two wierd symptoms--anyone know what they are?

[medic8r]

I have had numerous odd symptoms that I just saw a nuero for the other day.  He wants to do a MRI, but Ill have to wait until Jan 08 till I get my insurance.  He listened to all my symptoms/problems (literally I brought a two page list!) and didnt tell me it was stress!  He told me that this was his "area" and wanted to do an MRI, but it could wait until my insurance kicked in.  I think Ill like him, after the rhuematologist I was seeing who every time I had a new symptom/problem he would say that wasnt his area of medicine.

Anyway, two symptoms that I have not been able to find info on, can anyone tell me whats going on, or have had the same thing even if you dont know what it is?
(1).  About four years ago, at the begingin of all this, I had some kind of "attack".  My blood pressure dropped very low, they called an ambulance becuase I could barely feel my legs.  But what I thought was crazy was this feeling I had of "electric shocks" that would travel in waves beginging in my feet and moving up my body and then back down again.  It felt like electricity and it would move in waves up and down my body on both sides.  I would dismiss this if someone I didnt know described this to me, but I know I felt it.

(2).  Sometimes I feel very hot in my face and upper body (feet may still be ice cold) but I will feel like I have fever, yet I dont!

I really appreciate anyone who can help!
Thanx
mel

[Heather3418]

As you may already know, I have been diagnosed with MS for 12 years.  I went to my doctor yesterday for what appears to be a flair-up.  Because of what I have experienced and what I was told yesterday...as these match what you are talking about...  My Doctor said in my case...these symptoms represented problems with the "autonomic nervous system."  Lesions in or near the brain stem, can cause temperature regulation problems, breathing problems, heart rate changes, the full gambit.

I have been having trouble regulating my body temperature.  One second I am hot, the minute cold.  My upper body is warm, my feet are freezing.  With this flair up and I certainly have had many over the years...I have also been experiencing tingling and numbness down one leg, in my scalp..in my right toe (yes I said my right toe..LOL) in my lips...and the list goes on.  I know from experience, that these are symptoms of the MS.

While it is rare, (and definitely needs immediate medical attention) a sudden drop in blood pressure, enough to make you faint; CAN happen when your autonomic nervous system is involved.  And of course...a host of other reasons that have absolutely nothing to do with MS.  I just bring up the autonomic nervous system, so you can do some further research on it, if you would like.  I would "Google" it and read all you can.  The National MS Scoiety website has an area where the auntonomic nervous system is discussed and how lesions in that area can disrupt, what we are discussing here.

It's a shame you have to wait to get your MRI in January.  Now would be the best time to have it done.  I will be going through my 8th MRI next month.  At this point in my disease, I really don't see the point, since they already know there are numberous lesions in my brain and a lesion in my spinal cord.   I have a diagnosis and don't really care how many more are in my brain or elsewhere....but, that's what the doctor ordered.

While you wait for your MRI, keep track of ALL those "goofy" symptoms."  They may not make sense to us, but a Neurologist (a smart one anyway) will understand PERFECTLY what those "goofy" symptoms are...

Best Wishes, Heather

[Super_sally888]

Hi,

No for the electric shocks.  

Yes for the hot stuff..... aside from just feeling hot patches, I also get flushing (I turn bright red) - sometimes I am aware of it, not always....  Just posted on that yesterday....

Welcome to the world of the weird.

S

[BondyinOz]

From one Mel to another, yes I have had an 'attack' very similar to that and they too took me to the Medical Centre for immediate checking out... except I didn't tell anyone to begin with and by the time that I got there the biggest things happening were a lot better.

I also get very hot in my face and upper body - it happened last night in fact at my band practice. My work colleagues reckon I'm getting hot flushes hehe

Anyway, I'm in a different time zone and not always online so if it takes me a while to reply you'll know why.

Mel

[JI Jo]

I just wrote this long detailed post about how I had similar symptoms and then when I went to post my browser crashed. SIGH

Sorry honey.

Now long story short, yes I have similar electrical shock sensations and feelings of being overheated at times as well.

I'm not sure if it is related to everything else going on with me but at this rate I'm not ruling anything out. Sorry you didn't get the detailed post I'd just written, but hope this helps anyway!

Jo

[medic8r]

oh, well, thats ok if noone knows anything about these or has not experienced them.  I always have things going on that come and go and some seem random, some repeat, some dont make sense.  I thought other people had experience with feeling soo hot like you must have a fever, but you dont!  But I know the first thing I listed sounds crazy.
thanx anyway
mel