no news is supposed to be good news right?

[michelleislay]

and one would think that this would apply especially with mri results, but i feel a little lost.  

to explain, i did get my hands on my mri reports from my brain and c spine, and guess what?  nothing remarkable but for a mucus retention cyst in my left maxillary sinus.  well, maybe that could be to blame for some of the vertigo..i don't know.

i should be delighted, and in a way, i guess a part of me is...but i am just not sure where to go next.  i suppose i must atleast go back to the neuro to hear her interpretation of the results, but i can't see her doing anything except telling me this time again, to get out there and enjoy myself!!

also on a positive, is that i am starting to feel quite a bit better.  the vertigo seems to have more better days than horrible ones, leading me to believe it may be resolving.  the area of skin that is numb/itchy/burning are all shrinking and nothing new has appeared for a couple of weeks.  my taste is back to normal.  only real symptoms left are the diminished vertigo/tinnitus/slurred s's that no one else but myself and my mother seem to notice (lol!).  

i guess what i am asking for advice on is where to go next with all of this.  should i just "wait and see" since things seem to be resolving or atleast stablizing, or should i push on to the next neurologist and dive into it all over again?
the only thing my current neuro was really interested in was the girdle band-whatever-it-was that lasted a good 6 weeks, and there is now no evidence of what might have caused it, though we have ruled out back issues.

can all of this be due to some virus?  i think i've ruled out all of the mimics, but perhaps that is something i could ask the neuro for help with...making sure everything else is ruled out?

advice or ideas anyone?

xo michelle

[michelleislay]

thanks so much ladies for all of your good advice.  

i will see the neuro and ask her what she thinks i have.  she will not look at the films, she can't read them.

i'm off to an audiologist next week about the balance/vert/tinnitus and that doctor is trained in neuroaudiology (is that the right word??) and diagnostics, according to her website.  she's also worked at the mayo clinic in minnesota (don't think that is necessarily a good thing though from what i've read here on it!!), in anycase, she is here in my hometown and i hope she will be able to help some.

still waiting for a call back from the neuro who clearly has no interest...but i will keep pushing.  i have thought a bit on it and do think it would be worthwhile to get another medical/neurological opinion.  

thank you oh so much for the encouragement ladies...it does get exhausting this quest, doesn't it?

xo michelle

[RedFlame]

You have already been given the best advice.  I just wanted to encourage you to go by your own instincts.  If you feel that there is something wrong then continue to pursue the help that you need.

Meet with the neuro for him/her to discuss the results.  Ask him what he thinks you have and what the next step should be.    So many people have lesions that don't show up.  It's sad that our docs feel they have to go by the mri.

Not having MS is the best outcome!  

Just don't give up!


hugs,  Red

[Zacksmomi]

I would make sure that the neuro goes over the MRI films with you. If you do not hae an appt scheduled, get one.  If this neuro you have now is not willing to schedule you to look at your films, GET A NEW ONE for sure.
I tell my neuro I want to understand what he is seeing and make him show me the films as he looks at them.  

The sinus issue can certainly cause vertigo but not the other stuff.  I am glad you are feeling better.  Maybe this is a one time issue, but I do know that if you have some banding type feeling it can be due to a spinal cord lesion and those are hard to see.

I have one in my T spine that my neuro and an MS specialist are sure are there, but it does not show up on the film.  

Keep pushing for answers girl.  They will come
Hugs
D

[michelleislay]

thanks paula!

i had my mri's without contrast and as my neuro is a terrible sceptic of my situation, i'm pretty sure she won't be ordering any further tests.  i definitely will go to see her though to get her take on what to do next.  i've left a message but haven't heard back yet.

hope you are doing alright too!!

xo michelle

[figuerpa]

Well it is good news Michelle, well from what you are getting from the results. Wait till you talk to your neuro and see what she has to say about the results. I don't remember, did you have them with and without contrast?

Hopefully the vertigo resolves for you, and maybe you are feeling better because it is remitting but then who am I to say what is going on lol.

I hope you have an appointment to see the neuro soon so that you can go on to the next steps of figuring out what is going on. I hope it all turns out to be nothing, but it is better to wait and see what your neuro has to say.

Glad you are feeling better,

Paula