diagnosed with fibromyalgia yesterday. i am still getting the western blot test done to test again for lyme, and then to see the MS specialist in december to make sure i dont have MS.
oh boy. i didnt know they did that test to see where you feel the pokes! ahh
I am still wondering if i should go to the MS specialists even if i do get a diagnosis of fibro next week. i could still have MS right? should i still meet with the specialist for MS in december?
well there are diagnostic tests for fibro, the great "poke" you in 18-20 places and see how many times you yell "ouch that hurts"
be sure and google tests for fibro, its very interesting
Sounds like you are working all possibilities, which I think is wise. It takes too long to do work ups for one of these conditions at a time and you could decline while waiting.
When I suspected Lyme, I still went through the MS work up because multiple doctors recommended it. It was helpful to have an MS specialist say that I didn't have it so we could put it to rest.
That is great that your doc agreed to the IgeneX test. It should be helpful. False negatives are possible there, but less common. If you have been sick less than a year, odds are good it will show signs of Lyme if you have it.
I have the hesitancy when urinating, too. You can see why it can get so tricky to differentiate between these conditions. While the underlying cause is very different, the outward presentation can be very similar. Fibro should be the diagnosis of last resort, after eliminating everything else, as there are no tests to confirm it.
If you do have Lyme, heat can help ease pain. (Many pain killers don't help with Lyme pain, but different people respond differently.). I used a heating pad for my abdominal pain. Just be careful not to lie down on the heating pad as it can burn you without you even realizing it.
I hope you get an answer soon!
you are really sounding like fibro, and surely some baclofen and neurontin will make you feel better. check with your neuro or rheumy about those.
good luck and keep us posted, we all learn from each other
Sarah