A headache that will not stop

[kckccasey]

I hope someone can help as I am begining to lose hope.  I have an almost constant headache, usually on the right side of my head but it does "travel" from time to time.  It is usally pressure, but sometimes it is burning, sometimes stabbing and sometimes it feels as if water is running INSIDE my head.  I have been to a nuerologist )2 of them, actually) a rheumoltologist (2 of them as well) an allergist and my GP.  I had a MRI and a CT scan and both were "normal."  I was taking Nifedepine for Raynauds when the 2nd nuerolgist said that was likely causing the headaches so stop taking that.  I did, no change.  Does anyone out there have any insight?  Please?!

[brunette0508]

I was very shocked and surprised when I read this. I have almost the exact symptoms except without the burning feeling. But I feel that running water kinda feeling INSIDE my head too!! my headaches are costant and usually on the right side of my head as well.

My problem is my doctor is thinking im lying and or over reacting and keeps prescribing me medication without doing any tests. I went to an appointment in which my doc was on vacation and i saw a different doc and all she said to me was that I dont eat enough (which is clearly not the case). I did however find out through blood tests that i am B12 deficient but.. even while taking 2000 mcg of vitamin B12 I still have headaches and they never told me if could even be linked to my headaches or not.

I am losing hope as well. I cry at nite because i cant sleep. I cant have time off work so i end up draining myself. Ugh.. if you hear anything about a diagnosis from your doctors will you post it? Maybe I will have something to mention at my next doctor appointment. Thanks soo much.

[kathy434]

One year I suffered an exchruciating pain in my head for at least four days.  I was in bed, in a dark and quiet room.  The pain just wouldn't give an inch.  I was in agony.
My brother who studied Yoga suggested that I sit on the edge of the couch, relaxed, eyes closed, and concentrate on nothing but my breathing in and breathing out.  I did this.  He gently placed his thumb and then pressed on the back of my neck just below the Occipital Bone at the base of my scull between the verticle tendons at the back of the neck..  He kept the pressure applied for 1-2 minutes.  Just like that, the pain was totally gone.  I couldn't believe it.
If your brain scans are all normal, no physical abnormalty, then consider that you are having a Migraine Headache.  You usually feel it on one side of the head.  There is medication that is extremely effective on Migraines.  The moment you "see" weird stuff, take the pill and go lie down.  In half an hour you take one more pill and relax.  That is usually all that is needed.  Talk to your doctor.
Another time my husband started "seeing" the "Aura" just after we had ordered a meal in a resturant.  I asked the waitress if somebody there had some strong pain killer meds.  She found a pair of pills.  Then I had her bring him a full pot of very strong coffee.  The pills and the coffee (lots of it for the caffine) aborted his migraine.  We ate dinner in peace.
If you have pain in your Temple area, you may need something like Inderal that helps to relax those painful vessels.
Talk with your doctor to see if you are having migraines.  Migraines can also be brought on by hormones changes within your body.
I have even experienced my eyes seeing underwater visuals, quite scarey, only to learn I had what is called a silent migraine...one in which I felt no pain.    Talk with your doctor.  Good luck.

[AngieP5]

sorry didn't mean to scare you.  No, psuedo cerbri Tumor actually means false tumor.  they originally named it that because you have symptoms that are similiar to having a tumor but don't.  The new name for it is IntraCranial Hypertension.  And no it would not show up on MRI or cat scan only diagnosed by lumbar puncture.

[kckccasey]

Tumor?  That sounds scary.  I was hoping that if I had something like that either the MRI or the CT scan would have detected it.

I will Google both.  Thanks for the insights

[AngieP5]

did your neurologist mention intracranial hypertension?  or pseudo cerebri turmor?  I've had constant headaches for almost a year and they diagnosed me with this.  Only way to diagnosis is by lumbar pucture/spinal tap. If your neuro hasn't discussed this - if I were you I'd google and see if any of your symptoms match up.  Just a suggestion. Let me know if you have any further questions.
Angie