My husband has suffered from tolosa hunt for 2 years he has seen several doctors and treated with several meds, including predisone for 2 years, methotrexate,radiation treatments 2 different times,and a brain biopsy. We have had no success in treating this, its only getting worse. Does anyone have other suggestions?
How is your husband? This condition is usually idiopathic in nature and is usually self-limited. Outlook is considered good and spontaneous remission can occur. However, permanent ocular motor deficits may remain. Relapses are common that is why it is important that there is regular follow-up. Medications such as corticosteroids are the treatment of choice. If no response to steroid therapy has occurred, the diagnosis of Tolosa-Hunt syndrome should be reevaluated. Supervision and monitoring of the tapering schedule for the steroids and steroid-related adverse effects are also important. Take care and do keep us posted.
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