and the last one i don't remember the date but it was after the after we found out that the cyst had gotten bigger and it should i had seizer activity.
Yes i have had an EEG done. One in 2003 that came back normal. and the last one i don't remember the date but it was after the after we found out that the cyst had gotten bigger and it should i had seizer activity.
MEDICAL PROFESSIONAL
Hi Mel,
Any progress with the neurosurgeon consult?
How have you been doing so far?
Any progress with the neurosurgeon consult?
How have you been doing so far?
No, no progress on anything yet. I go to see my Family Doctor next week and will go from there i guess. I'm doing the same nothing has changed.
I had a real bad headache yesterday ended up having a seizer and blacking out. I go back to see my doctor on the 31st so maybe with any luck he will do something different because what he's doing now is not working.
Hi everyone, not much has changed here. I still have the headache. I did have another seizer and blackout again Thursday afternoon. I would be so nice to wake up even just one morning without this headache.
Hello, well i still have the headache and i had another seizer last night. will this ever get better?
I go to see a new doctor in a bigger city next Thursday who knows alot more about pineal cyst and my medical condition.
Another day and still no relief from this headache i had another bad one last night and another seizer but i didn't blackout last night so that is a plus i guess. I had to take my sleeping pills last night just to be able to try and sleep cause my head hurt so bad. Then i got up this morning to get my kids up and ready for school and i set up out of bed and my head started pounding. The pounding has eased up but the headache has not even after my medication. There are things that i need to get done today but i'm not going to be able to because i cant drive with these headaches due to my seizers and blackouts.
This is really driving me insane. it is very deppressing. i am 32 years old and have to have a babysitter most of the time.
This is really driving me insane. it is very deppressing. i am 32 years old and have to have a babysitter most of the time.
My headache today just will not let up it is still getting worse. My eyes keep going blurry it hurts to even run my fingers through my hair.my eyes hurt my neck hurts i'm sick at my stomach. god i wish that something would ease this headache up.
Sorry i think that i'm just needing to vent a little i've had this headache for so long i don't know what to do any more.
Sorry i think that i'm just needing to vent a little i've had this headache for so long i don't know what to do any more.
so....TRY ACUPUNCTURE!!!
you tried everything else, so give this a try. It's NON-invasive, is worked for me and millions of other people (not including the billions of people in CHINA). So, you rather pop drugs into your body, spend thousands of dollars on tests that don't seem to find the cause, and just cross your fingers for a miracle, when all you have to do is step out of your box and try something that has been proven to work for over 2000 years.
I swear, ignorance holds people back in so many ways it's ridiculous.
Save yourself and do something.
It worked and works!
you tried everything else, so give this a try. It's NON-invasive, is worked for me and millions of other people (not including the billions of people in CHINA). So, you rather pop drugs into your body, spend thousands of dollars on tests that don't seem to find the cause, and just cross your fingers for a miracle, when all you have to do is step out of your box and try something that has been proven to work for over 2000 years.
I swear, ignorance holds people back in so many ways it's ridiculous.
Save yourself and do something.
It worked and works!
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