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tolosa hunt syndrome
My husband has suffered from tolosa hunt for 2 years he has seen several doctors and treated with several meds, including predisone for 2 years, methotrexate,radiation treatments 2 different times,and a brain biopsy. We have had no success in treating this, its only getting worse. Does anyone have other suggestions?
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Hi,
How is your husband?  This condition is usually idiopathic in nature and is usually self-limited. Outlook is considered good and spontaneous remission can occur. However, permanent ocular motor deficits may remain. Relapses are common that is why it is important that there is regular follow-up. Medications such as corticosteroids are the treatment of choice. If no response to steroid therapy has occurred, the diagnosis of Tolosa-Hunt syndrome should be reevaluated. Supervision and monitoring of the tapering schedule for the steroids and steroid-related adverse effects are also important.  Take care and do keep us posted.

  
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