Thank you for posting this! I am in three same boat with my bp and chronic nausea- it's suspected to be a Neuro issue. I am scheduled to wear a 24 holster monitor soon so my doctor can see if my bp is true random pattern.
I'm not positive of a brain stem lesion, but i failed my BAER evoked response, so that most likely will indicate a lesion if my auditory nerves are ok.
Also i have been having heart palpitations, which my pharmacist said may be linked to increase in baclofen, but i didn't think about it being related to dysautonomia issue. Are there other things to watch for in regards to brainstem issues?
With my last relapse, autonomic dysfunction reared it's ugly head big time and is still misbehaving. BP from 170/104 to 98/48 within 4 hours of each other and then back up again. I do have a new implantable loop heart recorder to monitor the heart rate. At one time , there was talk of a pacemaker but that has been tabled for now thankfully!!!
My BP is all over the place as is my heart rate. My last relapse had me calling 911 for a heart rate in the upper 30s and I was already taking steroids which should have raised it as per my body's norm.
It has also been playing havoc with my digestive system as well. Gastro today said he believes my recent issues are autonomic in nature or else due to my meds but my meds haven't changed except to drop any meds which might lower my pulse and blood pressure.
Have an appointment with an electrophysiologist soon and am anxious to hear his opinion.
I do have brain stem lesions and this is a common source of the dysfunction.
Ren
I have autonomic dysfunction secondary to ms. It causes my bp to run high then will drop suddenly and I faint. Its a crazy situation. I am on 4 bp meds to control high bp but also have to fluid load and eat salt to avoid lows. It also caused tachycardia in me so on med for that. This is all under the supervision of an electropysiologist. They tell me its not that uncommon in ms patients.
I have a blood pressure issue, but it's in the other direction. I have Orthostatic hypotension.
On some occasions when I stand from sitting, or otherwise significantly change my posture, my blood pressure drops. I can get very light headed and need to hold on to something. My blood pressure is usually on the low end of normal.
Kyle
Do you have brain stem lesions by any chance?
I have a good friend with MS who has brain stem lesions....she was talking to me last night saying her blood pressure was all over the place, and she developed an arrhythmia. After testing by a cardiologist, they concluded it was due to her brain stem lesions.
I too have brain stem lesions ....my blood pressure is also unstable...I do take BP meds which help a little. When I had a major attack this past Sept. I was having horrific hot flashes and my heart would race. Neuro said it was autonomic nervous system disfunction. (that is when they found the brain stem lesions)
Laurie :)