Hi Melrose,
It is good that you are going to a MS specialist, they are great at sorting this out. There are so many mimics that he has to go through, it is always more difficult when the spinal test is clear then he will probably take a good look at the mimics to sort this out. I have 40 lesions on my brain, and 5 years of symptoms like MS, but now I might be finally getting a diagnoses and that is Sjögrens in the CNS. The symptoms can be SO much like MS, so that is why your neuro has to look carefully over everything. I sure hope he will figure this out for you, good luck and let us know how it goes.
Best wishes,
Dagun
Sounds like you have a plan. I am sorry you are having a rough time. It is hard.
Alex