No, no progress on anything yet. I go to see my Family Doctor next week and will go from there i guess. I'm doing the same nothing has changed.
Hi Mel,
Any progress with the neurosurgeon consult?
How have you been doing so far?
Hi,
Yes i have had an EEG done. One in 2003 that came back normal. and the last one i don't remember the date but it was after the after we found out that the cyst had gotten bigger and it should i had seizer activity.
Hi,
I suggest you discuss with your physicians your concerns. A referral to a neurosurgeon in larger centers may help. You have mentioned your seizures and blackouts. Was an EEG done? Your seizures need to be properly classified and managed. You may want to consult with a neurologist who specializes on seizures.
Also, please bring all your scans when you consult with your surgeons.This is important .This way they wil be able to properly evaluate your condition.
I hope I can help more.
Yes my last MRI was in 2007 showing the cyst measuring 10 x 12 cm. And yes it sarted out measuring 1.2 x 0.7 cm in 2003.
As the cyst has grown the symptoms that i already had have gotten worse and and new symptoms started.
I'm just lost i don't know what to do anymore. I mean how do you get a Doctor to believe that the cyst is symptomatic when they say pineal cyst don't have symptoms. There are 3 doctors in the practic where i go and the main one i see understands a little had said at one time that i needed surgery and sent me to a neuosurgeon but the neurosurgeon and the 2 other doctors in the practic say pineal cyst don't cause symptoms. So what do i do?
Yes my last MRI was in 2007 showing the cyst measuring 10 x 12 cm. And yes it sarted out measuring 1.2 x 0.7 cm in 2003.
As the cyst has grown the symptoms that i already had have gotten worse and and new symptoms started.
I'm just lost i don't know what to do anymore. I mean how do you get a Doctor to believe that the cyst is symptomatic when they say pineal cyst don't have symptoms. There are 3 doctors in the practic where i go and the main one i see understands a little had said at one time that i needed surgery and sent me to a neuosurgeon but the neurosurgeon ans the 2 other doctors in the practic say pineal cyst don't cause symptoms.