Thank you, Marileew, et al
For starting this group...I'll try harder to check in. I, like everyone here suffers from the dreaded "headbangers". Mine are daily, since youth...and escalating in severity. To recap meds...have covered most & combos, and alternatives; now relying on benicar/ prophylaxis; botox injections every 3 mos.; relpax -prn; narc if needed -compazine for nausea;
I also have seizures that I take lg dose of topamax for. Have checked for rebound...but not the case. Have done migraine diet; I see my neuro every 3 mos. I feel for all of you - I figure sooner or later, someone will come across something that will help. But I know there are worse things...so
Thanks again for being here, cause there are days when things get "crazy" and the pain gets well you all know :O)
serenity113